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New Here- My own personal Hell!
2 Replies
Izaymom06 - November 17

I just wanted to start off with saying that my title is not correct. It was only up to today that I felt like I was in my own personal hell but after coming across this amazing website I realized that I am not alone. As I was reading the General Discussion postings I started to cry (out of joy) that I am not alone on this nasty path in life called Fibromyalgia!
When I was 12 I was told that I had cronic mono which has been a battle and then
I was told back in June 08' that they thought I had FMS by my general doc. Over the last 5 months I have been put on Ultram for the pain, Cymbalta and Lyrica. At night I take tresadone to help put me to sleep. As everyone posts you have your ok days and your bad days and then you have the days when you just want to crawl into a ball and die! I have many questions for everyone here...
My family is very supportive but at the same time they just don't understand. I can tell that my husband gets frustrated when I just lay around all day but he knows that I am in pain. How do you explain FMS to your loved ones? Next I have two strange skin problems. First one is small clear/white bumps that form on my palms in between my fingers which itch soooooo bad. In the past two months I have had an outbreak on the back of my head just above my hair line. Does anyone else get this and if so what is it and how can you treat it. Second is what my daughter calls a stamp just above my breasts. I does not itch or have any pain it's just a round discoloration the size of a quarter. Last night I noticed that now have two on my right upper back and one on my left. Is this because of FMS?
My heart goes out to everyone on this website and I hope that one day we can rid ourselves of this nasty nasty nasty thing! One love everyone!

 

Fantod - November 17

My first question to you is were diagnosed by a rheumatologist? If not, I recommend that you find a fibro-friendly rheumy and confirm the diagnosis. You can do this one of two ways. Go to the National Fibromyalgia Association website and ask them for a referral in your area. Or, call your local hospital physician referral service and ask them for a recommendation. Secondly, explaining to your family how you feel and actually living it are two entirely different things. I have used scenarios like "imagine you have a bad case of the flu 24/7" or "imagine a pair vice grips firmly attached to your finger" to no avail. I've had family put a clothes pin on the end of their finger to mimic FMS pain and see how long they could stand it. I've given my family every possible variation of descriptions I can think of and nothing really sinks in for long. I have even had my medical team speak to them and get no where. I do what I can, when I can do it and thats about it. While odd skin problems can be associated with FMS I'm not sure that what you are describing is part of the syndrome. The spots on your chest and back sound like herald patches indicating that there is some other problem going on. It could be that the stuff on your palms and the patches are caused by a reaction to the medication you are taking. I would discuss this with your primary care docotor and also consider seeing a dermatologist. I'm glad that you found this site. There is a lot of good information here. Take care.

 

serenityartist - November 26

As a child I had exema between my fingers that sounds like your hand problem but the other areas seem different. I think you need to see a dermatologist. You might also look up rashes on the web and check out photos of rashes to see if you might be able to identify them.

 

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