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4 Replies
Andrea - February 2

I was Diagnosed with Lupus SLE, all I can say is I knew it and I want to say I told you so to the doctors who didn't believe me when I said I was sick all the time. Sorry just had to get that out, still have fibro but my SLE is more of what is causing my pain, thanks for listening to me vent. Jean thanks for being so helpful...

 

JJ - January 31

How was this missed before? Can't lupus be detected through blood tests? It has been supposedly "ruled out" for me based on bloodwork.

 

Andrea - February 1

My doctor said it's a catch 22 for years it could be negative, but then one day it could reach it's peek and come back positive, I have a knee biopsy scheduled soon, and this will tell me for sure, he isn't a blood test or nothing kind of guy I had all the symptoms anyway, and my hands proved it to him. Not to say that everyone one with certain kind of hands has lupus, but you know what I mean, it wasn't really missed it was just being stubborn. At least I know...I'm still flip flopping through emotions and am extremely angry don't get me wrong, thought I had support here maybe I was wrong...dunno maybe it's just my moods. :shrugs: a girls entitled to a bad day.

 

asil - February 2

Why did your hands prove it to your Dr?

 

andrea - February 2

I'm glad someone cared enough to listen,it took me 4yrs.I also wanted to say I told you so,but it would not have helped the pain.

 

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