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Newbie From Ca
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TiredTab38 - March 24

Hello Everyone. I just feel blessed to have found people that are going through this, I sometimes feel so alone. I was just diagnosed with FM a month ago, I have had the symptoms for the past year or two. I'm married and have one child, an 8 year old energetic son who has autism. My husband is very understanding and comforting. But, I do not think he fully understands what FM is and how I feel daily. He never complains that the house is dirty, or if I can't make dinner. It's all very new to him. I've sent him the link here to learn more about FM. I'm currently not on any medications for FM, my doctor wants to put me on Savella. Today, I'm feeling so scary dizzy and so foggy minded that I'm getting depressed. I feel very sad and all I want to do is cry over nothing... I just wish I'd get out of this funk. My house is a mess and I can't keep up, I usually have a spotless house. It's hard enough trying to keep up with my son who has autism, Now with FM it's really hard. Although my husband always tells me that I'm an awesome wife, I sometimes feel like I'm not. I can't clean like I used to and be a supermom. I feel like my much needed energy has been stolen from me. I'm tired of sleeping 8 hours straight and waking up so exhausted that I can almost not get out of bed. I cannot find anything to help my energy. I'm thinking of trying accupuncture, anyone here try it? Does it really help?

My sister was also diagnosed with FM a month before my diagnosis. I have her support, but we have so many different symptoms. I'm feeling today like I'm worthless... I'm so tired. So, tired of people like my mother in-law who just do not understand. She got angry today because I couldn't take her shopping. She once told me when I was first diagnosed "It's only muscle pain, You just have to deal with it". She is a self diagnoser and says that she has had it (FM) since she was a teen, and it turned into the Lupus that she has now. She also told my husband that FM is no big deal. Ha! Right... "No Big Deal". Sorry to ramble on... I really have nobody to talk to about this nor vent to. Thank you for reading this far! ;o) I just feel extreme sadness and I'm fed up with FM!

Tab

 

Fantod - March 24

Hey Tab - I feel your pain in so many different ways. I have had this syndrome for about 3 years and it presents different challenges every day. You are not alone when it comes to not being able to keep the house clean, cook or manage daily living in general. You have to learn to be grateful for anything that you are able to accomplish no matter how piddling. It extremely important to focus on that as opposed to everything you aren't or can no longer manage.

I break tasks down into more managable increments instead of trying to tackle things head on. Learning to respect your limits is also very important. If you can't get something done, accept it and move on. Tomorrow is another day and the world is just not going to end if the laundry isn't folded.

Your doctor is proposing using a drug that is new to the market here in the US. Most of us have been on any number of medication combinations. It takes time and tinkering to get the right combination for each individual. As I see it, you need help with restful sleep now and depression. You should be asking for help with both of these things. Amitriptyline is usually prescribed for sleep. Fibromyalgia (FMS)interrupts the deep sleep cycle. No matter how much sleep you get, it is not restful. In turn, your muscles can not heal from the day's activities which causes more pain. It is a vicious circle. I have used accupuncture for pain but it takes several sessions to be effective. It is also usually not a covered treatment on medical plans. Based on my personal experience, I vote for modern pharmacology. Cymbalata seems to be very effective in addressing both pain and depression issues that emanate from FMS. I use Cymbalta and it has been very helpful on both counts.

As for other people who do not live with FMS - try to ignore them. Your husband should speak to his mother about being more supportive and understanding. This is a very tough illness to handle. Your best defense is to be well educated on the subject. All of us have experienced criticism from family members at one time or another. The bottom line is that you must do what is best for you. Sounds selfish but it is acutally self preservation. If you are not able to do something, stand your ground. If you push yourself, the payback is just not worth it. You could spend days or weeks getting over the thing you did not want to do in the first place.

I hope that my comments are helpful to you in some way. It is always so helpful to talk to other people with FMS to get some perspective. We are all here for you anytime you need to vent. Take care and let us know how you are doing.

 

axxie - March 24

Hey TiredTab38
We all know how you feel, we all felt it one point or another. Once, on your preffered drug plan, you will feel much better, and you will regain some of your strength. You may not have the energy to drive your mother in-law, well that's a problem for her, you didn't get married to your husband to chauffeur her around. As for self diagnostic, whoa had she had FMS, she would still have it, and wouldn't want to go shopping anyway.

I feel for you, I felt the same way, somedays now on Cymbalta for a few months, I sometime have energy to clean the floor, and other days I can make supper, but it does take effort on the best of days.

What is nice, is you have your sister to talk to, maybe even your mom and a helpful and wonderful hubby.

You are tired of being tired, quite normal, once on Savella, I am sure you will start to feel better.

I'm sorry about having the pressure of taking care of your son, I know how it feels, as I have a sister-inlaw with an austistic child, and also has FMS. We talk on the phone, when we can and support each other.

There's a little writing by a FMily member called Rita Shaw.

No Matter the Limits

It is such a relief when you first find out
That the pain really does have a name,
And then you will ask (and everyone does),
"Just where can I place all the blame?"

No matter the limits, no matter the pain,
There's no evil, cruel "Master Plan,"
It just simply happens. It just simply is.
You adapt, and you change what you can.

But even with knowing the best and worst,
All the pitfalls the future could hold,
You still have a choice, you quit or you fight,
You determine the story that's told.

& every small step that we take, my dear friends,
Each battle that we slowly win,
Just credits the love and the caring we share
With the FMily that we call our friends.

 

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