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New - leg pain really bad
3 Replies
Bluemoon - August 12

Hi all -

I received a dx of fibro three years ago. Have tried to "ignore it"; impossible due to the pain.
I have tried Lyrica - only thing that helped but I gained 30 lbs on a small frame; willing to go back on it to get rid of the pain but would rather not as clothes are too expensive!

My legs hurt all of the time - it is as if my legs are in constant contractions - they hurt, ache terribly. While I have the fibro dx, I wonder if it is something else???? I read about RLS - I don't feel "tingly" - instead ache like I have a high fever - constant, worse at night.

I hope someone can help:)


Fantod - August 12

Bluemoon - Hello and welcome.

It sounds like Fibromyalgia (FMS) to me. There are a couple of other medications that you could try for relief. Cymbalta is used to treat both the pain and depression that usually accompanies FMS. Savella was approved by the FDA last year after being available in Europe for decades. Another option might be Gabapentin.

Lyrica is notorious for rapid weight gain. I've been on Cymbalta and Gabapentin for a few years now. No weight gain and my symptoms are better. If I could tolerate higher doses I might have more relief. Unfortunately, I am very sensitive to medication.

The type of pain caused by FMS does not respond to OTC remedies like Tylenol etc. Only certain classes of prescribed medication work. The longer a chronic pain cycle continues, the harder it becomes to manage or stop. You need to be on medication consistently. You are creating a lot of stress for the other systems in your body to handle. Eventually, there may be a cascade of other issues as a result.

Have you been tested for a vitamin D deficiency? This is done with a simple blood test. I'd also like to suggest that you be tested for gluten sensitivity. It is possible to be sensitive to gluten (me) without having full blown Celiac disease. The most accurate result is obtained using a stool sample. Either of these issues will also cause widespread pain.

And finally, you should be on medication like Amitryiptyline for sleep. FMS disrupts the deep sleep cycle with short bursts of high intensity brain activity. Your muscles require deep sleep in order to recover from the days activities. No deep sleep means higher levels of pain. This rapidly becomes a vicious circle.

I hope that my comments are helpful to you. Take care.


kentucky girl - August 13

You may try Magnesium supplements. It is good for muscles. I have had really good results on 400 mg. of Magnesium daily. I hardly ever have muscle spasms anymore. Hope this helps.

Kentucky girl


Stacey373 - August 13

Hi Bluemoon - I also tried to "ignore" my diagnosis. I guess it was more like with me and my family "shhh...if we don't talk about it, it will go away" yeah...right! I basically kept that attitude until I had a "mini breakdown" about 3 months ago because I couldn't handle any of the problems anymore. I needed me and my family to talk about it and not have it be a "bad word" in my house. We had to "accept" it and actually deal with it. It's not going to go away no matter how much we want it to.

Even though I was so relieved to finally find out what was wrong with me after all these years...I guess I couldn't accept that it would never go away and could possibly get worse.

I finally figured out that I had to quit "fighting" this illness and start working with it. Because I wasn't just hurting myself when I was in bed for days...I was also hurting my family. So I'm still trying to figure out what I can do and what is "too much". I'm also trying to not be so hard on myself on the days I feel lousy and can't get up and do anything. (I think that is the hardest to accept of all!)

anyways....I don't know if this is how you are feeling...but when I read your post it instantly made me think of what I went through and I thought I would share it with you. I don't know if you are taking any meds, but I hope you pay attention to what Fantod told you...she knows ALOT about this illness.

And even if you are taking meds...I've also learned that they don't help sometimes. Sometimes we just have to deal with the pain and that horrible non-stop aching and try to be positive and hope that tomorrow is a better day. Welcome to the group and Take Care, Stacey :o)



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