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Neurontin question
8 Replies
chucksusanandgrace - January 22

Hello -
I am still going through testing to rule out other disorders and to see if I have fibromyalgia (which I think I do). I just had an EMG today and it came back negative, which is great. The Neurologist who was very quick with me said that for my weakness, numbness and funny feelings I can take neurontin 300mg once a day.

After reading this, I noticed it is a seizure medication as well as for neuropathy type problems (fibromyalgia too). I had a seizure disorder 30 years ago and am not comfortable taking seizure medication for this.

I'm curious if anyone can give me their personal experience with pros & cons to this medication. I just am not feeling comfortable with the many many side effects this med offers.

Thank you.

Susan

 

guateboy34 - January 22

I have taken Nuerontin (gabapentin) now for about 4 months. I have been at a low dose (300 mg daily) This past week my doctor has doubled the dosage and by next week I will be at 900 mg daily. So far I really have not noticed any side effects and that may be due to the low dosage. My understanding is that although gabapentin was originally developed as a anti-siezure medication, it was a really poor one at best. However it turned out to be a good nerve pain medication.

 

Noca - January 22

Gabapentin(an anti-convulsant) is used sometimes to treat seizures. It can in RARE cases cause a seizure. Talk about the risks with your doctor to decide whether the benefits outweigh the risks.

I personally have epilepsy that's in full remission. I've used Gabapentin in doses up to 2400mgs a day and I never got a seizure from it.

 

chucksusanandgrace - January 22

Thank you so much for your comments. I will talk to my Dr more about this when I have my follow up appt on the 4th of February.

Hugs

Susan

 

Lee2010 - January 22

I've been on Neurontin for about 7 months now. My internist started me on it for my FMS. I started at 300 mg. 3x per day. When that wasn't doing anything for me, she upped it to 600 mg. 3x per day. I'm now on 800 mg. 3x per day and I have noticed no side effects. In talking with friends who've been on it the general consensus is that it doesn't work right away. My internist told me that one of her patients didn't notice it working for almost a year. My friend took 4 months to notice a change. My doc is going to up my dose to a total of 3600 mg. per day. I'm not going to give up on this drug until I've given it at least another 5 months. I've heard that when it works for nerve pain it really works well. I'm hopeful that it will work for me eventually. Good luck to you and hang in there.

 

Fantod - January 23

I'm on a very low dose due to drug sensitivity. I've been taking it at night for over two years and have never experienced any problems. It is very good for nerve pain and most rheumotologists recommend it for that specific purpose.

When reading about potential side effects you should remember that we live in a very litigious society. Drug makers list everything that could possibly happen to cover their rear ends. The actual percentage of those things happening is fairly low. And, Noca is correct in saying that if you have reservations, discuss it with your doctor. Take care and enjoy the weekend.

 

dkarssen79 - January 24

I had awful side effects from neurontin(gabapentin) I was on it for 4 or 5 months and it made me extremely moody, very irritable and I had a very short temper. It also made me feel loopy all the time. I didn't realize how moody it made me until I stopped taking it. I did not like this medication at all. But everyone is different so it may work well for others.

 

Kiwigirl - January 24

I have been using Gabapentin 300mg 3 times a day for about 3 months and it has done wonders for me. Apart from feeling tired mainly in the afternoons I have had no noticeable side effects and no longer have migraines or the crippling neck pain that has plagued me for years. It does however affect everyone differently and a slow build up to the dosage is best.

 

chucksusanandgrace - January 25

Fantod -
How many mg do you take during a day. I also am very sensitive to high doses of medication and usually take mini doses.

Thanks again everyone for your replies. I appreciate them.

 

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