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My Opinion on Thyroid versus Fibromyalgia
42 Replies
Lyle Anderson - January 10

Just curious, dream69/larry/kathy. Did you pick 'dream69' because 1969 was a graduation year for you? Are you showing your age? lol

 

dream69 - January 11

Who is Kathy/Larry! I don't know what you are talking about. I share information to help you with your search for answers and you criticize me. I too am in pain and I also suffer like all of you. My mother, aunt, sister, and cousin all share that pain and maybe others in my family. It is I who is doing something not just for me but also for all of them. This Christmas do you know what I bought them, a box of ginger root tea. They are also believers now. It is not a cure but its better then taking 20 pills a day and still feeling like a truck ran over you. All I am going to say is goodbye and I wish you all good luck in your struggle with this disease.

 

Lyle Anderson - January 11

Dream69, You say you share information with us to help us with our disease. Well, we share information with you---such as: we've heard that before; you've said that before; please post shorter notes and get to the point; that won't work for me because I'm poor, don't have insurance and can't afford it; and I tried that and it didn't work for me. You never listened, ignored us all so I can't say I have a lot of sympathy for you. Folks were nice and kind, gave you the benefit of the doubt and still you pushed it. Well, bye-bye. Have a good life and happy fibro-fogging to ya.

 

Lynne-FT - January 12

I am courious by nature so I dug out my blood test results

Ok since I am seen on a regular basis by my Primary doctor who is a internal medicince doctor, my phy-zi-i-trist, (specailizes in physical medicine and re-hab) my fibro doctor and my ortho doctor I ask for medical records of tests ran and sometimes office notes to share with each.
I just went over my initial test for my fibro diagnosis (blood test)
here is some of the results:

He did indeed test my TSH - ask your doctor for a TSH (thyroid stimulating hormone) test.
Many labs will consider your TSH level normal if it comes back between .5 and 5, though they have different scales of normal. Most people are at their optimum with TSH between 1 and 2.
If your test comes back at a 3 or 4, most doctors will tell you that your test results are normal.

Mine was 1.174 with the normal being .5-5 as stated above.
He (my doctor) still ran the antibodies test also at the same time mine was 25
Negitive results are 0-99 <100
Equivocal results are 100-200
Positive results are >120

So I would say based on my blood work at the time I was diagnosed with FMS I was negitive for any thyroid problems.

He also did the Rheumatoid test I was a
6.8 normal being 0.0-13.9 also negitive.

He ran a complete CBC with Differentiel/Platelet
Comp. metabolic Panel 14
Lipids
Sedimentation Rate
The only thing that I was low on was red blood count being
3.71 should be 3.80-5.10
and my hematocrit 33.7 34.0-44.0 being normal.
(This showed I was slightly anemic) which is not uncommon for women still having a menstrual cycle.
He ran 3 more tests in the anemia area and found nothing causing it but the fact I was still having periods.

I do not know if this all makes sense to you but I feel better knowing my doctor did take and do all the tests required to dx FMS. Oh and I was negitive for Lupus also.


 

Lynne-FT - January 12

For a better understanding of what I just posted and to read it in a better format you can view it here>>>>>>&g
t;>>>>>>>
.

http://fibrotalk.proboards99.com/index.cgi?boar
d=related&action=display&thread=116858241
7

 

dream69 - January 12

Lynn FT, I don't think you have fibromyalgia. Your problems are due to your spinal injury. This is callled cervical stenosis with myelopathy. "The spinal canal is similar to a tunnel running the length of the human spine. It sits right behind the bony blocks called vertebrae and contains the nerves (spinal cord and nerve roots) that run from the brain throughout the body. Cervical (C1 through C7 vertebra) spinal stenosis (compression) occurs when something causes a narrowing of the canal, which results in the nerves becoming irritated or squeezed. The flow of cerebrospinal fluid is often obstructed by this abnormality as well. Stenosis can lead to a variety of symptoms including tingling, numbness, and weakness to severe pain and paralysis. Congenital conditions, injuries to the spine, cervical disc disease and age-related degeneration can be instigators of cervical spinal cord stenosis." "Dan S. Heffez¹ M.D., Daniel G. Malone² M.D., Sam R. Banner¹ M.D., Alan Shepard¹ M.D., Ruth E. Ross¹ Ph.D. and James W. Robertson¹ B.S. (Sponsored by Daniel Malone)¹ Chicago Institute of Neurosurgery and Neuroresearch, Chicago, IL 60614 and ²University of Wisconsin at Madison, Madison, WI 53706 "

 

dream69 - January 12

Lynne Ft check out

http://www.nfra.net/Symchart.htm

 

dream69 - January 12

A lot of people have the same symptoms but there are various diseases that mimic classical fibromyalgia caused by the disruption of the thyroxin pathway. The medical community will diagnose someone with fibromyalgia if no cause is found. Lynne Ft in your case its obvious. If they find a cause to your symptoms your disease will have another name. I suggest an MRI.

 

Lynne-FT - January 12

Ok I have questioned that and do admit I do have spinal problems no doubt from my injury, but how do you explain the trigger points and the knots under my skin?
Oh and btw the PH in my blood test was also normal.

 

Lynne-FT - January 12

LOl mri you know how many I have had I think 5 at least and x-rays I can't count.

 

dream69 - January 12

trigger points and knots are common in cervical stenosis

 

dream69 - January 12

Are the MRI scans normal or not? If they show a pinch nerve, then this is your answer

 

Lynne-FT - January 12

Yes I have a disc at c5-6 that is herniated and my L-5 is herniated.
I looked at the site you recommended and I have the following which are not related to spinal problems.
Depression, Disorientation (I often get lost driving or forget where I am going)
Word finding difficulty (I often stop mid-sentance looking and trying to think of the next word)
Temporal Headaches, Muscle and Joint Pain, Blurred vision, Hearing loss, Tinnitus (noise in ear), Vertigo (sensation of spinning), Dizziness, Sleep apnea, Vocal cord involvement, hoarseness, Lethargy (drowsiness), Dysphagia (difficulty swallowing).
All of which are not signs of a Compressed Cervical Spinal Cord. I do admint I have Stenosis.
I also agree that hormones can go up and down without being detected on a blood test. My Endocronogolist already confirmed this happens.

 

Lynne-FT - January 12

I do not doubt there are many causes and many therioes to FMS the newest one out for 2007 is this:
FOR IMMEDIATE RELEASE

4 January 2007

“Fibromyalgia: Show Me Where It Hurts”
New Study Links Fibromyalgia to Reduced Brain Dopamine


ORANGE, Calif---- 4 January 2007---- The National Fibromyalgia Association today announced that a new study published in the January issue of The Journal of Pain provides new scientific evidence demonstrating for the first time that there is a fundamental difference between the brains of fibromyalgia patients and healthy individuals not afflicted with the disorder.

http://www.fmaware.org.
/media/2007/01_04_2007.htm


 

dream69 - January 12

"About 20 percent of people involved in rear-end collisions have significant neck pain. Most recover quickly but a small number develop chronic pain and disability from whiplash, including:

neck pain and stiffness;

headaches;

pain in the shoulder or between the shoulder blades;

low back pain;

pain or numbness in the arm and/or hand;

dizziness;

ringing in the ears or blurred vision;

difficulty concentrating or remembering; or,

irritability, sleep disturbances, and fatigue.

The mechanism of whiplash injuries occur is not clear and the severity of problems varies greatly. In the past, whiplash injuries were treated with immobilization. Currently, we encourage movement, and soft collars are used only for short periods." Northern California Neurosurgery Medical Group.

 

dream69 - January 12

"Fibromyalgia has been called a "stress-related disorder" due to the onset and exacerbation of symptoms in the context of stressful events. Evidence suggests that inhibition of tonic pain is mediated by activation of mesolimbic dopamine neurons, arising from the cell bodies of the ventral tegmental area and projecting to the nucleus accumbens. This pain-suppression system is activated by acute stress, via the release of endogenous opioids and substance P within the ventral tegmental area. However, prolonged exposure to unavoidable stress produces both reduction of dopamine output in the nucleus accumbens and development of persistent hyperalgesia. It is proposed that a stress-related reduction of dopaminergic tone within the nucleus accumbens contributes to the development of hyperalgesia in the context of chronic stress and thus plays a role in the pathogenesis of fibromyalgia. A stress-related dysfunction of mesolimbic dopaminergic activity might serve as the basis for other fibromyalgia-associated phenomena as well." Wood PB. Med Hypotheses. 2004;62(3):420-4.

 

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