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New but getting old.
2 Replies
linbod - September 22

I'm 60 now but have been feeling ill since my 30's. It started after a physically and emotionally challenging week long endurance type of adventure when I pushed myself to and perhaps over my limit. I always loved to run and do physical activities along with work (as an occupational therapist) but I started feeling flu-like symptoms every few weeks lasting about a week to ten days. It came for no reason and left for no reason but made living my life very hard.

My internist, a very nice man, didn't have a clue. Bloodwork showed nothing . Gastro problems started. IBS. The gastro doc said I had a lousy bowel but didn't know why I had such a severe headache. So I went to a rheumatologist (not a very nice man). He was sure I had fibromyalgia but I didn't really fit the profile. He said chronic headache and nausea is not that common in fibro and since I had been treated for Bipolar II before I should let the psychiatrist find the pharmaceutical answers.

Fortunately, I am blessed with a strong sense of irony and humor which is getting me through the inadequacies of the medical profession. Unfortunately, I also am discouraged and still not convinced I have fibroneuralgia .




 

Fantod - September 23

Not everyone fits the exact criteria for FMS. Some people have quite a bit of pain and others do not. I have more problems with fatigue, sleeplessness and stomach problems than overall pain (most of the time). Headaches and nausea are actually a common problem with FMS. I've had problems with intermittant nausea for over a week now. Take a minute to look over the list of symptoms and associated conditions listed on this site. Go to the National Fibromyalgia Association website and have them refer you to a fibro-friendly rheumotologist in your area. Or, call your local hospital physician referral service and ask them for a fibro-friendly rheumy. I have had my fair share of doctors that were pretty miserable human beings. You have to move on and find someone else. The only person who suffers by not getting on with it is you. I certainly would not wish this illness on anyone. Personally, I've been pretty relentless in my pursuit of answers and better ways to manage. As a result, as strange as it might sound, I feel liberated. I really hope that you seriously consider finding another doctor who is more helpful. You may or may not have FMS but there is only one way to find out. Take care.

 

linbod - September 23

Fantod. Thanks for the encouragement and good advice.

 

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