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3 Replies
kiddle - September 10

I have had Fibro for many years now and have been through numerous pokes, prodding, extra diagnoses that it's hard to keep it all straight. I was told at one point that I had Crohns and they had me on a bunch of drugs to treat that, then found out that I really didn't have Crohns, my gallbladder was dead and was removed. Last November, I received the "wonderful" news that I have a very large blood clot in my left leg. Just to add to all the other stuff. I have been diagnosed with Fibro, myofascial pain syndrome and possibly chronic fatigue but that's iffy because of all the meds I'm on. I've gained over 100 lbs in a little over a year and I am unrecognizable at this point. My pain has not resolved, none of it. I've been prescribed just about every drug out there and right now I'm on 10 different medications. My Rheumatologist has me scheduled to go back in again on Tuesday to talk about "pain medication", I'm assuming he means narcotic forms of pain relief. Since I've been on everything else and nothing has helped. I can barely get through anything, even regular mundane house work can cause so much pain that I end up nauseated, sweating like crazy and completely exhausted. Anyway, my question is, what types of narcotic pain meds has anyone been on or is on at this time and what can you tell me about them? I'm running out of options as I am also a hypermetabolizer, which means my liver or kidneys soak up most of the meds before they ever reach my bloodstream and therefore I have to take higher dosages than most people. Any suggestions for me to go in to my doc with? Any advise on narcotic meds? Anything anyone is willing to share would be greatly appreciated. Thank you so much!

 

BreeZ - September 10

Sounds like you're having a terrible time of it. I've been on a ton of different drugs over the last few years but at this time the only things that are helping me are Neurontin and the narcotic Percocet. I was on a Morphine Patch for a few months but after a while it just quit helping. Percocet is the only narcotic that has ever given me any relief for any length of time but if you take it too often or too much.. it stops helping.. We are all so different in the way we can handle meds though.. Wishing you the best of luck

 

Amyloo - September 10

I am sorry, Kiddle. BreeZ says it well; pain meds affect people differently. I also take neurontin; I am bipolar and was already on it as a mood stablizer when I was diagnosed with fibro. My rheumy said it helps. I take darvocet for pain, and find it to be the best to take the edge off without making me "stoned". I know it is a tylenol based med, though, and this may be bad for your liver. My advise would be to take half of the dose recommended at first (whatever pain med you are given) and see what happens. You can always take the other half in an hour or so if you need to. God bless you.

 

Robin1237 - September 20

Sounds like you're having a rough time. Listen: I think I know what we all have: it's Lyme disease, a bacterial infection. I got mine from being bitten by a tick 26 years ago on my foot. No symptoms at the time; they started there months later with gradual muscle pain. Go read at www.lymenet.org/FlashDiscussion/MedicalQuestions. If you're interested in getting tested, the folks at lymenet can help you find a Lyme-literate physician -- one who's been trained to recognize symptoms, test and treat for it. In general, we need antibiotics. Clindamycin 150 mg 4x/day brought my pain to zero in one week.

 

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