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suffer 24/7
8 Replies
fibrosufferer - July 27

I am new to the site. I am glad to be a part of it all. I feel like I'm going nutz sometimes. I have all the symptoms of it and more. I also have DDD and 2 cervical fusions and making plans for lower back surgery as well. I've also got carpal and cubital syndrome too. I felt like crazy cuz of mental problems until I read that I'm not the only one with anger problems. Some days I feel so alone. I've got a great family but they don't understand and also get tired of hearing my complaints. So thank GOD for this site.
My question is does anyone have restless leg syndrome with this too? Thankx! V

 

kathleen Paterson - July 28

HI , I HAVE ALWAYS SUFFERED FROM RESTLESS LEGS FROM AS FAR BACK AS I CAN REMEMBER , I HAVE HAD FYBRO FOR 3 YEARS NOW , ITS A LIVING HELL , ANYTHING I HAVE TRIED DOESENT WORK , I ALSO HAVE CARPEL TUNNEL , THE WORST THING IS THE PRESSURE SENSATIONS IN HEAD AND ALL OVER BODY REALLY , VERY SCARY , I KNOW HOW YOU FEEL, I TEND TO LIKE MY OWN COMPANY AS WELL AS I AM SICK OF LISTENING TO MYSELF , SO HOW MUST OTHER PEOPLE FEEL AS THEY CANT HELP YOU , YOU TAKE CARE KATHY

 

Fantod - July 28

Yes, but mercifully I don't have RLS each and every night. It seems to come and go. I have noticed that if I eat sugar later in the evening that seems to either trigger it or make it worse. Sleeping is hard enough without adding that to the list. Have you tried sharing this site with your family? I think everyone with FMS has family acceptance issues to one degree or another. Take some time to read through the posts on this iste. There is some good information and you won't feel so alone. Take care.

 

fibrosufferer - July 29

THANKS for your responses. I just read a book called "90 minutes in heaven" and it helped me understand that I am here for a purpose and so are you! I want to say I appreciate your comments and concern. Sincerely, V

 

ep246 - August 18

yes i have rls and i know how u feel...people who do not have fms just don't understand.....i have many illnesses including cancer.....i will prqy for u also.....donna/miss

 

Janet 427 - March 29

Hi, I have had fibro for 26 yrs. I know, that is a very long time to suffer from this horrible disease.Restless legs is coming on me now.I don't know if it comes from fibro.the more I read about this, the more symptoms I find connected to it. I just read someone complaing from her arm hurting at night. Mine does the same thing,I thought it was from my arthritis, but now I am wondering.I also know the feeling of being alone.How can anyone understand constantly hurting, being so tired you can hardly move at times, having to sit on a heating pad because your lower back feels as if it us on fire. Please keep this going, it does help to know your not alone J

 

axxie - March 29

So I'm medication on FMS and I still find some days are harder then others. I guess it depends on a lot of things, such as your diet and if you have done too much the day before. I can get up in the morning and dress, but when it comes to tidying the house, take can take days, same with washing clothes. It took me a few days to look at my floor and get really displeased with myself that I will coax myself to clean it. Could it be the medication or FMS doing this. I don't think I feel as much pain as some, who feel it's everyday, is there degrees to the FMS

 

TRACIEDC74 - March 30

YES. IM SO GLAD THAT I FOUND THIS SITE TOO. ITS LIKE, WHEN YOURE DOWN AND OUT, SOMEONE WHOS NOT FEELING SO BAD THAT DAY CAN LIFT YOU UP AND VICE VERSA. IT HELPS SO MUCH.
THANKS TO EVERYONE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

 

axxie - March 30

Yep, I understand also, not much fun, I only have rls, but there was a time I had it everyday and everynight and the only thing I did was walk to try relieve the rls, it didn't work, but I felt better for walking.
I notice when coffee, sugar and anything that is refine makes my symptoms worse. I really have to stick to my routine and keep watch what I eat, and in the morning take my vitamins, pills and take care of myself. I ache more in the mid-afternoon and at night, what I do have when I wake up is I'm still so so very tired and my fibrofog is worse. Still loss with every other symptoms. I sometime wish there was this magic pill to take and it would all go away. Some days it's hell on earth

 

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