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Long time no speak
6 Replies
Cher0208 - May 7

Hi all,

It's been a while. Just wanted to drop in and say hello. I hope you are all doing well. I'm doing well, taking it a day at a time. Eating healthy, taking my supplements and working with my Naturopath. Funny thing happened recently. My Naturopath noticed that my hands were orange but thought nothing of it. Self proclaimed hypochondriac here. Of course I connected the dots and figured I had jaundice and that meant liver problems and that meant I really do have Porphyria- January I thought of you. And then..after extensive research I found that too much Beta Carotene can cause your hands to become orange/yellow. I eat carrots, spinach, kale etc. every day. Lol! Crises averted! Lesson learned - too much of anything can be no good. At least that's what I hope it is.

Right now my fatigue is overwhelming so I'm looking into something new to try for energy as caffeine is affecting my very negatively. Suggestions? I was thinking of picking up some ginseng. For those that work full time- what gets you through the day?

You're all in my thoughts and prayers.



Jocelyn - May 8

I work full time and have CFS too. I have found that not eating sugar stops the highs and lows and evens you out. I eat an Orange by 2:00 and that gives me a natural boost. Caffiene makes me feel awful. However, I have found that a protein drink gives me energy the natural way. I actually had to stop drinking it at night so I could sleep. However, the high doesn't last too long and doesn't give you that real fatigue feeling when it quiets down.

Good luck!


kvc33 - May 9

As far as I know jaundice is indicated by a yellowing of the eyes, not an orange color of the skin. I have heard in the past that too much beta carotene will color the skin orange. I would suggest frequent small meals, water and fresh air for energy at work. Find a quiet place where you can do five minutes of deep breathing too and I'm sure you will feel refreshed.


January - May 22

Hi Cher! Good to hear from you! I haven't been on much because I got a big dose of cereal grains that made me sick (oatmeal). You're right, too much of anything is NOT GOOD! When you take supplements, take the minimum dose.

I do know that orange palms and soles of the feet can be a symptom of low thyroid function. So, have you been tested for that? Or has the problem gone away by now? I hope!


Cher0208 - May 23

Hey Jan!

No I hasn't gone away. They recently told me thyroid was a little low. Plan to see an endocrinologist soon and see what's going on with my hormones. Will keep ya posted.

Stay away from those oats! I've made that mistake and I know how crappy you can feel. Feel better!!!


January - May 23

Jocelyn - what's the protein shake that gives you so much energy??

Cher - I have just learned that about 15% of people with gluten intolerance can't handle oats! There has been a long controversy about whether oats have gluten - apparently the answer is no, they get cross-contaminated with gluten. So I have several times tried the GLUTEN-FREE oatmeal and each time I get really sick! So I am allergic to OATS, in addition to gluten! Oh yay! A lot of "gluten-free" food is made with oat flour! The things I just keep learning! Well, maybe one day I will be perfectly healthy again! I am sure better than I was 5 years ago, thanks to my own research and everything I've learned by talking with others online! But the most permanent damage was caused by doctors, surgeries, and certain prescription meds, I have to say!

As to the thyroid issue - some say it is hard to really assess thyroid function through blood tests - but you should get ALL the blood tests they have. Thyroid function is hard to diagnose well, and the doctor should take a really good history. Read up on low thyroid before you go, so you will know what symptoms to discuss. Some suggest saliva testing in addition to bloodwork. Apparently, you can have adequate thyroid hormone circulating in your blood, but for some reason it is not getting to the tissues very well. That's what I've read. Do your own research. Good luck with it! Low thyroid can make you feel really tired. If you need medication, it must be carefully adjusted, never take more than you need! Some drs. prescribe synthetic hormones, others use Armour Thyroid which is from animal glands.

I just snagged the checklist below from - thyroid disease.

"I have the following symptoms of hypothyroidism, as detailed by the Merck Manual, the American Association of Clinical Endocrinologists, and the Thyroid Foundation of America

____ I am gaining weight inappropriately
____ I'm unable to lose weight with diet/exercise
____ I am constipated, sometimes severely
____ I have hypothermia/low body temperature (I feel cold when others feel hot, I need extra sweaters, etc.)
____ I feel fatigued, exhausted
____ Feeling run down, sluggish, lethargic
____ My hair is coarse and dry, breaking, brittle, falling out
____ My skin is coarse, dry, scaly, and thick
____ I have a hoarse or gravely voice
____ I have puffiness and swelling around the eyes and face
____ I have pains, aches in joints, hands and feet
____ I have developed carpal-tunnel syndrome, or it's getting worse
____ I am having irregular menstrual cycles (longer, or heavier, or more frequent)
____ I am having trouble conceiving a baby
____ I feel depressed
____ I feel restless
____ My moods change easily
____ I have feelings of worthlessness
____ I have difficulty concentrating
____ I have more feelings of sadness
____ I seem to be losing interest in normal daily activities
____ I'm more forgetful lately

I also have the following additional symptoms, which have been reported more frequently in people with hypothyroidism:

____ My hair is falling out
____ I can't seem to remember things
____ I have no sex drive
____ I am getting more frequent infections, that last longer
____ I'm snoring more lately
____ I have/may have sleep apnea
____ I feel shortness of breath and tightness in the chest
____ I feel the need to yawn to get oxygen
____ My eyes feel gritty and dry
____ My eyes feel sensitive to light
____ My eyes get jumpy/tics in eyes, which makes me dizzy/vertigo and have headaches
____ I have strange feelings in neck or throat
____ I have tinnitus (ringing in ears)
____ I get recurrent sinus infections
____ I have vertigo
____ I feel some lightheadedness
____ I have severe menstrual cramps

For a more comprehensive hypothyroidism risks and symptoms checklist, along with descriptions of each risk factor and symptom, read Living Well With Hypothyroidism."


Jocelyn - May 23

When I get home tonight, I will look up the drink. I stopped using it when I went gluten free. I really don't know what it contains, but will find out for you!



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