I'm 17, and have been battling pain and various other symptoms since I was 4. When I was 5 the doctors diagnosed me with JRA, though i never agreed with this diagnosis, as many of my symptoms don't fit, nor do i have many of the symptoms associated with it. I stopped seeing doctors for this disorder when I was 6. They'd prescribed me naproxen, which only made my nausea worse and never truly helped the pain. I never tested positive for JRA with any of the tests that were given, basically it was a cop out diagnosis, given when they couldn't figure out what was the cause.
The pain comes and goes, or at least changes in severity. From 4-6 it was the worse, the pain so debilitating that i couldn't stand. I'd get out of bed and just crumble, crying until my mom would come and pick me up. On the days that my body didn't refuse to function, I'd have headaches so painful that I couldn't see, hear, or think. Just stars and ringing.
One day i just decided that i wasn't going to let the pain control my life. I took myself off the meds, made myself start exercising, made myself pretend that i didn't hurt and that everything was ok. Slowly it got better. Pain never went awat but it flowed into the background for a few years. Got to the point that i hardly noticed it except for when it rained or the weather changed. I've always been able to predict the weather by how my body feels. I'm usually more accurate then the weather man xD. When I had my first period at 13, the pain started coming back more and more. Even now I can't move the first 2-3 days of my period, i have just curl up in a ball and make myself sleep if at all possible.
When the pain came back in full force, it brought along a series of new symptoms that i either didn't have or wasn't aware of when I was younger. One of the main ones is the dizzy spells. It seems to be mainly when I move around after being stationary for a while, it can also be triggered by a switch in light. Like if i walk in front of a window after sitting in a dark room. It's like a black sheet is brought over my vision and the world shifts. All i do anymore is sleep. I'll get out of bed at 1pm, go to work at 3 for 6 hours, come home and pass out for another 15 before I get up and go to school. I refuse to take morning classes, as it's a total waste. If I force myself to get up the pain is just that much worse, which kills my concentration, and makes the effort completely useless. I always feel off balance, like if I close my eyes I can't stand up straight no matter what I do, I just sway until I fall of move. My muscles tingle, thats the best way I can describe it, almost like my skin is constantly crawling, specially along my arms and legs, if I don't tingle Itch, though thats usually centered on my back. I feel weak all the time, which is probably the thing that bothers me most, no matter what I do, the littlest bit of physical exertion has me panting and sore for weeks.
The pain always moves, but my back is always the worst. There are always knots right at the base of skull and in two lines running along my spine towards the center of my back. Just running your fingers over them you can feel the muscle roll and pop. My legs are almost as bad, it's like the constant use is making them deteriorate. I don't even walk correctly anymore as I've damaged the tendons in my ankle so many times, weight is always centered on the outside edge of my right foot. My knees lock if I stand for to long, flat out refusing to bend until I sit down and rub some of the knots away. It's like a bow of rice crispys, if my ankles or knees aren't popping then my hips are catching on every step with audible complaint. Oh and the migraines, oh my god the migraines. They last for days at a time, make it hard to think or hear as my ears are popping the entire time and my eyes pulse as if threatening to explode. Then my jaw joins in, locking and popping to add the searing pains of complaint within my skull.
I haven't been to a doctor in years, as they never seemed to have much to offer. I have no idea if I have fibro, though a number of the symptoms fit. I do however know that something is very very wrong with me. I've tried a number of meds, though the only one that has ever helped at all is flexeril, if only because it gives me the escape of sleep. If anyone has any insight, or information to offer, I'd greatly appreciate it.