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petcat - May 22

7 years ago I had a horrible attack of something. I had trigeminal neuralgia, couldn't stand being in the heat, had tingling all over, especially right side, lots of stiffness in legs, right leg go so weak I could barely walk, extreme fatigue. MS Specialist was convienced it was MS but all tests were negative. LP was clear, EVP's and several others. I have had repeat MRI's several times and they are all still clear. This lasted for almost a year.
I also have periods of time when I use my arms or legs to much that I get this almost unbearable ache. It doesn't feel like a muscle ache but something deeper. It is horrible.
Since that first attack, I had a pretty big one last year with 2 weeks of extreme fatigue, vertigo, headache and tingling on entire right side including face. I am also having another one now with the tingling, and more pain than usual. I always have lots of right eyelid twitching when I am having these attacks.
I have been visiting a new neuro who says it is not MS but some form of Fibro. I would really like your opinions from those of you diagnosed with Fibro as to your thoughts on these symptoms.

 

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