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tired and so so sore
2 Replies
themamarose - January 16

Hi I was diagnosed with fm just this past week after 2 yrs of going from dr to dr trying to figure out why I have ruq pain that screams liver problem but all tests are fine. I saw a back surgeon who says in a few years I will need spinal fusion and a physiotherapist who says exercise. How can I exercise when somedays getting out of bed seems like pure torture. I will be seeing my family dr in a week by then he will have rheumatiod dr report and diagnosis. I am having a hard time with this

 

Fantod - January 16

themamarose - Welcome to the board! In reading your post, I feel that you really don't have a very good understanding of how to deal with Fibromyalgia. So, I am going to give you a crash course which may clear up some of your questions and help you cope.

Fibromyalgia (FMS) is a disorder of the central nervous system which causes widespread chronic pain. It is correctly referred to as a syndrome. The mechanism that causes it is not understood. There is no cure but it can be managed with certain classes of prescribed medication. OTC remedies do not work for the type of pain associated with FMS.

Fibromyalgia is recognised by the National Arthitis Foundation, the World Health Organization and the Centers for Disease Control.

Take some time to read the information in the blue boxes on the lefthand side of this page. There is a lot of good information there. Knowledge is power.

The doctor best suited to treat FMS is a rheumotologist. Have you been tested for a Vitamin D deficiency? This is done with simple bloodwork. Another option is gluten sensitivity. The most accurate result is obtained using a stool sample. Either of these issues will also cause widespread pain.

To find a fibro-friendly rheumotologist there are a couple of options. Go to the National Fibromyalgia Association website and look for a list of healthcare providers in your state. Or, call your local hospital and ask for the physician referral service. They should be able to match you up with a rheumotologist and/or a pain specialist (I have both) who have an interest in FMS.

The three prescribed medications used to treat FMS are Lyrica, Cymbalta and Savella. Cymbalata is an antidepressant which addresses both the pain and depression that usually accompanies FMS. It is unfortunate that you are not able to tolerate it. Lyrica is advertised on TV all of the time. Some people experience weight gain with this drug. Unfortunately, most doctors do not seem to be proactive about trying something else when this problem becomes apparent. Savella (also known as Milnacipran) is the newest medication used to treat FMS. It has been used in Europe for decades and was approved for use in the USA in March of 2009.

Starting on a medication regime for FMS does not mean that you will instantly feel better. It can take 2 weeks and even up to a month before you start to notice a difference. There will be a "break in" period while you adjust to the medication. And, you may have to be switched to another med and/or have the doseages adjusted. There is no set medication formula for managing FMS making it a challenge to find the right formula for each individual patient.

One of the reasons that you are so sore is lack of restorative sleep. FMS interrupts the deep sleep cycle with short bursts of high intensity brain activity. Your muscles require deep sleep in order to repair themselves from the days activities. No deep sleep means higher levels of pain which rapidly becomes a vicious circle. You should be on a sleep aid. Amitriptyline is usally prescribed for FMS patients. Addressing the sleep issues associated with FMS is a crucial part of treatment.

We all have family members or friends who don't understand FMS. Pain is subjective. For some people, if they can not see it than it must not exist. I'd like to recommend a couple of options in this regard. Go to Amazon and order "Fibromyalgia for Dummies." Like all of the Dummies series, it contains good basic information. Read it yourself and pass it along to friends and family members. You can also go online to the National Arthitis Foundation website and use the "search" function to find the information on FMS. Send people a link so they can learn about your condition.

Diet is very important with FMS. If you use anything containing an artifical sweetner (including Splenda) get rid of it. If you need a sweetner use something made from the nontoxic Stevia plant. You can find Sun Crystals or Truvia in the grocery store. Deep fried foods, lunchmeat and red wine (nitrates) will also ratchet up your pain levels.

If you are having problems coping with your illness, I'd like to gently suggest that you consider seeing a counselor for extra support. Ideally the counselor should be someone who treats people with chronic illness. Many of us see someone to help us cope with FMS. Call your local hospital and ask for the physician referral service. They should be able to match you up with a counselor who uses cognitive behavior therapy to help chronic illness patients.

I'm sorry you've been through so much already with this infernal syndrome. I have degenerative disc disease and advanced osteoarthitis. I totally understand what you are saying about exercise. Tai Chi or a water areobics class for arthitics are good choices. Walking is also helpful. Believe it or not, you will feel better if you can manage to do something.

I know how frustrated you are with all of this. I feel like an ongoing science project most of the time. You've come to the right place. We have a good group of people on this board who will step up to answer questions and lend support. If you are on Skype (Internet phone provider) we can talk one on one. Calls are free from one Skype user to another anywhere in the world. This is the brainstorm of one of our other members (Noca).

I hope that my comments are helpful to you in some way. You are not alone and we welcome your participation on the board. Take care and keep in touch.

 

themamarose - January 16

Thank you for replying, I know I need to understand this disorder. This is going to take me some time to "grasp"

 

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