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uninsured with many questions
4 Replies
chefb - April 11

I've been unemployed, hence uninsured, for the past 10 months. I've had "tender" spots for years, (one doctor during a general physical poked at one spot and sent me through the roof, but she brushed it off as a "pulled muscle"). The pain has gotten worse, so, knowing that I don't have insurance, please don't tell me to go to a doctor. And I'm not asking anyone to diagnose me. I just want answers to some questionsL
1) If there is no real medical test to determine fibro, why go to a doctor? 2) If there is no real cure for it, why take medication that is harmful? 3) Are there good days and bad days with fibro?
4) The other day was a good day so that I didn't even notice it, I had a glass of wine in the evening and noticed the aching setting in. Does alcohol aggravate fibro? The only way I can describe the pain is it feels like the Wednesday after a Monday workout in the gym. You know, Tuesday it hurts, but Wednesday is the worst. I have all the trigger points--shoulders, hips, sides of my torso. It even hurts when one of my cats stands on my leg while I'm sitting. Any way, if anyone can answer any of these questions for me I would be grateful.


Noca - April 11

Certain medicines help treat the symptoms. You can't get these medicines without a doctor. There are good days and bad days with fibromyalgia. And I have no idea if alcohol aggravates fibromyalgia.


Fantod - April 11

Hello and welcome to the forum. I was really sorry to learn about your situation. There must be some free clinics in your area. Call the local United Way and the hospital to see if they are aware of any close by. And, these days pharmaceutical companies offer assistance for people who can not afford their medication. Each manufacturer has information on their websites about consumer assistance.

Yes, wine may increase your pain level if it contains nitrates. Anything with nitrates like lunchmeat, hotdogs will ratchet up Fibromyalgia (FMS) pain. The same can be said for anything containing an artifical sweetner including Splenda. Anyone with FMS should be using a sweetner made with the nontoxic Stevia plant. You can find products containing Stevia (Truvia would be one example) in the grocery store right alongside the other sweetners.

Fibromyalgia (FMS) is a disorder of the central nervous system that causes widespread chronic pain. There is no cure but it can be managed with prescribed medication. OTC medication does not address the type of pain caused by FMS. You run the risk of ruining your liver and stomach trying to treat it yourself.

I often describe how I feel as the day after the work out from hell at the gym. I have a cat too and it hurts if she stands on me. I also have difficulty with the pressure from clothing and bra straps which is called "Allydonia."

There are good days and bad days with FMS. Not treating it properly will probably lead to more bad days with a longer recovery time. FMS puts a lot of stress on the body system wide so I would encourage you to seriously consider trying to find free medical care somewhere or seeing if any rheumotologists in your area take pro bono patients. The latter might be a question for the local hospital physician referral service.

I hope that my comments are helpful to you. Keep in touch and take care.


chefb - April 11

Thank you, both. As for the nitrates, wow, did you hit that on the head! I made bacon sandwiches for dinner that night and topped it off with a glass of wine. I had forgotten about the bacon until my husband pointed it out after I told him about the nitrates. Talk about a double whammy. I have to tell you guys, though, I hate taking 'scripts because I have found that I am hypersensitive to side effects. I took one prescription for an infection a few years back and the presription made me sicker than the infection. Any time I start any kind of prescription and something weird starts to happen, I check the side effects and ultimately it's the medication.

Bra straps aren't a problem, thankfully. And my husband gives gentle hugs on bad days. Fatigue is a huge issue, and fortunately I can take lots of naps now since I have the time. I try not to worry too much about getting back to work because I know what I do can be brutal with long hours or standing and lifting, etc.

What I am curious about and wonder if anyone had done a study on is the geographic location of sufferers. I've noticed a lot of postings from Canada. I live in Washington state. Does the environment play a role in this? Stress? Body weight? Any idea?


Fantod - April 11

chefb - It is not uncommon for people with FMS to be hypersensitive to medication. I have a list of stuff that is unbelievable and frequently causes problems when I have to see a new doctor. Nothing like arguing with someone over whether or not you are actually allergic something... Unfortunately, FMS requires prescription medication. I usually start with a pediatric dose and work my way up from there. It takes time and a lot of tinkering to find the right combination of medication and doseage to make any FMS patient feel more comfortable.

Take some time to read all of the information in the blue boxes on the lefthand side of this page. This is the best site on the Internet for good, solid information on FMS.

I want to talk about your fatigue and pain issues too. FMS disrupts the deep sleep cycle with short bursts of high intensity brain activity. Your body needs deep sleep in order to repair itself from the days activities. No deep sleep means higher levels of pain which rapidly becomes a vicious circle. Amitriptyline is usually prescribed for sleep issues associated with FMS.

You might try taking Melatonin which is used for jet lag. You can find it at any drug store or at the health food store. I'd start with 1mg to see how it affects you. You can take up to 3mg. I take 1 1/2 mg - anything higher than that and 12 hours later I'm still walking like a drunken sailor. Make sure that you understand any risks associated with it and how to take it. If you can get your sleep issues under control, your pain level may improve.

Stress is huge when it comes to FMS. The less stress,the better as FMS symptoms really react to environmental issues. Many of us see a counselor to help manage this chronic illness. It is a very complicated medical issue with ramifications not only for the person who has it but also the family members. You may have also noticed that weather affects you too. This is very common and personally speaking I am more accurate than the local doppler radar. I usually know well in advance what type of weather is headed to my part of the country.

Take care and let us know if you have any other questions. We are all here to help.



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