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Multiple underlying factors MUST be treated ALL at Once....
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larry - December 6

Here is an article from the Fibro and Fatique center that is treating me. You may also find this info on their website at www.fibroandfatigue.com/newsletter_thankyou.php .... - I am being treated at this center and it is VERY clear to me why so many of us are sick and can"t get relief after visiting many doctors. The blood tests that they do on patients is very, very specific and most doctors would not understand. There are 12 underlying conditions that factor into this Syndrome, most fibro people have 6-7 of the conditions. They all have to be treated at the same time, like a car with a dead battery and an engine that doesn't work- you must treat/repair all the conditions at once to get the car working properly. I spoke with the center on how they can help people that do not live near a center. They do have an "out ot town" package where they require you to visit the center once, initially and have monthly phone calls, they also can work with your doctors to help them and can prescribe tests that you can have done locally at a lab near you. I can also help answer questions as I have been a patient there now for several months and have been amazed at what they uncovered in my health and what I am being treated for. Worthy of mentioning again, these are not standard blood test screenings that a non-fibro specialist would understand nor know how to treat. If anyone has any questions you are welcome to contact me at [email protected]..... I will be glad to share with you my results so far......

This article is called " Chronic Fatigue Syndrome and Fibromyalgia; Now Treatable Diseases" ...... There also are other articles at this site about their treatments and a newsletter that you can sign up for....

Chronic Fatigue syndrome (CFS) and Fibromyalgia (FM) are illnesses that often coexist and affect millions of Americans. Symptoms vary amongst individuals and commonly include severe fatigue, sleep disturbances, cognitive problems, commonly called brain fog, muscle pain and multiple infections. Unfortunately, many individuals and
physicians continue to deny that these syndromes are legitimate diseases. The medical literature is, however, very clear
that these are legitimate diseases and individuals with these syndromes have measurable hypothalamic, pituitary,
immune and coagulation dysfunction. These abnormalities then result in a cascade of further abnormalities, in which
stress plays a role. The pituitary and hypothalamic dysfunction results in multiple hormonal deficiencies that are often not detected with standard blood tests, and autonomic dysfunction, including neurally mediated hypotension. The immune dysfunction, which includes natural killer cell dysfunction, results in opportunistic infections and yeast overgrowth, making the symptoms worse. Recent studies have shown that the coagulation dysfunction is usually
initiated by a viral infection and has genetic predisposition. This abnormal coagulation results in increased blood
viscosity (slugging) and a deposition of soluble fibrin monomers along the capillary wall. This results in tissue and cellular hypoxia, resulting in fatigue, and decreased cognition (brain fog). Neurotransmitter abnormalities and macro
and micro nutrient deficiencies have also been shown to occur with these disorders.
Gulf War Syndrome, which is almost identical to CFS and FM, was found to have a parallel cause. The cause was
determined to be from multiple vaccinations under stressful conditions in susceptible individuals. These vaccines,
which are viral mimics, resulted in the same coagulation cascade and the deposition of fibrin monomers, resulting in
the same tissue hypoxia that occurs in FM and CFS. These multiple injections are being discontinued by the armed
forces.
Current research suggests that many triggers can initiate a cascade of events, causing the hypothalamic, pituitary,
immune and coagulation dysfunction. The most common initiating cause is a viral infection, which is very commonly
Epstein Bar Virus, Cytomegalovirus or HHV6. These are found in 80% of CFS and FM patients. Many people with
these syndromes can pinpoint the start of their disease to a viral infection that never got better. Also, stress seems to be
a contributing factor. Effective treatment, with 80 to 90 percent of individuals achieving significant clinical benefits,
can be achieved by SIMULTANEOUSLY treating the above problems that an individual is found to have. The mix of
treatments needed varies from patient to patient. There are some abnormalities that are common. For instance, close to
100% of individuals with these syndromes have LOW THYROID. This is, however, usually NOT picked up on the standard
blood tests because the TSH is not elevated in these individuals because of the pituitary dysfunction. Many of these
individuals will also have high levels of the anti-thyroid reverse T3, which is usually not measured on standard blood
tests. In addition, the majority of individuals can also have a thyroid receptor resistance that is not detected on the
blood tests. Consequently, thyroid treatment, especially with timed release T3 is effective for many patients. T4
preparations (inactive thyroid) such as Synthroid and Levoxyl do not work well for these conditions. Adrenal
insufficiency and growth hormone deficiency are also very common with these disorders, and supplementation with
these hormones can often have profound effects. As with thyroid testing, these deficiencies are, unfortunately, usually
not detected with the standard screen blood tests and require more specific testing.
When an individual is found to have one of the viruses discussed above, these can be treated with resulting
improvement in symptoms. The are a number of drugs, including anti-viral medication, that are currently undergoing
phase III clinical trials at clinics, including ours, for FDA approval in the treatment of FM and CFS.
Although a concept that is sometimes uncomfortable and foreign to traditional medical styles of thinking, the need for
multiple interventions is effective when an illness affects a critical control center (such as the hypothalamus), which
impacts the multiple systems noted above. Unfortunately, there is not a single treatment that reverses hypothalamic
dysfunction directly. Thus, this situation is different from illnesses that affect a single target organ and which can be
treated with a single intervention. For example, pituitary dysfunction itself often requires treatment with several
hormones. This effect is multiplied in hypothalamic dysfunction, which affects several critical systems in addition to
the pituitary gland. An integrated treatment approach based on simultaneously treating the above problems is
significantly beneficial in CFS and FMS. Individuals with these devastating syndromes can “get their lives back”
despite the fact that they were previously told, “There is nothing that can be done,” or “It is all in your head.”
FFCTC1

 

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