Here is a list I wrote for my Dr. & SSD attorney: Symptoms:
Chronic fatigue, anxiety disorder, depression, fibromyalgia, chronic myofacial pain syndrome, muscle cramps, spasms & twitching , all over body pain, pain in joints, neck, TMJ, shoulders, chest, heels of my feet , legs, swelling in ankles & hands, headaches, panic attacks and asthma, brain fog/memory problems, lack of concentration/focus, IBS, frequent urination, numbness in fingers, insomnia, hot flashes, vertigo/dizziness, loss of strength, skin tenderness, and constant pain
How has fibro affected your life?
It affects everyday, can't walk far or downstairs/upstairs well, tired all of the time, medication makes me feel dreadful. I went from being a salon owner/operator to not working at all. I was bedridden for over 6 months and have been unemployed since Dec. 2004. I could not work a regular job now. I am not active anymore and the slightest things wear me out. The pain is very intense, I have to plan my activities very carefully and no longer have the freedom to be spontaneous. It has affected all of my relationships negatively because people just don't understand. I have to make sure I get enough rest and I can't handle working full time. Unable to do daily tasks that I want to and once did & unable to do them as effectively as previously did; always feeling tired and in pain; feel as though my illness has affected the lives of my family; guilt for not being able to do everything that I would like to do with my daughter and son. Hate always telling children I'm too tired to do that today. Guilt over family obligations not being met. I can no longer multi-task. The pain is intense and it burns and aches. It feels like I've been run over by a large truck. I don't have a life anymore. I stay in bed all the time and I only leave my home to go to the doctors, pick up some groceries and attend a few of my kids’ activities. Severely depressed because of lack of energy and pain.
What makes you feel better?
Rest, but even that hurts at times, pain pills, muscle relaxers, anti-depressants, anti-anxiety medication, deep tissue massage, hot baths and heating pads will provide some relief for the pain; when the pain gets real bad I find I sleep a LOT. But nothing yet has really helped
What makes symptoms worse?
physical and mental stress, weather changes: damp, cold, and rainy weather; winter months being the hardest, very hot and humid weather; exercise, sitting for long periods, driving, certain foods, alcohol, a bad night's sleep or little sleep seems to be worse.
Fibromyalgia will not shorten life span. A good support system with Dr.'s, family, friends does help!