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Lyme Disease and FMS
10 Replies
JJ1 - September 28

I found this interesting article that talks about the similarities of Lyme Disease, FMS, chronic Fatigue syndrome and gulf war syndrome: http://www.canlyme.com/fibrocfslyme.html. I have a friend with Lyme Disease (extremely bad case of it -- she is crippled from it and even was temporarily blinded by it) who thinks that there is a huge segment of the population that has this and have just not been diagnosed. She thinks I should be checked for Lyme because my symptoms match those for Lyme disease. Read this site and it discusses similar systoms. I have had them all except for the "bullseye rash".

 

JJ1 - September 28

Interesting suggestion at the end of the article in the Q and A section:
"Q: If the Lyme lab tests are inadequate and the symptoms are the same as CFS and FM, why not just treat all CFS and FM patients with the Lyme protocol?

A: You want to be conservative with your medicines. I think we have enough info now to tell CFS and FM patients to consider going on a 3-6 month trial of antibiotics and see if you're better. Consider all the other meds you are already taking that just treat symptoms and not the cause of your illness. They all have side-effects that can be hazardous. Is it worth it to you to consider a primary treatment aimed at a cause? There will be resistance from some MDs. They need to be educated. Your primary MD will need to consult an LD specialist re the treatment protocol."

 

JJ1 - September 28

Lyme protocol is treatmetn with antibiotics. This is suggesting a 3-6 mo. trial with antibiotics to see if it helps. Has anyone had this protocol performed?

 

barbar - September 28

One of the first things my doctor did was to test me for Lyme disease. The results were negative. I think it should be standard protocol for FMS patients. However, even if Lyme disease, FMS, and CFS share the same symptoms, that doesn't mean the same protocol may work. For example, some of the literature suggests FMS may be viral, some suggest it may be neurological. In neither case would antibiotics be effective.

 

TERESA - September 28

Barbar me too that was the first thing they tested me for. I live in SW MO & there are ticks everywhere!! In my area we have also had two cases of West Nile virus. I've been down for several days now & I can't seem to get better. I have days I think I'm on the way to better health Then I'm down again. Yesterday I went to work for about six hours, today I can bearly get out of bed! I don't know if I have the flu or if this is a fribo flare!!

 

JJ1 - September 28

I don't recall my doctor testing for it -- maybe because I live in an area where Lyme disease is not prevalent, but I have traveled all over the US and have spend some time in areas where it is a problem. One of the things that caught my attention in the article is that the tests for Lyme are not that definitive: ................"Tests for Lyme disease, like tests for other infectious diseases, are often confusing and circumstantial, and their analysis and interpretation has often been flawed. In infectious diseases you do a Western blot test to see if you have a specific reaction. Western blot separates out proteins antigens of an organism you are looking for. It tells you if a person has been exposed. It is not a direct measurement of the organism. It is a measurement of whether the person has antibodies to it. Antibody tests are useful in the early stages of illness as with other acute infectious illnesses. Once the illness is in a chronic phase, antibody tests are not useful. "

 

JJ1 - September 28

barbar - As I understand it, the antibiotic treatment would only work if you have Lyme disease -- if you take antibiotics for 3 - 6 months and start feeling better, then there is likelihood that you have Lyme. If you continue to feel the same way, then probably not Lyme disease. I know that docs don't like to prescibe antibiotics if not needed, but sounds like it could be worth the chance. I don't have the tender points typically signifying FMS, even though that is my diagnosis. I still have an underlying suspicion that something else is going on with me.

 

AmberRose - September 28

fibromyalgia also has the same symptoms as lupus and ms and hypothrodism...i think most illnesses have symptoms that could be soemthing else becuse the symptoms are similar..i was checked for lupus b4 i was given the fibro diagnoses

 

JJ1 - September 28

I was specifically checked for Lupus, hyperthyroidism, and rheumatoid arthritis. I don't recall being given a test for Lyme disease. I also don't think I was tested for MS.

 

AmberRose - September 28

As far as i know there isnt a test for ms, but i could be wrong , allthouhg i think if they suspect you have it they can check for lesions on your spine..but not everyone with ms has those

 

TERESA - September 29

JJ1, I was checked for all those diseases you mentioned & they found I have both Lupus & FMS. As for the Lymes disease, it was my understanding that the antibiotic therapy had to begin very early in the disease or it would do no good. I know the symptoms are a lot alike FMS, but the disease if not caught early was deadly.

 

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