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Unable to walk and considering wheelchair
2 Replies
NatsFan78 - March 25

Hello all. I was diagnosed with fibromyalgia about six years ago. My back, legs, hips, and feet hurt so much and it keeps getting worse. I am having a really hard time walking. I am using the cane my doctor prescribed a few years ago but can still barely stand to get up. Walking from the living room to the bathroom took forever and now I am in bed. I just can't stand to walk, it hurts too much and my legs feel so weak. I have a small tear in my rotator cuff in my right shoulder which makes using my cane painful and frustrating. I don't have a hand on my left side, I was born missing my left arm from about 2 inches below my elbow, so I have to use my right hand. I am to the point I only leave the house when I absolutely have to. If I go out I am so exhausted and hurt so much I can't do anything for days.

Do any of you use a wheelchair? I have been thinking about talking to my doctor about trying one when I go out somewhere that I would be on my feet for long periods. I want some small part of the independent person I used to be back. I would not be able to push myself because of my arms so it would have to be a power chair or a scooter. I would like to be able to go to the store instead of always shopping online. I would just like to be able to get out sometimes with my husband and children without worrying about spending several days in bed recovering from it. I think this would be huge for me.

Is that reasonable? I don't know anyone else that has this except my father. He has several other very serious health issues also. How do I approach my doctor? I have been seeing an integrative doctor for all my health issues since January and she has been fantastic and extremely understanding. In addition to fibromyalgia I have mild sleep apnea, restless leg, hypoglycemia, hypothyroidism, and chronic migraines.

 

conniehurts - March 26

I am not yet in a shir but have seriously considered this as an option. Before i was put on fairly high doses of Fentanyl and Dilaudid I could barely manage to walk with help from my bed to the sofa (about 8 feet). I will most likely be back to that option soon as my doctor left (we play dr roulette here every year or so) and the new one refuses to even so much as help me safely get off them! I would just ask the doctor if that is an option for you especially as you seem to have one you trust. Good luck! Gentle hugs, Connie

 

NatsFan78 - March 26

Thank you Connie, I am going to talk to her about it when I see her April 13. I am just not sure what else to do. I have tried everything, including therapy which made me worse. I want to at least be able to go out with my family some. My daughter is graduating in May and my son will graduate next May. They will be out on their own soon. I want to be able to do things as a family and enjoy my time with them before they head off to college. I just don't know how to bring it up with the doctor. I'm a little embarrassed to be honest. I'm only 37 but sometimes I feel like my life is over. I'm sorry your doctor left. I hope the new one will help you.

Blessings,
Michelle

 

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