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pre-diagnosis and prevention
2 Replies
denykrane - April 23

I am confused. My phys. recently referred me to see a rheumatologist to rule out fibromyalgia. I have already been suffering from arthritis and bursistis for several years. Have had both knees replaced. Am considering doing the same for my hips.
The question is this: I have already been in anti-depressents, nsaids and pain meds for years. These are supposedly the same drugs they recommend for fibro. If they aren't already preventing me from having fibro myalgia pain now. What difference will it make when I am diagnosed?

 

Canada17 - April 23

It won't in terms of medication. But, you will know what you are up against and that will enable you to make more informed decisions about life style changes that are necessary to help control the flares associated with Fibro.

Anti-depressents, nsaids, sleep aids, I've tried most of the prescription drugs usually written for Fibro patients. I have either had an allergic or severe adverse reaction, or they have no effect on my pain and annoying side effects. I also suffer from Multiple Chemical Sensitivity which makes it virtually impossible for me to tolerate even basic medications.

Being diagnosed with Fibro allowed me to do research (which is a constant) and learn about triggers, like food and weather, that make my symptoms worse. It also helped me learn about things that make me feel better. Like saunsa, hot tubs, and relaxing.

I have come a long way since I was diagnosed a year ago and while I am still in pain almost daily, I understand it and have developed ways to cope.

Everyone with Fibro feels it differently and responds to treatments differently.

Stay positive and be kind to yourself. Remember you are not alone in this, we are all here for you. You will find your way. : )

 

Fantod - April 23

denykrane - Love the name (!) and welcome to the group. Fibromyalgia (FMS) can be triggered by other chronic pain conditions. For example, I have advanced osteoarthitis in both knees and one hip is suspect. I have bursitis in both shoulders and hips. I have also had TMJ for years. I was on plenty of medication to manage these issues - NSAIDS etc. Then, I developed degenerative disc disease. L5 left the building and I was diagnosed with FMS 3 months later.

My point is that everybody's central nervious system is different. Some people can handle any amount of discomfort thrown at them with no repercussions. Then then are others, who reach a certain point and the central nervous system throws in the towel. Which is precisely where you are now.

Not all prescribed medications are effective treating the type of pain caused by FMS. Only certain classes are effective. Therefore, you can expect to have your drug regimen adjusted to accomodate this new diagnosis. The three main drugs used to manage FMS are Lyrica, Cymbalata or Savella.

You should also be given a sleep aid as FMS interrupts the deep sleep cycle with short bursts of high intensity brain activity. Your muscles need deep sleep in order to recover from the day's activities. No deep sleep means higher levels of pain. You should also be given a sleep aid to combat this problem. This is a crucial part of treating FMS.

I hope that my comments are useful to you in some way. Keep in touch and let us know how you are doing. Take care.

 

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