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So very tired
4 Replies
weemama - May 13

Hi Everyone....So here I am at the doctors yet again. This time its another bladder infection. Second one in two months...Had a long talk with my new doc, and he told me I am under too much stress and am not handling it well. hmmmmm...Okay, now what? Everyone has stress, everyone gets upset now and then, but everyone doesn't have FM, so what do you suggest Doc? Answer.....Learn how to relax!!!!!! And that was that....More meds for the infection and another urine test in 10 days....Tell me ladies, does anyone else here have this problem with their bladder, or is it totally not related to FM? I am feeling pretty down and out right now....the meds that make me feel worse than the affliction...another week of feeling like ASS!

 

Pikespeak - May 13

Hi Weemama! I have had UTIs for the past year and a half! They all seem to be water-related (pool, hot tub, bathtub). I now have mine cultured each time to make sure the right med is going to work, as I am resistant to some...I learned that you can take a low dose of antibiotics as a preventative. Ask your doctor about that. No more water sports or soaks for me---I'm done! :-(

 

January - May 13

I know cystitis is REALLY painful! Recently, I was researching something called DMSO. It is FDA approved for treatment of interstitial cystitis. There's a lot of controversy about it (maybe because it can't be patented and no drug company will make money off it). There is very interesting information on various uses for DMSO. I have been using it for severe pain in my shoulder. Yes, it stinks, and it works much better than anything else I've tried - including pain meds. Here's some edited down information from Wikipedia:

"Medicine
Use of DMSO in medicine dates from around 1963, when a Oregon Health & Science University Medical School team, headed by Stanley Jacob, discovered it could penetrate the skin and other membranes without damaging them and could carry other compounds into a biological system. In medicine, DMSO is predominantly used as a topical analgesic, a vehicle for topical application of pharmaceuticals, as an anti-inflammatory, and an antioxidant.[citation needed].

(Information snipped…)

IN A 1978 STUDY AT THE CLEVELAND CLINIC FOUNDATION IN CLEVELAND, OHIO, RESEARCHERS CONCLUDED THAT DMSO BROUGHT SIGNIFICANT RELIEF TO THE MAJORITY OF THE 213 PATIENTS WITH INFLAMMATORY GENITOURINARY DISORDERS THAT WERE STUDIED.[12] THEY RECOMMENDED DMSO FOR ALL INFLAMMATORY CONDITIONS NOT CAUSED BY INFECTION OR TUMOR IN WHICH SYMPTOMS WERE SEVERE OR PATIENTS FAILED TO RESPOND TO CONVENTIONAL THERAPY.

DMSO has been examined for the treatment of numerous conditions and ailments, BUT THE U.S. FOOD AND DRUG ADMINISTRATION (FDA) HAS ONLY APPROVED ITS USE FOR THE SYMPTOMATIC RELIEF OF PATIENTS WITH INTERSTITIAL CYSTITIS."

The only adverse information I could find was that if you have kidney disease, you need to use it with caution. There may be other problems with it - but the main one I found was that it stinks - and since it penetrates into the body so quickly, you get a garlicky taste in your mouth - more annoying than disgusting. This was most noticeable to me when I first used it, maybe a month ago - since then, it doesn't seem so bothersome. And it really helps my shoulder. (It is used for a wide variety of medical problems in alternative health circles.)

I don't know if your situations are "interstitial cystitis" or not - might want to ask your dr. to check the literature and see if this might help you.

 

weemama - May 14

Hello: Thanks for your input and info...it is very helpful. I am just really tired of taking meds....seems like it is something new everytime I have to go to the doc....But it could be worse..and I am very thankful to have this site to come to and talk to all of you. It does make things alot easier to deal with as you all understand what is going on.....alot of people really don't get it....Thanks again

 

kvc33 - May 14

If you are taking antibiotics you should be supplementing with acidophilus to keep the healthy bacteria in your gut alive otherwise you will feel sicker, probably get diarrhea and your immune system will be even weaker. A big part of our immune system resides in our gut. I think you need to figure out why you are getting infections so much. Wash thoroughly before sex and put some anti-biotic cream on your clitoris. This stops bacteria from being pushed up into the urethra. Urinate right after sex to flush out your system. If you take a bath, have a shower first otherwise the bacteria on your skin goes into the bath water and up into you. Take cranberry pills as a preventative, they stop bacteria from sticking to the bladder wall. Always drink lots of water and use a mild detergent on your clothes so that you are not irritating your crotch. Never wear tight pants and sleep without underwear on in order to get the area some 'air time.'

 

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