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NO CURE FOR FIBROMYALGIA BUT DON'T GIVE UP HOPE
89 Replies
Debra - July 22

Hi:Carrie Thank you so much for your reply.I sorry to hear that your not well.The lady that you have mentioned might be in remission.I also heard that with some of the lucky ones that there fibromyalgia went away for a few years but,then it came back.I have had it for 4 years and mine is everyday.Do you have any burning pain or does your skin sting like you have a bad sunburn?.I hope you feel better soon.Yours Truly Debra...P.S. Watch out for the snakes out here.There are alot of good honest people and a few bad angry ones out here.

 

Debra - July 22

By the way this tanner person is one of the very angry people out here.She is saying that if you read the 3 books that she has mentioned you will have no more fibromyalgia.She also contradicts many things that she states.I have said nothing about her at all and then she reads my post and says that im missleading.I have never said to anyone to buy books,creams or anything that will not help them.I just tell people out here to keep the faith and never give up hope.I myself have read hundreds of books on the topic of Fibromyalgia,Chronic Pain and so on...And no of them have cured my fibro.But what the books have taught me is to understand my illness and to be able to manage my pain better.The more you learn about your illness it can help you ecept it and learn how to live with it the best that you can.Having a good Doctor is number one.Having a close friend or a loved one to talk to can help you as well.No loved one will ever truly understand your illness but,that does not mean that they dont want to.Unless they have fibromyalgia themselves then they could never truly understand the pain and agony that your living with each day.Try to enjoy something everyday that is special to you.It could be anything like going for a walk on a clear warm sunny day or read that book you like so much or make a stranger smile by saying some thing nice to them.Sometimes when you do something nice for someone else it makes you feel so good inside and it really does get your mind off of your pain.Even if it is only for a few minutes its well worth it.I really do wish you all the best from the bottom of my heart.Yours Truly Debra.

 

Debra - July 22

Hi:Chris I'm sorry to hear that your not feeling well.Please let me know how your tests went.Good Luck and take good care of yourself. Yours Truly Debra.......

 

Anne Hillebrand - July 24

To Debra -
There is no scam at FibroFix. It's an all free site. I developed this treatment method for my own extremely severe Fibromyalgia. I"ve been using it for almost 6 years. I host the site. I answer the email and phone calls from all over. There are hundreds and hundreds of us using it now. It's not a cure. Just daily treatment that keeps us pain free, strong, flexible, clever and happy again. If you have FMS and are not getting relief from your symptoms, it will not grow hair on your palm to read all of the web site. I do the best job I can to understand what is going on and to explain what we are doing about it. We ask nothing in return. It's just here because we found something that works, better than anything else we have heard of still, and we are sharing it.
FibroFix is not the name of a product. It's what the people using this method started calling it. So I got a domain name that could be found as easily as possible. We do this out of our own pockets, so don't have a budget to pay to keep the site name at the top of the charts.

I don't care what you say about the site or me or the treatment method, as long as it is the truth. And the truth is, you are telling people to keep suffering. We are telling them how to get their lives back. And until they all get help, we go broke or we drop dead trying, I'll keep telling it.

Anne Hillebrand
Orlando, FL

Fibromyalgia's Medical Maverick
www.FibroFix.com
an
[email protected]


 

Ashley - July 25

Be strong everyone! Every bit of advice is worth trying out, it's not necessary to deminish one's cure. Arguing just makes us sick, so lets all get along!

The fact is, no cure is guaranteed. Some people take meds, some use exercise and diet, use mind techniques. Whatever works for and indvidual is good. We need to get along and support eachother, impower eachother, not argue with eachother.

I hope you all are well today :) Take care and use whatever cure works for you!

 

Debra - July 25

Hi:Anne I'm not saying what you think.I'm just saying to you that your not a Doctor and you should not be telling people to take loads and loads of cough med's and extreme amounts of tums.it has been proven to have long term side effects.They are under the title of drugs and with long term use they can cause damage just like another drug.we all out here are looking for some form of pain management But,it is not up to you to play the roll of a Doctor.You push your web site constantly and the more people that sign in the more it boosts your ego.You might think that your helping people and it makes you feel very powerful but,in fact your really hurting them.My Doctor is one of the top Chronic pain Doctors in the world and i have introduced him to your web site.He and other Doctors feel that your site should be banned and that you should not be pushing people that are in extreme pain to follow your advice.The Doctors say that your intentions may be good and that you might really want to help people but you should leave that up to a health care professional.Please understand that im only trying to look out for the real honest people out here and that they all should seek medical attention and proper care.We must get along out here and watch out for one another.I wish you all the very best of health and happiness.Debra.....

 

Anne Hillebrand - July 25

Debra - You can use other means to correct your pH imbalance. I tell how I do it. Am now changing over to high pH drinking water (just mixing it up at home) instead of the TUMS. You say you have a great pain management doctor. Are you taking medication for pain? Are you taking medication for sleep? Meds for headache? Are they narcotics? Opiates?
If so, those meds just mask the problem. Most are addictive. And expensive. Some can cause other problems. If you check your saliva pH and find that you are highly acid, you can accomplish the same thing we are doing by eating very alkali foods. A lot of people "graduate out" of what we are doing because they get their bodies up and working again. Because they understand the malfunction that is causing the symptoms, they adjust their diet and lifestyles to reverse it. I have great respect for pain management doctors, but I don't want to take those kind of meds when less drastic things work.




 

Debra - July 25

Hi:Ashley I agree that we should all get along and we all do.Your not understanding my point that anne is not a doctor and what she is doing could be very dangerous to some people out here.We have to help one another, not play Doctor.You had said that one should not demish one's cures.These are only treatments none of them are cures.We all have great hope that one day there will be a cure.It will not be fibrofix.Ashley you seem like a nice person and trust me when i say that i dont want to argue with anne but the point needs to be heard .For the safety of all people out here struggling and fighting to make it through the day from this horrible fibromyalgia.Please note as well if Anne is so honest why does she use other peoples names at times when she comes out here.Her real name is Anne not all the other names that she uses.My real name is Debra and it always will be.Please understand that i am a really caring person and im only out here to talk to honest people who just need to talk and to try to help in any way i can.I will never tell you to try drugs or any treatments of any kind.I'm not a Doctor i'm a person living with fibromyalgia.You take good care and please note that i'm not out here for any wrong doing.Yours Truly Debra.........

 

Debra - July 25

Anne:Please i dont want to go back and forth with you.Point.....Many people on your site took tons and tons of tums and cough meds you were telling them to do so.Facts.....No i dont use any drugs to manage my pain at all and it is very severe.I have tried in the past a few times but they made me more ill.Yes the blood of all people that have fibromyalgia is very very accidic.Yes the right PH Balanced diet and water is the most important way to go.The best thing ever to do for your fibromyalgia is to use a medical grade sauna,drink lots of propper PH balanced water,only do light fibromyalgia stretches to keep your limbs intact,or if your pain is not severe and your doctor gives you the o.k.use a mini trampoline 5 minutes daily.And eat lots of apples to keep you regular daily.All are safe and natural treatments that help the body detoxify and keep it stronger.ONLY WITH YOUR DOCTORS CONSENT.Anne every persons body cemistry is different and with that being said the treatment that you have pushed many to do failed and some of them became worse.I know because a few have told me so.One girl the age of 17 followed your advice and 3 days later ended up in the emergency with severe stomach pain and hommarge.So please i know that you might be trying to help others but you can not push all people to trust your word because if has worked for you.What about the ones that got hurt by using your method.Please no more replys to me.I just wat to talk to the right people..........Thank you.

 

Debra - July 25

Anne: One more thing.Why are you even asking me if i use any med's.Even if i did,and i dont,i'm not the one with the web site pushing people to take cough med's that are in fact a drug.YOUR NOT A DOCTOR YOU HAVE NO RIGHT TO MISSLEAD THEM.I dont have any problems with people that take any kind of drug for the management of their pain under the guidence of their doctor.People have the right to choose the treatment of their choice whether it be drugs or not.But when you keep pushing your web site and these poor people follow your advice and then they become sick ,then i have a problem with that.And why do i have such a problem with that, it's because i care about each and every person out here.These people are great and over the last several months i have grown to know a lot about who they really are and how much they have gone through and are still going through.I care enough to warn them of missleading information that could possibly hurt their health.I dont want anything from anyone.I just want all to be healthy one day.I LOVE PEOPLE AND LOVE TO LISTEN.I HAVE AN OPEN MIND AND A BIG HEART AND THAT IS ALL..................Debra....

 

Debra - July 25

Anne: You did it again.I have to watch out for everyone out here that you speak with.Now your telling them to use Camphor Spirits.Do you know how many people all over the world have died just by inhaling the product.WOMEN PLEASE DO YOUR RESEARCH BEFORE YOU TELL PEOPLE WHAT TO TAKE.CAMPHOR SPIRIT IS HIGHLY TOXIC...GOD....PLEASE WOMEN NO MORE..YOU SPEND ALL OF YOU DAYS AND NIGHTS TELLING PEOPLE WHAT TO TAKE AND YOUR PUTTING THEIR LIVES AT RISK.THANK GOD I JUST READ SOME OF YOUR REPLYS TO SOME OF THE POSTS OUT HERE.AND IT A GOD SEND THAT IM UP RIGHT NOW IN PAIN.BECAUSE OF WHAT I JUST HAVE READ.GO TAKE CARE OF YOUR FIBRO FIX WEB SITE AND LEAVE THIS WEB SITE AND THE PEOPLE ON IT ALONE>>>>>>PLEASE PLEASE AND PLEASE.........

 

Debra - July 26

A SPECIAL THANKS TO CARRIE....

 

janie - August 1

debra are YOU a doctor? you sure have some OPINIONS on what other people should do & not do. I agree with the lady who said it was destructive to tell people to "learn to live with this" to hell with that! have you read any of sarno's books??? the method has NOTHING to do with creams, tums, pills, guai etc... all it requires is that you step outside of your "poor me" box & evaluate what psychological aspects may be making you sick. Of course that would mean that you were no longer a victim, depending on how invested you are in that, it could be a hard change for you. you sure spend a lot of time posting on here, like a full time job. if you channeled all that energy into helping yourself instead of perpetuating the wallowing & woundology you could actually get well. Of course, that as everything else.... is up to YOU! I'm not being "mean" by debating your dinosaur beliefs I'm trying to help those out there who want to get WELL & for good!

 

Debra - August 2

Janie,Tanner Anne: Who ever you are.I think that your one person.A very crazy one.I'm not telling people out here what to do.I'm telling them to watch out for people like you who do tell them what to do.What to read and so on.Who are you and why do you change you name all the time.And about me coming out here all the time,i come on here once a day to listen to people like you vent there anger.I dont come out here to tell people my problems.I like to help others with theirs.People like you are just looking to cause problems.And i and other people out here dont need this shit that you keep spitting out.You say that i'm out here all the time because i have many posts,well then you must live on this thing because you have read all of my posts.I dont feel sorry for my self i feel sorry for you.Life must be very hard for you because you work so hard trying to prove that what i'm saying on my post here is so bad.You are not cured,So YOU CAN TAKE YOUR BOOKS AND YOUR LIES AND STICK THEM WERE THE SUN DONT SHINE.NOW GET LOST AND LEAVE ME AND OTHERS ALONE.FOR GOOD.I WILL NOT RESPOND TO YOUR BS ANYMORE.

 

Debra - August 2

Janie,Tanner,Anne whoever.Again learn to read.I tell people to learn how to cope the best way that they can. Coping could mean alot of things and different treatments that vary from person to person.That is why i dont tell them like you do to read this or that or take this or that.I'm not a doctor and nor are you.You are just a person that is trying to make me look bad for taking so much of my time to listen to people out here that need someone to talk to.So youre stating that your trying to help people get well.Then i guess by the way you speak that you are cured.Or is it that you have just found a way TO COPE AND TO MANAGE YOUR PAIN.Well if you are cured then i shall never say one one word.And then you should share the goodness with all out here that are suffering.You really are not that smart.So stop trying to piss me off and let me and the others out hear have some peace and quiet.THANK YOU................

 

Lynne - August 2

I really dislike to get into the middle of this, I also have a web site that I have mentioned on here several times. I've gathered information from many many sites, books, my own doctors and other resourses. I do not push any kinds of treatments nor do I claim to have a cure, I explain to people the symptoms, what things may trigger FMS and I also include traditional as well as alternative methods of dealing with FMS. I offers links to many sites with information to various resourses from disability to current research. On all my pages I explain that before you attempt to alter your treatment or treat yourself please ALWAYS consult your medical professional. Each person is different, each person may have several overlapping conditions along with their FMS.

 

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