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Sorry Guys
15 Replies
barbar - December 11

Sorry I'm still venting guys, but I was REALLY disappointed with my experience with the Fibro Centers. And please, Larry/Kathy, don't put this off as being due to my failing to listen to you. This is a direct result of following your specific instructions. I am happy other people are 90% cured or totally cured. Maybe I have something else. But don't slap me around---or zap me---because I am actively seeking remediation and am reporting the results of my searches here. Sorry I'm taking up so much time and space guys, but I was really, REALLY looking forward to some relief from this and was willing to travel the 450 miles and shell out the $1,000 (for the first two visits and the medication). What a dismal, dismal, heartbreaking disappointment.

 

teresat - December 11

Barbara, you didn't really PAY for anything did you???? This site has become full of ADS & I am begining to think that this Larry/Kathy person is a sales person who is, push this Fibro/Center garbage!!! ( Notice how he/she never gets ZAPPED)?????

 

larry - December 11

Maybe being polite helps? Not really a novel concept. People helping people, with open hearts.

 

barbar - December 11

Larry/Kathy: I don't think you are hearing us---when I followed your instructions, I was met with severely contradictory information, sufficiently so that I stopped all inquiries into the solutions you have proposed. If these solutions are, indeed, legitimate, then there is a real problem here. How do we establish the integrity of this solution? On the other hand, because people ARE following your advice, gathering information from these organizations only to discover the appearance of illigetimacy, it makes you seem as if you have ulterior motives, motives other than our health and welfare. Can you please try to understand how it looks from our point of view? It seems as if you are promoting something that blatantly contradicts your best recommendations about it. You promote this item to FMS sufferers based on its having uncovered an underlying cause of our disorder and its excellence in testing for that underlying condition. Then we find out that those tests may not be used in the treatment of the disease. The lab tests are simply irrelevant. We would have been spending hundreds, if not thousands, of dollars for lab work that may as well have thrown away. In the meantime, for an extra few hundreds of dollars, each and every one of us could be treated with exactly the same 'Nutra-ceutical', as opposed to having one specifically designed to address our unique needs, e.g., the one we paid for. Are you not understanding that this is a problem? A large part of FMS is managing it. It overwhelms our lives and our checkbooks. Discretion and research on our part is absoutely necessary to our survival and to the survival of the relationships around us. I did what you said. I called both the 866 main number and the number of the center closest to me. Not only have a received advice directly contradicting yours and abrogating the advertised information, I have received different information each time I have called. This does not increase my confidence in this institution as a professional organization. I am very careful about what goes in and out of my veins. And if I have to have in IV inserted into my body to remain their for months at a time, I want to know that I can rely on the medical competence on of the establishment I'm dealing with. Instead of chastising us (me) for not being polite, address the concerns we (I)present. This is not an issue of politeness, this is a matter of cold, hard cash; the possibility of severe, degenerative infection; toxic injections; and debilitatingly further burdening our support systems. I am not talking about politeness; I am talking about my life. FMS may not be degenerative but injecting contra- or non-indicated, non-FDA approved substances into our bodies using unsanitary tubes inserted improperly up our arms and into our chests can be lethal. This is not a time to be thinking about whether or not somebody might be miffed by what I say or how I say it. That is just not a priority. You might be offended by what I say but I might be dead by doing what you say. I'm sorry if I consider the latter to be more important. You raised these issues by your continued promulgations of articles and information about the Fibro Centers; you took on the responsibility for their legitimacy, professionalism, medical competence, and integrity by doing so. The burden is on you to explain why I got the responses I did and to demonstrate whether or not the solutions you propose are in fact legitmate, profession, and competent. So far, they do not seem so. Sorry if you are offended by my words but I am still alive by not having followed yours. (And no, teresat, I did NOT give them any money, although at first I was tempted to purchase someof their vitamins.) So, Larry/Kathy---why did I get the response I did? Why was I told what I was? The ball is in your court and the burden is on you.

 

larry - December 11

I am sorry Barbara, I can not help you.

You have to do your own research and take ownership and responsibility of your illness and your personal quest for better health. Until you are ready to own your sickness, your research, your quest for better health, you will always be fighting and twisting any data that comes your way..... this is your responsibilty, not mine or anyone else's.......

I am not trying to convince you or anyone. I am sorry Barbara, I can not help you. You must help yourself first. I sincerely wish you well.

 

BrandyO - December 11

Barbara... Did Larry/Kathy ever fess up to being a male or female? I was just wondering. Also, thanks for informing us about your experience with the Fibro Centers. Something seems off to me about the Larry/Kathy post. Thanks and have a good night, Brandy

 

Amyloo - December 12

Larry's female. She speaks of having pms on a different thread. Amy

 

larry - December 12

Congrats Amyloo! I have been speaking about my husband and hormones and PMS for months now!!! Glad to see some other people are also here to read and learn.

 

Amyloo - December 12

Well I am hear to read and learn, but sorry Larry, I tend to agree with the other ladies in that I think you have an agenda. Amy

 

Lynne-FT - December 12

I have just read the site and I have not made any calls, I also posted a question concerning the F&F Centers billing practices or lack of and never got a response to that post.
If you can't get a answer on something as simple as cost I don'y suspect you would get a response to proper treatment either. I am glad we all have the right to our opinions and we have the right to do what we feel is right for our bodies and health.

 

Lynne-FT - December 12

barbar, never be afraid to state your opinions and I applaud you on how you have handled this whole ordeal. I forgot to note that in my previous post. Take care.

 

BrandyO - December 12

Larry, now that you mention it, I think I do remember once reading about your hormones, I guess I just forgot. Why is it you use the Larry name? You may have explained it in a previous post and I may not remember. I mean no disrespect towards you, I get confused easily. I have memory and cognitive problems that go beyond the Fibromyalgia. May I ask why is it that you are so upset with Barbara? It sounded to me that she was taking responsibility for herself and for her illness by contacting the Fibro Centers. I think we are all here to help one another but we can't be pushy about it. What works for one may not work for another. We may not all agree but we can be supportive of each other. Take care, Brandy

 

larry - December 12

I am not upset with Barbar at all. She is not ready for this info and that is ok and Amyloo, that is ok that you may believe that I have an agenda, it is all ok. It is normal to have a healthy level of skeptism around new info, especially when we have been sick for so long and now there is NEW info. There is always a lot of skeptism around new, different, thoughts and innovations. Just like when the SONY beta-max was introduced, until it diffused thru the innovation curve, thru time, only a few innovators and early adopters accepted the new technology. My agenda is to help folks become aware that there is a cure so that they also don't spend a huge part of their life being sick missing out on playing with their kids, having troubled marriages because of husbands that don't understand and losing jobs and being too sick to attend class reunions or embarrassed of their weight gain. I am helping my 80 year old mother who has numerous health issues (which now includes possible lupus) that can ALL be traced back to hypothyroidism and fibro issues going undetected for many, many years. My gratification comes from making sure that people get helped and that not one more doctor throws bullshit at another person that is sick, throwing bullshit at patients because they have not kept up with medical science and are not following the new guidelines that were set in 2003 for detecting hypothroidism. If you read Mary Sholom's book "Living well with Fibromyalgia, what your doctor does't tell you", you will understand how this huge epidemic of sick women could have been prevented. I am trying to educate women so they don't have to stay sick. If you choose to read the book I would like to start an online forum that gathers enough momentum to make a positive impact in stopping this fibro madness. Until you read the book and have studied holistic medicine this might not make sense. The good news is- there is a cure and I am open to dialog with anyone that is open to learn about it and move forward. I also believed my doctors and I stayed sick. Then I started researching and was blown away what I learned from the medical community that has been very successful in treating this. Unfortunately, still 90% of the doctors in this country don’t know how to treat this and that is why 90% of the people that have fibro are still sick! Unfortunately, there is only one medical group that I know of that offers an intergrative approach that is inclusive of holistic and naturalpathic as well as modern medicine addressing this problem at the root and CURING. Unfortunately it is hard to believe there is a cure when our medical doctors are telling us differently. That is why I say we have a choice “Be right about our belief systems learned from our doctors and continue to defend what our doctors have taught us and we will always be sick. Be wrong in our belief systems and be well by being open to new info-that challenges your belief systems. You are about to see a huge movement in our medical system where patients are demanding more from their doctors, not treatments for symptoms, but healing at the root cause. When there is such a big change evolving, like now, there will be a lot of frustration and anger as change is difficult and belief systems are being challenged. In ten years this info will have diffused to the point of being accepted by the mass majority so I don’t expect everyone to jump on board now as most people need time to diffuse innovations. However those of you that have “early adopter” type personalities will understand this. I am NOT trying to convince anyone or the doubting Thomas, but to help empower those that are sick and are open to accepting new info. If we believe our doctors, we stay sick- if we want a different result, we have to take a different approach. When I found the fibro and fatigue center I felt like I found “home”, it was the first time in 6 years that I didn’t have to educate the doctor. I could relax and get better. I hope you can too. But beware, they are different. But that is why they are successful, afterall we need different. Being the same hasn’t worked, has it? ….. BTW---Lynn- if you have questions about payment you should contact the Fibro center near you. I suspect that The Fibro Center opted out of participating in the Medicare program because they are healing with many non-pharmaceuticals, again a different approach. I simply file my claims directly with my insurance company for the visits and blood test, etc.. As I said many times, I am a patient, an educated patient that has studied holistic healing for 6 years, I am not an employee. I will continue to post info in an effort to help those people that are new to this info hoping to save someone else many years of researching this on their own and staying sick. Happy healing everyone.

 

barbar - December 12

Larry/Kathy: How dare you say that I am not ready to receive this information? How dare you consciously and deliberately insult me by saying that I have not taken ownership of my condition? How dare you resort to such tactics as character assassination and then turn around and wrap yourself in the sugary sweetness of "people helping people, with open hearts" after you have just slung your arrows at the innocent? Again, you are not hearing me: Not only do I take responsibility and ownership of my condition, I was following YOUR instructions; seeking out YOUR solution; attempting to work with YOUR people. I was and am VERY PROACTIVE about my conditions. How can you say that I am not ready to receive this information when I attempted to set up appointments with the Fibro Center near me? Not only did I receive and accept the information you provided, I ACTED on it. How can you say I do not own my illness when the research that I have done and the questions I posed clearly and irrefutably demonstrated my ownership of my illness and my path to wellness? I asked you legitimate and follow-up questions to the information you have been providing us. Instead of responding to the questions, you resort to character assassination. The questions are simple, basic, and straightforward. Considering how lengthy your posts usually are and the detail you provide, these questions should be easily answerable for you and responses should be virtually second nature---that is, if you are as familiar with this material as you claim. When we get down to the basics and start asking you the hard core questions, you back away, resort to character assassination; blaming the victim; outright dismissal of our inquiries; and insulting our intelligence. You then wrap this all up in sacharine sweet language of "people helping people, with open hearts". It seems you do not want a dialogue about our illness. We are supposed to listen like sheep and follow without using our heads. Bottom line: when you read what I post about what I have done (considerable research among other things) and compare it to Larry/Kathy's reactions to it, either he/she's not reading the posts, i.e., he/she's ignoring us; or he/she's just flat out lying. I'm tired of this whole business. I invested a lot of time and energy in pursuit of Larry/Kathy's solutions to this disorder and I simply found nothing there.

 

teresat - December 12

Amy, you do deserve a big pat on the back!!!! I for one never read she/he post when she/he claimed to be Kathy either!! Are you NOW comatouse now from all that boring reading, LOL????? SHE had nothing worth reading THEN & HE has nothing worth reading NOW!!!!! Did you read JJ1's post today ??? On top of being a fraud SHE/HE is also a plagiarist!! Way to go JJ!!!!!!!!!

 

Amyloo - December 12

You are funny Teresa. Thanks for making me laugh this morning. Amy

 

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