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Pain not bad
4 Replies
mommaj - July 25

Has anyone been diagnosed with Fibromyalgia who did not necessarily have bad pain but had all the other symptoms. Including the most recent, my forearms itch like crazy but scratching does not help not does lotions, creams, etc. The only thing that will ease it is to put ice on it. Like most of the other symptoms it gets worse at night when I lay down.


nikita3 - July 26

Hi mommaj,

I have fibromyalgia and for me fatigue is the hardest symptom to deal with rather than the pain. I do get muscle pains and they increase when I'm tired, but overall I experience the other symptoms more. I also seem to be itchy a lot of the time, especially on my legs. I'm usually scratching them when I am in bed at night or in bed in the morning and I haven't worked out why that is: whether it is just Fibromyalgia or dry skin or if it's an allergy to something. I really should keep a diary of when it happens and what I have eaten that night and the night before because sometimes I have it for quite a while and then it goes away and then it comes back.


mommaj - July 26

Thanks for replying Nikita3. I have not officially been diagnosed with Fibro. I have been dealing with my GP for about 6 months now and he insists that my problems are thyroid related. I've had Hypothyroidism for over 20 years and it's always been under control with Synthroid. But for the last 6 months the numbers have been all over the place and he's now changed my Synthroid dosage for the 4th time along with trying me on a second anti-depressant for the pain, not sleeping, anxiety, itching, mood swings, etc. Next week he's going to test me for Hashimoto's Thyroid disease. Like you, the fatigue/exhaustion is probably my biggest problem. I have to do a little then rest a little throughout the day to make it. Alot of these symtoms are the same for Hypothyroidism, Fibromyalgia and Chronic Fatigue Syndrome so I don't know what to do. Is it possible that I do have other problems like Fibro or CFS? I asked the question about mild pain because I don't know whether to see a rheumatoligist for possible Fibro since my pain is not that great but the other symtoms are. I hate to go against my GP but I'm just about at my wits end here and I'm tired of suffering. I drag through the day, go home and lay down. I have given up all hobbies and other interests because I just can't do it anymore. I'm now thinking of quitting my job because I just feel like I need more rest. I really hate to because I need the money.

Do you have any advice as someone is dealing with Fibromyalgia? i don't know what to do.


January - July 29

Hi mommaj. Have you googled whatever drugs you are on to check for side effects? I would not trust the "official" drug website. Check something like drugs (dot) com, where they are not affiliated with the pharmaceutical manufacturer. Scroll down and read everything. Some of the symptoms you mentioned above are listed as side effects for certain antidepressants. I would not be surprised if itching was a side effect of some drugs.

Also, be aware that if you change from one drug to another, you should slowly taper down the first drug, and slowly taper up the second. Many people get withdrawal symptoms when they stop taking antidepressants, or even if they have been taking them for a while and their brains get too acclimated to using the drug. So check the side effects and also the symptoms of withdrawal. Some of these drugs can really cause physical problems after you've been taking them a while. Unfortunately, many doctors rely on the drug reps to educate them. The drug reps don't always tell them about the negative side effects or the bad things that can happen -- but you can find this information yourself on the internet. So check it out and good luck. Hope you feel better.

PS You said up front that you don't have much pain, and usually pain is what brings the diagnosis of fibromyalgia. Sounds like you need some really good diagnostic testing. Perhaps the only thing wrong is hypothyroid - that can make you feel very fatigued. If you are taking antidepressants, sometimes those drugs can cause you to feel pain, and they can also make you very apathetic and tired! You say you have given up hobbies, etc. I was put on Cymbalta for fibromyalgia pain - it did not help my pain, but it made me so tired I could barely get out of bed! It also increased my blood sugar, made me nauseous, and gave me insomnia and night sweats. And the withdrawals were much worse. It took a long time to get that drug out of my system. You don't say what you are taking though - so I'd suggest you check your drug out and read everything you can on it.


mommaj - July 30

Thanks January for your response. I have been on Viibryd for a week now and before that I took Cymbalta for two weeks. Both caused worse insomnia than I already had, extreme sweating and neither have helped with the pain or fatigue. I realize that with alot of drugs some side effects disappear after a few days so I'm trying to be patient. I go back the end of the week for more tests. I had problems with the itching forearms years ago also but it hasn't bothered me for a while until recently. I never saw a doctor for it and the nurse where I worked at the time told me she thought it was nerve related so I just suffered through it. I was in a stressful job at the time so it made sense. It would flare up for a few days and then might not bother me for a few months. I've also had the same ithcing on my shoulders but not nearly as bad as my arms. This is not your average dry skin itch but rather a deep deep itch that scratching doesn't help nor does any kind of lotion or creme that I've tried....the ice is the only way to sooth it. The reason I asked about the Fibro is because some of what I've read about fibro sufferers say they have this same kind of itching. In addition to the thyroid testing, my GP has also tested me for vitamin defiencies, arthritis panel and hormone imbalance. The last throid panel was barely out of the normal range so he couldn't understand why I'm not feeling better and that's why he's trying the antidepressants. I'm not depressed but he's just trying to get me a calmer state so I can sleep better. The pain gets worse at night. My legs and arms ache and my husband says that I'm constantly moving and moaning all night. So is it Restless Leg Syndrome? I don't know, I just know I'm miserable and am desperately searching for answers. Guess I'll wait and see what the next tests say.



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