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Possible Fibromyalgia
4 Replies
Sammiedoll - May 14

Hi everyone! So I have been living in pain for at least 6 years now...I'm 27 and have had a multitude of problems in the last 6+ years. This includes horrible pain mostly in my back, I also have been diagnosed with IBS after about a year of trying to figure my stomach issues and the doctors taking my gull bladder out for no apparent reason...because I still have the same problems I had before they removed it. I also have extreme fatigue....I'll be fine for a few months and then it hits me like a log...I'll sleep most of the day away and still feel exhausted! I'm not able to be the mom or wife that I want to be during these spurts. The first time that I can remember having any symptoms was when I became pregnant with my oldest son 7 years ago....I had extreme preeclampsia during the pregnancy and then a car accident about a month after giving birth. The doctors around here can't figure out why I'm still in pain or why I start getting pains in any other areas...I feel like I've been pushed aside and just given pain medicine to help me to an extent. Other issues that I've had that I don't know if they are related...elevated liver enzymes during two of my pregnancies, many kidney infections/UTI's. If anyone can give me any advice or any knowledge please do so. When I was going through physical therapy one of the many times I had a physical therapist joke around and make a comment about "I better not be getting fibromyalgia"...that was awhile ago and no doctors in my city in Illinois specialize in Fibromyalgia.

 

Sammiedoll - May 14

I also have been told by a pharmacist (that I worked with) 8 years ago that he believed that I probably had Raynaud's Phenomenon when he saw what my fingers and toes do when I get cold...I've taken care of these syptoms by myself over the years and try to avoid going outside for any large amount of time during the winter.
My mother was diagnosed with Lupus while I was in high school and the doctors have also done blood work on me to try and find out if what I've been dealing with is that and the blood tests came out negative.

 

Pikespeak - May 14

Try to find a book on FMS at your library or book store. I read FIBROMYALGIA FOR DUMMIES, and saw myself on every other page! Keep track of your symptoms and find a doctor who will LISTEN to you. Call around and ASK if they treat FMS patients. You may need to be referred to a rheumatologist, who should be more familiar with FMS and treatments for it.
Getting a good night's sleep was the key for me to feel better (I take Ambien)! I still have my ups and downs but feel that I can improve/control my symptoms with stretching, walking, massage, etc. This site is GREAT for support, so please write and tell us how things are going!

 

Sammiedoll - May 15

Thanks for commenting! I went to my library today and checked out a couple of books...I didn't see the one that you mentioned though. I started reading one of them and discovered that it was all things that I've been dealing with. I plan on talking to my GM on Monday and seeing if I can get referred to a doctor outside of my local city. (I did some research on physicians in Illinois and found a couple that are downstate that I might be able to go to.) Wish me luck!

 

Fantod - May 15

Sammiedoll- Welcome to the board! Round up all of your medical records including any recent tests and find a rheumotologist and/or a pain specialist (I have both) with an interest in Fibromyalgia. Call your local hospital or go online to their website. They should have a physician referral service. See if they can match you up with someone.

If not, go online to the National Fibromyalgia Association website and see a list a fibro-friendly healthcare providers in your state. You may have to travel to get proper care. Be sure to mention to whoever you see that your mother has Lupus and you probably also have Raynauds. FYI - Raynauds is a "perk" that can be associated with Fibromyalgia (FMS).

The longer a chronic pain cycle continues, the harder it becomes to manage or stop. You really need to keep pushing until you get a definitive diagnosis. Your immune system is on overdrive trying to combat all of the issues that you have described.

Have you ever tried cutting out dairy to see if that helps with your IBS issues? Sometimes a simple change like that will make a huge difference. I have a raging case of GERD (acid reflux) no matter what I do. One of my doctors suggested that I use Almond Milk which has helped a lot. You can find it in the dairy case or if your grocery store has a health food section, it may be there. Also, has anyone considered that you may be either gluten sensitive (me) or intolerant? The most accurate test to determine that is done using a stool sample.

Have you ever been tested for a vitamin D deficiency? That can be done with a simple blood test. Gluten and/or a problem with vitamin D will both cause widespread chronic pain.

You should also stay away from anything that contains an artifical sweetner (including Splenda) or nitrates (lunchmeat, bacon, red wine to name a few). These items will also cause your pain levels to go up. If you need a sweetner, use Truvia or Sun Crystals which are made with the nontoxic Stevia plant. You can find them in the baking aisle at the grocery store.

And finally, FMS interrupts the deep sleep cycle with short bursts of high intensity brain activity. Your muscles require deep sleep in order to repair themselves from the days activities. No deep sleep means higher levels of pain which rapidly becomes a vicious circle. While you are waiting to see a rheumy, consider using a natural sleep aid like Melatonin which you can find at any pharmacy or the health food store. I also like "Mid Nite" or Calms Forte which are both also natural. Either way, you are going to need something to help you with your sleep issues.

Good luck and let us know how things are going. Take care.

 

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