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Newly diagnosed with fibro
4 Replies
Jones - March 12

Hi, i've just been diagnosed by my gp as having fibromyalgia (last week). I've had an underactive thyroid for 10 yrs+ but recently completely "crashed"- 2 weeks ago - unable to get up energy to go to work (love my job) , feeling very down, chest and back pain, tingling in left arm and side of face and head, headaches. I suppose my question is, does this condition keep many people off work, should i just go back feeling like this and just get on with things? or if not how long does it take to get over this nasty fatigue? what can i do to overcome it?

 

Fantod - March 19

Hello - I am new to fibromyalgia as well. I was diagnosed about a month ago. This is a tough situation to be in. As it happens, one of my close friends has what could be characterized as a severe case of fibromyalgia. She continues to work, but frankly I don't know how she does it. My situation varies from day to day depending on sleep and how bad the other symptoms are on any given day. I use 30mg of Amitriptyline nightly to help with the sleep issues. There is no perfect science when it comes to dealing with this. I work in a profession that requires a minimum of 12 hours in day. I am not able to do that at this time. I don't mean to sound flip but you really have to make the best of a bad situation. I have good support from my family and friends which helps keep me motivated. Know your limits and also know when a "pity party" is really keeping you from life. I hope this answer helps you in some way.

 

JJ1 - March 19

Jones, If you are like me, your symptoms will wax and wane. If I am in the middle of a flare up, there is some consolation in knowing it is not going to last forever and usually doesn't last long at all. The amitriptyline has helped the severest of my pain and has lessened the frequency. I know stress brings on flares so I do what I can to avoid stress or just deal with stress (maybe this is the mind/body stuff people here talk about, just kind of learning to deal with it). I also believe my tolerance for pain has increased. I have an ongoing pain in my left hip/lower back that used to really annoy me. Now I actually have to stop and think if I still feel anything in my hip. It is still there if I think about it but I usually don't pay it any attention.

 

Iori - March 25

hi Jones. i know how depressing it is to call in sick for work. i feel real guilty & depressed about that too. some ppl do have to go on disablity but not everyone does. try not to put too much pressure & stress on yourself. if theres one thing i see in common with us all out here its how hard we all are on ourselves. try to get losts of rest & go easy.

 

Iinda - March 27

Hello Jones, only you can judge what you are up to doing. some of us work part time & split the days up to make it easier. It sounds like you are having a really rough time right now. Sorry you are missing time on a job you love, many people wish they loved their jobs. Do what you can to relax & get a lot of rest. Hope you are feeling a bit better. Linda.

 

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