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Terribly fatigued :(
3 Replies
Jen C. - June 16

Hello everyone. I just signed up to this forum although I have been visiting this site for several months now and have found it to be highly informative, comforting and encouraging. I am 26 years old and was diagnosed with Fibromyalgia in mid 2002 by my GP. He put on Zoloft which seemed to improve my symptoms for a short while but then returned . My symptoms started to develop after two (2) minor car accidents and an overload of stress between 1999 and 2002. At first, it just started out as terrible back pain but throughout the years it has spread through out my entire body. Everyday is something new and I am in pain 24/7. I also feel that my symptoms were exacerbated by a severe kidney infection that I had in 2005 and by my current job. The majority of my pain is in my head, shoulders and neck. I am the only administrative assistant for a police department consisting of 23 officers funneling police reports to me on a daily basis in addition to all of the other data entry and clerical duties that I have. Every time that I take a vacation or holiday off I have so much catching up to do and feel like the time off was not even worth it. While I am away I just keep thinking about what I have to come back to and don't even get to enjoy it. At first I really enjoyed my job although lately I have found it more and more difficult to concentrate with the fibro fog among many other things. I have a major problem getting myself to work in the morning. I just don't know what to do. I am afraid that I am going to get fired. No matter what time that I go to sleep I can never fall asleep and even if for once in a great blue moon I actually do I wake up still feeling unrefreshed. I hit the snooze button continuously for an hour and a half and I have to drag myself out of bed aching and sobbing. I have always had pain but at least I was able to get up in the morning and get to work on time. Instead now I am incessantly late and calling off sick. Does anyone else have this problem? Does anyone have any suggestions on what I could do get back control of getting up in the morning? You feel like you want to get up but you just feel too weak and feel like you have no control of it. I have to set my alarm that far in advance or else if I set it too close to the time that I have to get up I will not make it to work. This problem is really stressing me out and I feel like I have lost all control and I am afraid that my boss is going to get fed up one of these days. I am so embarassed when I arrive late. He has already mentioned the tardiness and sick days to me during my yearly review and I just broke down and told him that I have this terrible condition and it seems like he has become a bit more understanding. It just still bothers me because I have always been a hard worker and hate to complain. I can not even make plans on the weekends early in the morning because I know I will not be able to make it. It is so frustrating. I have been to 2 rheumatologists, 3 acupuncturists, 2 pain management clinics and received lidocaine and epidural injections which only made me feel worse, at least 7 chiropractors, physical therapy. I have tried every pain and sleep medication, anti-depressant and herbal formula known to man to help but unfortunately nothing has worked. zI even tried that d-ribose which I have heard so many great things about but nothing for me. I feel like I am at the end of my rope. Fortunately, knock on wood I have a really supportive and loving husband that treats me like gold. He and my mom are like my rock. I do not know what I would do without them. They are always there for me and try to help in whatever way they can. My GP is also really great. Unlike a lot of other doctors that I have met he really does care about his patients and trys everything in his power to find a solution. I am so terribly sorry to have written a novel on here. Thank you so much for reading my post and God Bless you all!

 

llcsmom - June 17

Hi Jen,

I don't have the fibro but my 11 yo daughter does. After reading your post, the first thing that comes to mind is your sleep and how messed up and lacking it is. Is there any way you can go to a sleep specialist or get a sleep study done? As you know--you have to get better sleep--since it is related to the fibro I'm sure that you have tried melatonin, since you said you have tried everything. The snooze alarm is bad!! My huisband does that--for 1-2 hours. You don't get ANY quality sleep when your alarm goes off every 8 or 10 minutes. At least if you got up at a somewhat reasonable time but didn't use the snooze--you would get a little bit of sleep that helps your body and your fibro. Try all the tricks--put the alarm across the room, set a 2nd alarm without a snooze for 30-60 min, after your first one goes off, etc.
My daughter tried accupuncture but after 5 months it became way too painful to have the needles in, so she stopped. She, too has tried alot for her young age--PT, aromatherapy, meds, lidocaine patches, etc. I know it feels like nothing at all helps, ever!

A;lot of people say that almost daily exercise helps tremendously. We haven't gotten to the daily part yet, but she tries. Stress makes fibro worse.

Epsom salt baths, arthritis creams and ointments help her a litlle.

It's a bummer, but I try to stay as positive about this as possible (but sometimes you just can't be very positive!)

Best wishes,
Dawn

 

islandguy - June 17

Jen: As I have read through your post I noticed that "Lyrica"(a recently approved drug for fibromyalgia) is not mentioned.
Have any of the doctor's or specialists suggested you try this drug? My research shows that it is about a 50/50 chance of having it make a difference to your life. However, if it works I understand that it is very helpful. Unfortunately for me it has no effect.

 

Fantod - June 18

I would also recommend B 12 with folic acid - sublingual form. I keep a bottle of it on my bedside table and use it to give me an extra "push" to get out of bed. You need 400 mcg folic acid and 1000 mcg B12. Call your local hospital or find a local FMS support group to find another rhuemotologist that specializes in FMS. I saw several physicians before I found someone who was actually helpful. I whish you better days ahead. Take care.

 

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