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Fantod - October 26

Polo - Welcome to the board and Happy Birthday!

You are correct that Fibromyalgia (FMS) interrupts the deep sleep cycle with short bursts of high intensity brain activity. Your muscles require deep sleep in order to repair themselves from the days activities. No deep sleep means higher levels of pain which rapidly becomes a vicious circle. Managing sleep issues is a crucial part of treating FMS. I can not understand why your doctor only gave you Savella and nothing for sleep. Amitriptyline is usually prescribed.

Only 20% of men develop FMS. It is much more common in women. By the way, you need to allow at least two weeks or longer for the Savella to
take effect. In the end, it may not be the right medication for you and something else may have to tried. It can take time and tinkering to find the right medication and doseage that works for you. The other two options are Cymbalata and Lyrica. Incidentally, OTC medication does not work for the type of pain associated with FMS. Only certain classes of prescribed medications are effective.

I would go back to your doctor and ask for sleep medication which they should have prescribed in the first place. If you are unhappy with your current physician you can go online to the National Fibromyalgia Association website and see a listing of fibro-friendly doctors in your area. Or you can call your local hospital physician referral service and ask them for a recommendation to a rheumotologist that has an interest in FMS. You might want to consider a pain management specialist as well.

I would not take Tylenol PM or anything else without checking with your pharmacist first. Take care.

 

Noca - October 26

Welcome to the board POLO! I too am a guy and suffer with FMS.

 

polo - October 26

can i just take tylenol pm??? not amitriptyline...
doctor asked how do i sleep at nite- just said i sleep like a rock so maybe thats y she did not prescribe.

thx for your quick reply fantod and noca!

 

Fantod - October 26

Polo - You will have to ask your pharmacist if you can mix Savella and Tylenol PM. You may think that you sleep like a rock when in fact you do not. I rest my case on the fact that you are asking about Tylenol PM.

If you want to try something more natural, Calms Forte or Melatonin might be good choices. You can find either of them at the Vitamin Shoppe or any decent health food store. Be sure that you understand how to use them or any risks associated with taking them. Take care.

 

Noca - October 26

Tylenol PM just has Acetaminophen(Tylenol) and Diphenhydramine(Benadryl) in it. Diphenhydramine is an antihistamine and tolerance to its sedating effects builds rapidly in most people so its not a very good sleep aid to use every night.

 

axxie - October 27

Welcome Polo, Go back to your doctor, no Tylenol PM, it works at best on only 30% of the population. If you happen to be stuck with no sleeping aid, fine for a few days, if you're stuck you can even try benadryl. But I wouldn't count on those for any restorative sleep.

Here's some info on fibro and it's treatment, it pays for you to know everything about your illness and how your body reacts.

Don't get discourage, you learn pretty quickly as to what works and what doen't.

Fibromyalgia Treatments

While a lot of fibromyalgia treatments are available, you'll likely need to experiment with different options before you find what works best for you.

Fibromyalgia treatments include:

Prescription drugs
Complementary/alternative treatments, including massage and physical therapy, chiropractic, and acupuncture

Vitamins and supplements
Moderate exercise, but only if done correctly

Lifestyle changes, including diet, stress management.

Every case of fibromyalgia is different, and no treatment works for everyone.

You'll probably need to work closely with your doctor to custom tailor a treatment regimen that helps you become more functional. Many people benefit from a multidisciplinary approach, which involves several healthcare providers.

Prognosis for People With Fibromyalgia, well it's a chronic condition. While some people do experience long remissions, no one who's had fibromyalgia can truly say they don't have it any more.

As for the progression of the illness, it's hard to say whether your symptoms will get better or worse with time. Because fibromyalgia isn't degenerative, its course isn't clearly established like it is for many diseases.

Some experts say about a third of us will get worse, a third will improve significantly, and the remaining third will stay about the same.

Some studies have linked early diagnosis and treatment to better long-term outcomes, but other than this it's unclear what role treatment plays in the progression, or lack thereof, of fibromyalgia.

Fibromyalgia & Overlapping Conditions

As if all this weren't enough, several other conditions frequently go along with fibromyalgia.

Researchers aren't sure whether one condition leads to another or whether they have related underlying causes. Becoming familiar with the symptoms of these disorders can help you determine whether you have more than one.

Overlapping conditions are:

Chronic fatigue syndrome
Irritable bowel syndrome
Temporomandibular joint syndrome (TMJ)
Multiple chemical sensitivity
Myofascial pain syndrome
Restless leg syndrome
Costochondritis (chest pain)

History of Fibromyalgia

Doctors coined the term fibromyalgia (fibro –- meaning fibrous tissue, my -– meaning muscle, and algia -– meaning pain) in 1976, but it wasn’t until 1990 that the American College of Rheumatology developed diagnostic criteria. While muscle pain is the primary symptom, research found that nothing is wrong with the muscles themselves. For a time, researchers thought it could be an autoimmune disease, such as lupus or rheumatoid arthritis. Now it’s widely believed in the medical community that a malfunction of the central nervous system (called central sensitization) causes fibromyalgia, leading to new research into treatments and new hope that fibromyalgia will be not only more treatable, but perhaps even curable.

To date, three drugs -- Lyrica (pregabalin), Cymbalta (duloxetine), and Savella (milnacipran) are FDA approved for treating fibromyalgia, but other drug trials are in the works.

Many of us, have tried one of those, they help but you still need to multi drugs to help you feel better.

As for amitriptyline, its the usual drug they start off patients with. The world of physician recommend certain drugs to start off with, and amitriptline is the first line of defence.

As you see your doctor more often the bigger drugs come into light and that's when the tweaking comes into play.

Some you will develop what we call, a fast buz and then the drug does nothing for you. Best that you keep a notebook, write in your notebook what drugs you were given, dosage and how you reacted to it. This notebook you will carry with you everytime you will see the doctor. As you gain more knowledge and read up on the board with questions and answers that we have, you will find our experience on any given drugs invaluable insight.

Think of youself as the guinea pig on meds.

Welcome and please don't be discourage, where all here to help you....

 

polo - October 27

wow guys - thx for all the feedback
i did use tylenol pm last night and feel a lil better but def after reading your posts- think amitriptlyine can't hurt. i'm on week 2 of savella and hope it kicks in more in regards to stiffness/pain

i have defeated everything i set my mind to...BUT THIS FIBRO HAS DEFEATED ME.

I just want my life back

 

Fantod - October 27

Polo - You are not alone in your sentiment about having your life back. We'd all like to resume our normal routines. Hopefully the Savella will kick in soon and you'll start to feel some relief. Make sure that you are properly hydrated with water to get the medication moving properly through your system.

I'm glad that you have joined us. Please feel free to ask more questions, vent or participate in any ongoing discussions. Take care.

 

INPAINDAILYJC - October 27

Polo,

I wish you better luck than I had with the Savella. I was on it for the 2 week trial pack and saw 0 improvement in pain. I actually began to get very dizzy and almost fainted a few times. I definitely got off of it.
As I said, I hope you have better luck.

I have problems sleeping quite often too. I have tried Melatonin (herbal), tylenol PM, Xanax, Ativan and Ambien. Sometimes NOTHING helps.

Hang in there until you find something that helps :)

 

axxie - October 27

Polo,

Savella does work, it just takes a longer time to kick in, it usually a 6 weeks, before you can really see a difference in your pain. amitritilyne the first line of defence helps with sleeping, as soon as you start sleeping and getting restorative sleep, you will see a difference. Just remember it doesn't happen overnight.

As for I want my old life back, we all do. But this doesn't mean that you won't be able to feel better, that I'm sure you will, but it might take more time than you think.

Good luck, and continue to post.

 

polo - October 28

axxie-
hope u is right!
last 2 nights i have taken tylenol pm and as usual the flexeril and man i feel like i'm dreaming the whole time -geez

think amitriptyline might be better as i am concerned taskin painkiller with another aspirin sleep pill

 

axxie - October 28

Polo, please just give it a chance, as with any medicine, side effects are possible with amitriptyline hydrochloride (Elavil®). However, not everyone who takes the drug will experience side effects. In fact, most people tolerate it well. If people do develop amitriptyline side effects, in many cases, they are minor, meaning they require no treatment or are easily treated by you or your healthcare provider.

amitriptyline side effects include but are not limited to:

•Dizziness or lightheadedness
•Drowsiness
•Confusion
•Constipation
•Difficulty urinating
•Dry mouth
•Hair loss (see Amitriptyline and Hair Loss)
•Weight gain or weight loss (see Amitriptyline and Weight Gain)
•Erectile dysfunction (ED or impotence) or changes in libido (sex drive) (see Amitriptyline Sexual Side Effects for more information)
•Changes in blood sugar levels
•Increased sweating.

Any of those, if it just minor, then just mention it to your doctor, but if these become a real problem, then stop it and phone to see your doctor pronto.

As for the tylenol PM, let it go, it's going to take a few days for your body to get rid of it, then amitriptyline will take over.

If your doctor gave it to you, it's because you can take it. Why don't you stop this tylenol pm and try it and come back in a week or two and let us know how you feel.

 

polo - October 29

axxie-

what mg should i request??

and my other huge problem with fibro is my trigger points in neck/shoulder?

nothin gets rid of 'em/ except when i use my 'ineed massager' from brookstone
any ideas or suggestions?? do epidural shots help?

thx as always everyone/ have a great halloween weekend!!!

 

axxie - October 29

Polo

Fibro is just another way, that your body is telling you to treat it better and to take care what you do, what you eat, etc. etc.

Think of your body as a temple, if it's not hurting then you have achieved a life with no pain.

You will need to experienced many drugs, many doctors, many massages, and many of everything, until you find what works for you. It's by posting questions and reading the comments, that you learn. I like to come on this forum, because no matter what, you always get someone to will answer your post and there's always someone who will give you a pat on the back, when you are feeling blue. You will always be welcome and you will always be respected. It's my way to make peace with my bodies, and that I am not alone, that we are struggling together, just a different times.

As for massage, my dear friend, I prefer, the water massage, heat massage and the California massage. Water massage is lying on your stomach on a massage table and water falls over you like rain, and the masseuse massages your body. It's relaxing, and I can really melt. You won't find this everywhere.

The other that is nice to try is the California massage, it's gentle and you won't feel like a mac truck drove over your body.

Trigger points, neck/shoulder, needs machine, massage machine like the one you have works, whatever works, sometimes going swimming, others say a long hot shower might do the trick, there's always creams and gels that could help you, some prefer the chiro or physio.

Epidural works, but not all the time, so I'm not sure if it's because they don't give you enough of the stuff or that your body isn't responding because you have such a bad flare up. Sometimes I can just take my Ralivia (aka tramadol) a 24 hours release tablet, I am up to two a day, beyond the two, it's just seem to heighten my pain. I'm so use to the pill that I can normally work and it won't even bother me.

FMS you constantly tweak your medication for optimal free of pain.

I suggest you read what other people post and comment on, you will get answers and new things to try.

There's a few guy's on the website and I always value their insight, because I really don't know how it affect men. I understand we are all made with skin and bones, muscles and tendons etc etc. but men in general don't feel as much pain like a women does. It's albout muscles etc.

The one thing I would tell you to do, without fault is: drink water, lots of it, at least 6 to 10 glasses of water, this helps, flushes out the toxins in your body. Men in general don't drink lots of water, they actually drink far less water then women. Men have more water weight then women do, but women will complain that they feel bloated and think it has something to do with water, it's a true fact tht if you feel bloated you are retaining, and that's a call there's someothing else going on. I keep telling women, drink the water even when you feel bloated, it will make you loose the toxins.

You must take a good quality vitamin and with that you have to take your glusomine and some fish oil that helps to relieve brain fog.

Stay away from sandwich meats, and stay away from the BBQ or anything spicies. Stay away from potatoes and stay away from anything refined, flour or sugar.

Do eat good meals with plenty of vegetables and less meat. A beer is ok, but not if you drink several you will feel the pain the next day.

Some find relief smoking a joint, if you go to the top of the pages on the right hand side and click on Fibromyalgia Drugs, some people talk about it.

You have to excersize moderately, stretching helps so does other types of excersize. It's better that you move, even if it means just talking a walk outside and playing outside with your kids, anything to keep the body moving. If you sit too long you tend to hurt more. If you are not in shape it will take you awhile to get moving by everyone says that when they move they feel better, then just sleeping and sitting down.

We all tend to sometimes not do too much because are body really hurt.

 

polo - November 3

Polo,

I wish you better luck than I had with the Savella. I was on it for the 2 week trial pack and saw 0 improvement in pain. I actually began to get very dizzy and almost fainted a few times. I definitely got off of it.
As I said, I hope you have better luck.

I have problems sleeping quite often too. I have tried Melatonin (herbal), tylenol PM, Xanax, Ativan and Ambien. Sometimes NOTHING helps.

Hang in there until you find something that helps :)


I HAVE BEEN ON SAVELLA FOR 3 WEEKS AND COMPLETE DIZZY ALL DAMN DAY.. VERY OFF KILTER I FEEL
NOT TO MENTION ZERO IMPROVEMENT ON PAIN SCALE

SO, BACK TO PAXIL

 

Auvonto - November 3

my dr never prescribed any sleep aid for me either. when i was asked about how i sleep i said fine. but then i thought about it and i dont. its just that i have been sleeping the way i do for years so it didnt seem odd. i wake every night either to go to the bathroom or just wake for no reason what-so-ever. hum i dont know.

 

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