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Tired of Being Tired
9 Replies
Lenzi - January 9

I was diagnosed with fibro. 4 years ago. I still am not receiving the proper care because I have medicaid and no one seems to want to help out. I have been labeled as a person that just wants pain pills and such, so I thought I would turn to this support group.

I am so tired that I can barely stay awake. My doctor has me on Provigil, but it is just not helping. I am a mother of two and doing it by myself and I can barely stay awake to take care of them and if I am taking care of them i do not have the energy to be the mother that I need to be.

Does anyone have any suggestions? PLEASE PLEASE help me. I am so tired of being tired.

 

Fantod - January 10

Hello Lenzi - I was very sorry to hear about your situation. I share in your frustration about fatigue and FMS. I have a couple of ideas that may be helpful to you.

First of all, are you seeing a rheumotologist? I know you said that you are on Medicaid. I know little or nothing about that program. I am going to recommend that you go to the National Fibromyalgia Association website and ask them for more than one referral in your area. A rheumy is the professional who best manages fibromyalgia (FMS). I think if you can find someone to take you
a second opinion would be a good idea. You could also call your local hospital physician referral service and ask them for a rheumy that treats FMS. Just be aware that not all rheumotologists and other medical professionals think FMS exists or treat it properly. If you have time take a look at all of the information on the lefthand side of this page. You'll be better informed and know when a doctor is giving you a line of BS.

Secondly, I would like to ask about your diet. It is very important that people with FMS follow a high protein diet. Fish, chicken and turkey are the preferred choices. I do better if I eat smaller meals throughout the day. I start with 17 grams of protein in the morning. I think that is particularly helpful. Your blood sugar will remain stable instead of crashing. Coffee and sugary snacks may give you a boost but the downside is just not worth it. Stay away from diet pop or sugar substitutes (including Splenda), processed lunch meat (nitrates) and deep fried food. They will all probably increase your pain level. They also make you more tired. If you need a sweetner for coffee the local health food store should stock Stevia. This is a natural sugar substitute which tastes good. Some grocery stores have just started stocking "Truvia" which is stevia under a different name.

I suspect that part of the problem is lack of quality sleep. Are you on Amitriptyline or any other medication to aid deep sleep? FMS interrupts the deep sleep cycle and deprives all of us of quality sleep. You could try adding 1mg of Melatonin (health food store) to see if that helps. Do it when you don't have any plans the following day. You may feel more groggy although I have found that if I take it early enough that is not a problem. You can safely go up to 3mg of Melatonin but I'd take a little at a time to see how it affects you. I take 1 mg of Melatonin with my nighttime meds with no problems. Make sure you read the label so you understand how to take it and the risks associated with it.

You can also try a sublingual B12 lozenge. You should find it either in a combination of 1000 mcg B12 with 400mcg Folic acid. Or buy them separately in the closest mcg. The folic acid helps the B12 absorb which is why you need both. Sublingual meds are placed under the tongue and allowed to dissolve. They do not taste bad. You should not drink anything, smoke, eat or brush your teeth 1/2 hour before AND after using them. I keep mine on my bedside table. I pop one when I wake up and it gives me a "push" to get up and moving. You can use this periodically throughout the day. My nutrionist recommended this to me and it does help. Again make sure you understand how to use them and any associated risks.

Finally, I wonder if you have considered that your high level of fatigue may be associated with depression. Depression is another *perk* of FMS and most of us have it to one degree or another. Have you spoken to your doctor about this? Are you on Cymbalta or another antidepresant for pain and depression. Maybe the dose needs to be adjusted. There is no shame in asking for help on this issue. You have your hands full as a single mother.

I hope you will consider some of the alternatives that I have suggested. I think getting to a fibro-friendly doctor would be a good start. Keep in touch and let us know how you are doing. God bless.

 

Anne Hillebrand - January 10

Get the best sleep - wear an eye mask and ear plugs.

Test saliva pH. It should be 7.4 When it's lower, you lose your energy, coordination, strength and mental sharpness.

 

axxie - January 18

Cymbalta works for me, I have been on it for the past couple of months. The only side affects I had with at the start was nausea but I finally persisted and now it's gone. Yes, having a bid of a depression comes with fm. You need to follow the suggestion of Fantod, she has it pretty much covered. But very important about getting good sleep, so get a sleeping pill if you have to. Also may I suggest a multivitamin everyday and two showers am and pm, this will help with the pain. Will also help in the evening when you are tired and achy, it will help with take some of the pain away long enough for you to dose off.

 

ddavies - January 18

I was that way for along time. I am also on provigil, but I am also on a whole lot of other things as well. I am lyrica which I don't think helps, Percocet which I don't think works. But I also am on ritilan for ADD and have now started a new drug Prestiq and am also on lamactal. I still have the swelling and the pain but I stay awake. I don't know which is the best of both evils. I hope they get you the help you need.

 

ddavies - January 18

I was on cymbalta for a year and it did not work so now am off.

 

Lenzi - January 19

Thank you so much for that information. I will defiantly get my salvia pH checked at the next appt. May God bless you.

 

Lenzi - January 19

Thank you very much for your time and help it was greatly appreciated. May God bless you

 

Lenzi - January 19

Wow sorry to hear that. Yeah I don't know which is the evil of the two either. I am on Lyrica which I thought didn't work, until I ran out. My insurance doesn't cover it and my doctor did not have any samples, I walked around with more pain then I had been having. I sometimes think that the meds that they give to us do not work, its like a medical rat they just give you something and test it and if it doesn't work move on to the next thing LOL. Just kidding. I hope all works well for you. Thank you so much for the time and information. May God bless you.

 

ddavies - January 19

I think you are right. they just don't know what to give u next.

 

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