New to the forum?

Sign Up Here!


Already a member?
Please login below.





Forgot your password?
Need Help?  
NEW Help! Are these Symptoms Fibromyalgia???
5 Replies
brethor - November 28

Hi Everyone!

Looking for any kind of guidance anyone can give as to whether the symptoms I am suffering could be fibromyalgia....I am 35 yrs old and just recently my Dr suggested I could have this disorder and prescribed me Cymbalta which I have not started yet....my symptoms started 3 yrs ago with crashing fatigue (fatigue that comes on like a light switch where you literally cannot keep your eyes opene,,,frightening!) and bouts of lightheadedness, chronic pelvic pain and abdominal pain....then last year I had a partial hysterectomy and the symptoms have multiplied at an alarming rate...they are as follows;
24 hr lightheadedness////brain fog
crashing fatigue
muscle aches and pains
chronic headaches
anxiety attacks
debilitating cold body temperature
severe abdominal problems
severe lower back pain
finger stiffness
water retention in hands, legs and feet
dry hair and hair loss
loss of libido
night sweats
I am sure I am missing some things....I have had many tests and exams including my thyroid, iron and hormones and apparently they are within normal range....has anyone out there suffered anything similar or have any ideas of what these symptoms could be???? I would appreciate any help!!! Thanks Bren

 

Canada17 - November 28

I understand why you would be questioning a diagnosis of Fibromyalgia. It isn't exactly a sigh of relief. There is nothing more frustrating than knowing you have been diagnosed with something that as yet is still untreatable.

There are things our doctors can give us to mitigate our symptoms and help relieve our pain but there isn't really any true treatment for FM.

Try the Cymbalta, perhaps you will have good results with it, it works well for some FM patients and the opposite for others. Treating this disease is a trial and error process. You will have to learn to accept that.

Keep a positive outlook, no matter how bad you feel, Fibromyalgia isn't terminal and it isn't going to shorten your life. You don't have cancer or other degenerative diseases like rheumatoid arthritis.

Be thankful you have a doctor who recognizes Fibromyalgia as a real disorder. Remember that if you are not able to tolerate Cymbalta or if it doesn't make you feel "normal" again, it doesn't mean you don't have FM. Some people with FM have many different medications they have to take, others, like myself, have a very hard time tolerating even the most mild of prescriptions.

It will blow your mind the way you feel and know there is nothing that will show up on a diagnostic test. It is the invisible disease. Read as much about this disease as you can, do as much research as possible. The more knowledge you have, the easier it will be for you to understand what is going on and for you to help your loved ones try to understand.

I wish you luck in finding a balance of medication, diet, and relaxation techniques that allows you to better tolerate your pain.

And remember, you are not alone, we are all in this boat together.

 

Fantod - November 29

Hello Bren - Sorry to read your long list of ailments which for the most part are very familiar.

I understand that you have had a battery of tests which is good. I wonder if you have been tested for a vitamin D deficiency? Many people with Fibromyalgia (FMS) have low levels of vitamin D which can cause widespread pain. You might also want to be tested for gluten sensitivity using a stool sample which is very accurate. You may also be sensitive to gluten but not have full blown celiac disease.

The best doctor to manage and diagnose FMS is a rheumotologist. As Canada17 observed, there are still plenty of healthcare professionals out there who think FMS is an ailment assigned to neurotic hypochondriacs. FMS is, in fact, recognised by the National Arthitis Foundation and the Center for Disease Control. You are very lucky that your doctor actually recognizes that it could be the problem. To find a rheumotologist, you can call your local hospital phyician referral service and ask them for a theumy and/or a pain specialist (I have both) with an interest in FMS. Or, you can go online to the National Fibromyalgia Association website and register. Then you will be able to see a list of fibro-friendly doctors in your area.
It is particularly important that you see a FMS specialist as soon as possible. If you have had recent bloodwork, get copies to save time and expense. The longer a chronic pain cycle goes on the harder it is to stop or manage.

I also have problems with crashing fatigue. I find that eating smaller meals more often during the day helps keep my blood sugar stable. High protein in very important. You should stay away from deep fried food, lunchmeat and anything that has am artifical sweetner (including Splenda) as any of these items will probably make your pain level worse. In place of an artifical weetner try something made with the Stevia plant like Sun Crystals or Truvia. Stevia is nontoxic, you can find these items in the grocery store.

There are now three primary medications used to treat FMS. They are Lyrica, Savella and Cymbalata. I use Cymabala myself and find it pretty effective. Only certain classes of prescribed medication are effective. OTC remedies are not.

Sleep is a crucial part of treating Fibromyalgia. FMS interrupts the deep sleep cycle with short bursts of high intensity brain activity. Your muscles need deep sleep in order to repair themselves from the days activities. No deep sleep means higher levels of pain. Amitriptyline is usually prescribed for sleep disorders associated with FMS.

I think that your best bet is to get an appointment with a rheumotologist and go from there. I hope that my comments are helpful to you in some way. Take care and God Bless.

 

shannzy3 - December 1

Hi!!! Well I'm in the same boat. I haven't yet been diagnosed with anything but I pretty much have all those symptoms. I've been having many of them for years and some that have just recently been getting worse. I also get chest pains, tingly hands and feet which makes it really hard to exercise, sit in chairs, put my feet up on the couch or even sleep. I definitely have the dry hair, never had any libido, night sweats, lower back pain, finger stiffness, depression, headaches, anxiety, muscle and joint pain horribly bad in the knees, lightheadness, fatigue, and blurry vision to name a few of the same. I also had a nose bleed while working out for no reason. Oh and really bad stomach aches and an irrital bowel. So heck I think I just might have it too.

 

polo - December 1

i am new to this site... very impressed
i really feel after researching this website that i have fibro as well.

i literally feel like a different person now- which is really bad

-always tired (even after sleeping 8 hours)
-consistent neck/trapezius pain
-libido decimated
-dizziness
-used 2 pride myself on my full head of hair... now is very dry and notice losing hair in front a little
-headaches
-really hard for me to concentrate now
-allergic rhinutis


I guess my question is do these drugs actually block the symtoms or just the pain???

 

Canada17 - December 1

Dear Polo,

Sometimes both, sometimes neither. The problem is that because so little is known about FMS, there is no true treatment for it.

As many will tell you, they take many different medications and still suffer daily. Others, like myself, have multiple chemical sensitivity which usually means I have the rare side effects when I try a new med.

Medication alone will not treat FM. We require multiple approaches:
Medication
Physical therapy - massage, accuptunture, etc.
We deal with a lot of stress and sleep issues so having a professional to discuss things with is very beneficial
Diet is very important - there are a lot of otherwise healthy foods that cause problems for us, sort of allergies but not in the clinical sense
Your attitude is also very important (goes back to having a professional to talk to) - while it is hard not to get down on yourself when you know you are feeling pain and all your loved ones are saying you shouldn't be, doing so will only make your symptoms worse.
De-Stress your life - Easier said than done, and don't I know it. But stress will, again, make your symptoms worse.

Even if you do everything you are supposed to and stay as calm as you can, you will still have pain. That is FM and that is because there is no cure and no true treatment. But doing everything you can to take care of yourself will help to lessen the pain, and maybe even give you a great day here and there. Those are the days I look forward to.

It isn't the worst thing that I could have been diagnosed with. I am diet dying, and contrary to what most people will say, I am not falling apart. This disease is not a walk in the park.

We need to be activists for this disease. More awareness must be brought to it because if not, it will take longer for treatments and a cure to be found. The symbol for FMS is a purple butterfly, it symbolizes the transformation of our pain into something beautiful.

I wish you luck in finding out what is going on with your body and getting a diagnosis. : )

If it turns out that you do have Fibromyalgia, just remember you are never alone.

 

Message:


You must log in to reply.

Are you New to the forum? Sign Up Here! Already a member? Please login below.

Forgot your password?
Need Help?
Ask a Question