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No classic tender points
7 Replies
duckbill - October 14

As I am currently rather isolated, living on a military base overseas, I would appreciate if you would take a guess as to whether this still fits in with a fibromyalgia diagnosis.
Two of our med staff think this may be the case.

- I am male, 46 years of age.
- Poor health as child (rheumatic fever/glandular fever (mother is not sure???), hole in heart, urinary tract infections)
- I have always suffered from joint pain, with two to four flare ups per year as adult.
- I still get frequent urinary tract infections (bacteriologic)
- Pain starts in two certain toes, fingers on both hands, spreads to affect arms and should as well as thighs)
- Pain is never associated with discolouration or swelling.
- All blood and x-ray testing has been negative.
- Apparently I do have the classic 18 tender points.

The whole matter turned nasty three months ago as I was prescribed non-steroid anti-inflammatory drug (first time ever) for an Achilles tendon problem I got while hill walking. I suddenly felt completely free of pain in the whole body. The best I have ever felt for the past twenty years. I stopped taking the medication as it upset my stomach. The pain in my body flared up to a hitherto unknown level. I started taking NSAID once again and the matter settled after two weeks. I stopped again, thinking the matter was settled and the pain returned even more than previously. This time I cannot get rid of the pain. Normal life has become impossible. Our medics have tried all sorts of drugs. The prescribed painkillers (name escapes me, but they were intended for severe pain) had no effect, they further tried acupuncture (which surprised me a little) with no effect. I am now taking anti-epileptic drugs – again with no or little effect.

I can localise the pain to the area where tendons attach to the bone. Touching such area, eg on the fingers, triggers immense pain in the lower arm. At times the pain affects the chest making breathing and walking difficult. In the past, my pain flare-ups lasted not longer than three to four weeks – it has now been two months.

Thanks for reading. Naturally, I do expect a diagnosis as a reply. It would, however, be helpful to hear your views.

Duckbill

 

carm - October 14

Not sure but it sure sounds different then FM (but FM acts differently to each person or so it seems sometimes) or maybe something and FM together. You may need an MRI at the most severe spots of your pain. Take advantage of the health care while you are in the military.

 

TERESA - October 14

Duckbill, NSAID's don't usually relieve the pain of FMS. The pain relief you are discribing is more comman in arthritis & or lupus. What kind of test have they ran on you? What is the name of the anti-epileptic you are on, & why were you put on it ? Where are you locatied overseas? I would be very interested in your answers!

 

duckbill - October 14

The drug is named Lyrica 75mg, the active substance being pregabalin. It is normally prescribed for damaged nerves and bedwetting (no, really). The NSAID is standard Diclofenac. I actually believe they are working in tandem as the pain is easing hour by hour (I have only be taking them for 36 hrs.

 

TERESA - October 14

Duckbill l also take Lycria. It is used for postherpatic neuralgia, diabetic neuropathy & now they are using it for the pain of FMS. The Lycria is working ( I think ), but it doesn't work for a lot of us, just read the drug forum. I've never heard of Diclofenac. Is it called something else? I am glad you found some relief from the combo.

 

TJS - October 15

duckbill, the pain you describe being triggered by touching other areas, sounds like myofacial pain syndrome, or as the doctor that diagnosed me called it trigger point syndrome. The facia covering our bodies gets tight to the point that you can touch the top of your head and it triggers a severe pain response in you leg. weird huh! but that is the way it is. I have both chronic myofacial syndrome and fibromyalgia, I can tell the difference because the cmps affects ussually only one muscle group at a time where the fibro flareups hurt with even pain like both shoulders, or both arms and legs more of a fullbody response.. for cmps you should see a physiatrist ( fizziatrist) they specialize in the myofacial, and for fibro see a rhumitologist.. hope this helps, and I hope you are not in harms way.

 

barbar - October 16

Duckbill, be careful of taking the NSAIDs as they can lead to stomach problems. My doctor has me take Prilosec to mitigate any negative effects of the NSAIDs.

 

deannamarie8fan - October 20

Hi...Have you had an EMG? You could possibly have nerve damage? It also sounds like you could possibly have bursitis/tendonitis. Good luck.

 

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