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4 Replies
heavensent0607 - December 8

Hello All, I was diagnosed with FMS earlier this year after a traumatic life changing event in my life. I just need a little help and support understanding some of my symptoms. I frequently have chest pain and have had my heart checked and all the test came back normal. ER has always said it was costrochondritis. At times I am extremely weak, lightheaded, and dizzy. My head sometimes feels like its in a haze my eyes feel weird and I feel as if; if I were to close my eyes I will pass out. Most of my other pain is in my arms, legs and knees OMG so painful! My memory is horrible! I have thoughts that I am dying all the time and I always think that something bad is going to happen to me. Even with the smallest pain or issue I think the worst case scenario at all times. Is this normal??? I was prescribed savella however I am scared to take it because it is an anti-depressant. I really need some help with how to cope with these issues. FMS has me living in a box and its very hard for me to enjoy life. No one in my family understands for they have never heard of this disorder prior to my diagnosis. SOMEONE PLEASE HELP!!!!!

 

Fantod - December 8

Welcome to the board! I am sorry that you are having such a hard time right now.

Fibromyalgia (FMS) is correctly referred to as a syndrome. It is recognised by the Centers for Disease Control, the National Arthitis Foundation and the World Health Organization. The mechanism that causes it is not understood. There is no cure but it can be managed with certain classes of prescribed medication.

The symptoms that you have prescribed are some of the many "perks" than can be associated with FMS. They can be quite scary and difficult to deal with. I would like to gently suggest that you consider finding a counselor who specializes in "cognitive behavioral therapy" (CBT) to help you learn to cope with your diagnosis. Extra emotional support is crucial expecially in the early stages of accepting and learning to live with a chronic illness. Many of us see or have seen a counselor for help in managing FMS. You can call your local hospital and ask for the physician referral service. They should be able to match you up with someone. Or, use Google. Enter the name of your metro area and cognitive behavioral therapy and see what pops up.

There are now three primary prescribed medications used to treat FMS. They are Cymbalta, Savella and Lyrica. As I said, only certain classes of prescribed medication work for the type of pain associated with FMS. OTC medication like Tylenol does not. The drugs used to treat FMS are typically antidepressants. A key point to remember is that the longer a chronic pain cycle continues, the harder it becomes to manage or stop. Once you do start taking medication, it may take two weeks or even longer before you begin to notice a difference. Do not stop taking medication without consulting your doctor. It takes time and a lot of tinkering to find the right combination of drugs and doseage for each FMS patient.

You should also be using a sleep medication. FMS interrupts the deep sleep cycle with short bursts of high intensity brain activity. Your muscles require deep sleep in order to repair themselves from the days activities. No deep sleep means higher levels of pain which rapidly becomes a vicious circle. Amitriptyline is one of the many sleep medications that can be prescribed. Managing sleep issues associated with FMS is a crucial part of treatment.

You will probably find that your memory symptoms improve once you get your pain and sleep issues under better control.

Diet is also very important. If you are using anything that contains an artifical sweetner including Splenda - stop. Most people with FMS find that sweetners increase their pain levels. If you need a sweetner, use something made with the nontoxic Stevia plant like Truvia or Sun Crystals. They can be found in baking aisle at the grocery store. Anything containing nitrates like deep fried food, lunchmeat, bacon and red wine should also be avoided. Again, nitrates will probably increase your pain levels.

If you are not happy with your current doctor go to the National Fibromyalgia Association website. You can see a list of fibro-friendly providers for your state. Make sure that you get copies of your medical records and any recent bloodwork to save time and money when seeing a new doctor.

And finally, go on Amazon and order a book called "Fibromyaliga for Dummies." Like all of the dummies series it contains easy to understand information. Read it yourself and ask your family members to look at it too. Knowledge is power.

You are not alone and your symptoms are "normal" for FMS. I would encourage you to begin treatment. Good luck to you and God Bless.

 

kvc33 - December 10

You need to get your stress level down and learn to control your thoughts. Your nervous system has been completely reset by the trauma that you experienced. There are a number of ways to help it get back to normal and I would suggest that you start looking into them. There are things such as meditation and deep breathing exercises, yoga, massage therapy, short walks in nature and listening to relaxation tapes. You can also try cognitive behavioral therapy which teaches you to change the way you think. A good book on self-treatment is called Feeling Good by Dr. David Burns. The light-headedness could be due to anxiety, low blood pressure, exhaustion or low blood sugar. Keep a record of when it happens and how you are feeling at the time. Does eating something help? You can get a blood pressure monitor for home use. I suffer from low blood pressure and when it goes down my heart rate goes way up and I have difficulty breathing. I believe in trying to manage FMS with natural medicine first so see a naturopath who may be able to help you. Drugs cause side affects and make many people sicker, others choose to use them and feel that they could not get by without them. For me, chiropractic care has helped me to stay limber, calm, and reduces pain.

 

Beone - December 11

Dear Heavensent0607,
hi, Ive just read your message and wanted to let you know your not alone, apart from how long you've been diagnosed (time frame), i could have written the message myself, So i can understand the Fear that is being worked through. Ive been diagnosed since 2000,Ive had this pectoral, breast, back shoulder blade, rib, collar bone, dizzy, hazy,arm ache, thingy, type symptom on and off for quite a while, (hehe) you have to laugh, because you'll otherwise cry, and laughing at this condition helps. Well it comes and goes so it will go away,hopefully for good one day,I use hot wheat bags which are great, and i use antiflamme cream to rub on . I have found that the discs in my back if they are sore have alot to do with the pain,so get some one to rub them, also i treat them with electric acupuncture and trigger points,i also use crystals to help. There are many types of crystals and i studied them and have a collection now even though i never believed in them before, I have also done extensive plotting of sunspot counts, moon cycles and earthquakes around our country and all these things make things change in our bodies, Ive measured my bodies electricity and it matches the energy changes that occur in the environment,I know allot of people will think this is rubbish but Ive done this for about 2 years now and they do have a large effect on us, So if your sore it helps to know that a sun flare just went off or a quake has happened or about to happen, it helps the mind because you know it will change, Therefore you can ride it out, Now there has just been a Luna eclipse and the energy is intense so it might feel like you want to cry for nothing this is because emotions are ruled by water and high tides around full and new moons effect the water on the planet and in us,
Hope this helps a bit, sorry to rattle on ,all the best, love Beone,

 

Ena - January 11

listen]]]
forget pain , it 'll forget u too
believe me
i have 26 more than, 8 years ago, i am still have pain all over my body
i made all inverstagtion
and i have a lab results in my home (more than u expexts + the x-rays ,etc)
i decided to stop go to dr and trying to live with pain
GOD make me bear pain , and i hope one day to clue
forgive me for my bad english
iam from egypt
by the way we dont have FM doctor in egypt , Remotoud dr , or nerves dr deal with me]

 

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