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Update on Fibromiteuk. Mainly for Fantod.
2 Replies
fibromite.u.k. - July 6

Hi Fantod, I hope you have read my reply to your earlier message telling you how things are going along.

I went to the hospital to have the biopsy on my tongue, knowing that the ulcer had gone down a lot, but that I had another nasty one come up on the other side. The doctor decided that as the ulcer they were going to do a biopsy on was now so small that I could either go ahead and have it done or go back again in six weeks. I have chosen to go back in six weeks and I came out with a big smile on my face. The ulcer (which had refused to go for over six months, has now all but disappeared).

However, I am still feeling really ill. My aneamia is very bad and the lowest count I have ever had. I keep getting infection after infection and am so low just now. I am seeing the rheumatologist on Friday, she is very good so I will tell her about everything. There is a strong possibility that I have either rheumatoid arthritis or lupus, even though my blood tests are negative for these.

I am still having big problems with my Dad, at the present he is in a rehab ward in the hospital while we are trying to sort out a good nursing home for him. We have found one that would be perfect for him and near enough to his home that his frinds could visit him easily, but at present they don't have a vacancy. Could I ask that you pray that one becomes available before his time runs out at the place he is in now please.

Hope you are going along ok. I often think of you.


Fantod - July 7

Good day sunshine (there I go with the Beatles again - lol) - I was so glad to get an update on your situation! I'm glad that you were able to avoid the biopsy and have a six week reprieve. I'm sure that was such a relief.

I did do some looking on the Internet about tongue ulcers. There is a tie between them and aneamia. You must be beyond frustrated at this point. I took another bad fall in my home recently. I am all bruised and battered. You are not alone in your frustration about being ill all of the time. Not only am I ill but now I am sporting every colour of the rainbow on one knee and shin. At this rate, I will have to start wearing a helmet to protect my pointy little head from my propensity to fall down.

I am just wondering if it might do you any good to see a naturopathic physician at the College of Naturopathic Medicine in London? I use a mix of conventional and holistic medicine to pretty good effect. I had a doctor who graduated from there and she was very talented. She managed to indentify some issues that my other highly educated army of specialists completely missed. I don't know where you are in the UK specifically or if it would even be affordable. If you do decide to do this, make sure that you take copies of your medical records with you to save time and money. It just seems like your conventional doctors don't have clue. I would certainly be trying to summon up the energy to give the rheumatologist a good talking to on Friday about your level of frustration etc.

I hope that the situation with your Dad will get sorted soon. My Dad has dementia; we've been able to keep him at home so far but it is a challenge. At least, he's cooperative for the most part. It it so hard to watch a gifted man with a PhD slide into oblivion. Things will work out the way that they are supposed too but I will certainly keep your Dad and you in my thoughts and prayers. I'm really touched that you asked. I'm sending postive thoughts across the pond hoping for better days and some peace in your life. Please keep in touch. God bless.


Fantod - July 11




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