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Last option for a diagnosis
3 Replies
Melissa - January 21

I am a 22 year old female, and about a year and a half ago, I started to experience pain around my waist, hips, and lower back. This then progressed to severe pain to the touch in these areas, along with my ribs and the base of my head. I had 2 CT scans done, 6 blood tests (including lupus), and saw 3 different doctors. This all turned up nothing. After having the pain for 2 weeks, I beagn to have panic attacks, and began to swear that I was going to die from something that the doctors were missing. I was told that I needed more exercise and was sent to a psychiatrist. She diagnosed me with severe depression, OCD, and anxiety. I had none of this prior to the onset of my pains. I repeatedly told the doctors that I had pain to the touch, but it was dismissed. I am still on antidepressants a year and a half later, and the pains have not changed one bit. I also have developed cramps in my legs when I sleep. I guess I don't notice them as much because my OCD is controlled, but they are definately still there. I came across fibromyalgia in a magazine article about mystery symptoms. I think that this could be it. I'm almost positive. I'm looking for the opinions of others who have been diagnosed. Should I mention this to my psychiatrist, since she is the one who is treating me?


Daffodil - January 20

Hi Melissa,
Sorry to hear you have been having such a tough time.
I am newly diagnosed as having fibromyalgia....and even newer to this site. I am sure there are many people here far more qualified through their own experiences to give you an answer, but what I do know is that it took about 20 years for my doctors to reach a diagnosis. I have been treated for depression, dismissed as an over-anxious parent, and thought to be just downright lazy I'm sure.
The sympathetic doctor I finally spoke with had little knowledge himself about the condition, but took on board my thoughts of this as a possible diagnosis and made it his business to find out more. His opinion was that fibromyalgia can only be diagnosed when all else has been ruled out. There is no definative test for it, although many people have normal blood tests except for a slightly raised ESR which indicates mild infection/inflammation. Many think that fibromyalgia is triggered following a viral infection. I was able to trace my symptoms back to a nasty dose of Glandular Fever (mononucleosis) in my early 20's.
My advice would be to find yourself a doctor who listens well, and put your thoughts to him in a calm manner. Being a health professional myself, I am aware that many doctors do not take kindly to patients self diagnosing, but a trully caring one will help you through.
Good luck


Melissa - January 20

Thanks for your opinions. The only thing I can think of is that I was diagnoses by my OB/GYN as having e-coli. They discovered this while looking for a cause of pain.


Jean - January 21

Hi Mellissa: I concur with Daffodil. I would most deffently keep a diary of your pain on a day to day basis so you can talk to your psychiatrist about your pain and other probable underlying conditions that crop up with Fibromyalgia. It sounds like you are going in the right direction. Make sure you have a medical doctor on tap for any other tests that may need to be run.



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