New to the forum?

Sign Up Here!


Already a member?
Please login below.





Forgot your password?
Need Help?  
no one understands
4 Replies
Jen1982 - February 17

I am 26 years old and have had pain since i was very young. my mom tells me that even when i was about 3 years old she would stay up and rub my legs because i complained about the pain. over the last 5 or 6 years my pain has been getting increasingly worse. the last year especially has been horrible. i decided to go back to school through correspondence and only had to physically go into the school for 2 months.my first month i missed quite a few days and now i'm in my last month and have only made it to 2 days since i started the beginning of feb. ppl are so mean about it, like i'm just trying to not do my work or that i must be missing intentionally. i had recently started a new job after not working for 6 months and made it to 3 out of 5 days a week...maybe. if i was lucky. i have not been diagnosed with fibromyalgia yet, but it is something the dr. is thinking. i'm just curioius as to if other ppl have the feeling that no one believes them....i find it very depressing and am having a hard time staying sane when everyone acts as if i'm just faking. some ppl just don't understand or have any compassion. tell me how you can get through a day withough ppl making you feel guilty.

 

TiredMom - February 17

Hi Jen1982, I felt exactly like you, going to work when I could, and my boss thought I was faking it. Further from the truth, I could not even pop my head off the bed. I was recently diagnose with FMS, trigger points and Chronic Fatigue symdrome. The doctor put me on Cymbalta 60mg and gave me desyrel to sleep at night. I still cannot work and my mind is somewhat still off in lala land (fibrofog). I have periods of good days (they don't last long) and then I'm off again sleeping everywhere and having pin and needles in my hands and legs. As for people I actually don't care for them because they think it's all in your head and that you should be able to just shake yourself off and do the things you did before. I feel for you, I'm in the same boat. Have you been put on medication? My gp diagnose me with test the neuro did and said I had FMS etc.
She told me, most people cannot work, because it's actually very hard for people to manage their illness and you don't know from the first day how you are going to feel. I still have to see a FM doctor or a rheumy, but I have to say my gp is great and see's me whenever I want.

 

13tracy13 - February 18

Getting a diagnosis is your first step. Once you are diagnosised your school should have a disabilities office which will work with you. Also many states allow those with fibro and with dr support, a disability parking tag which may be of some help when having to go to school. And of coarse, with a diagnosis comes treatment, which hopefully will help with some of your symptoms.

 

Clay2Fame - February 24

I've felt what you are describing on more than one occasion - that people don't believe me. Because we look "normal" I often think those who don't suffer from fibro will never fully understand how bad it feels on the inside (and I can accept that to some degree, unless they felt it first-hand how would they?) but even with that being said I still would like to be acknowledged/validated if that makes sense. You know the truth and you know how much you can or can't handle in any given day. I used to push myself more but I know if I do that now it takes forever to recover... so, I simply do what I can do. Trust what your body is telling you. Our pain and fatigue and all that goes along with fibro is very real. Best of luck to everyone here.

 

TRACIEDC74 - March 30

I AGREE WITH THE OTHER TRACIE, I MEAN TRACY ;)
YOU NEED TO GET A DIAGNOSIS FIRST. AND ONCE PEOPLE SEE THAT YOU STILL HAVE ALL THESE SYMPTOMS- I MEAN COME ON, YOU CANT FAKE ANYTHING FOR THAT LONG! THEY WILL BELIEVE YOU AND IF THEY DONT, SO WHAT! "YOU" ARE THE ONLY PERSON "YOU" HAVE TO BE WITH 24/7. ID JUST TELL THEM ALL WHERE THEY CAN GO. (DID ANYONE MENTION THAT YOU CAN LEARN TO USE ANGER OUTBURST'S TO YOUR ADVANTAGE?) JUST KIDDING!
KNOW THAT YOU ARE NOT ALONE AND IF YOU EVER NEED SUPPORT OR TO TALK, WE ARE HERE FOR YOU.
GOD BLESS!
TRACIE

 

Message:


You must log in to reply.

Are you New to the forum? Sign Up Here! Already a member? Please login below.

Forgot your password?
Need Help?
Ask a Question