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just want to know if im alone or if its common
21 Replies
avsfan16 - February 27

one of the biggest pains i have are my arms.. starting in my neck, down into my shoulders, and my elbows are the worst, then down into my wrists which are also pretty bad. the pain is terrible, and they go numb at times too. it is quite constant, and i am on cesamet for pain, but they arent doing a thing. i also take zoloft, and ativan to help me sleep, but i still dont sleep well. i find that i get alot of hip pain as well, and dont see much tak about that on here. my knees flare up about twice a year, and when they do i cant hardly walk, and stairs are just not an option. i am 35 yrs old and was just diagnosed in june of 06, and things seem to be getting worse fast..noone has ever really done any tests, which worries me. i am going to be going to see a doctor at the pain clinic in a nearby city, but god only knows how long that might take. anyone similar?

 

Trixie - March 7

My elbows were the very first thing to hurt when I started to get Fibro. I went to a lot of docs who said I had tennis elbow from lifting weights at the gym. Well, I quit lifting and it's not gone away now for about 3 years. From my elbow's down get numb especially if I'm using my computer mouse for too long. I know it's not carpel tunnel. Mostly, my elbows are really tender and my whole arm(s) are achy all the time. Amongst other body parts. I haven't found anything to make them feel better. Sorry I could not be of much help.

 

Trixie - March 7

My elbows are the very first body part to hurt when I got Fibro. I was told by many doctors that it was tennis elbow from lifting weights at the gym. Even though I lifted weights for years before and never had a problem. I quit lifting three years ago and still have major problems. Constand elbow pain, achyness, and stiffness and numbness from the elbow down. It's really bad when I'm using my computer mouse for too long. I know it's not from carpel tunnel either. I'm on Celexa and it helps my other Fibro symptoms about 50% but not at all for my elbows. Good luck in finding some relief.

 

mumsey55 - March 9

HI,

I am now having a huge flare up of FM and every part of me is in pain, including my arms. I just found this site last night and really love it and have gotten a lot out of it. I read your letter and am concerned about your medication. I am NOT a nurse or anything but I did look up your Zoloft and Ativan and from what I read, I don't think you should be taking both of them. They are both, more or less the same thing. Talk to your pharmacist and let him/her become your "Best Friend" about your medications. For a sleeping aid, you need something like Ambien. It comes in 5 mg and 10 mg. I started on the 5 and then needed the 10 but then I also have a sleeping disorder along with my FM. Also, I had never heard of Cesamet so I looked that up too, and couldn't find it. So I don't know what that is. Again, please talk to your pharmacist.

It is good that you are going to see a doctor at a pain clinic. He/she can get you straightened around with these medications. They can give you something to sleep and for pain and for anxiety.

I wish you well as you have a very long road ahead of you.

Joyce

 

jenny bawden - March 9

Hi there, I have started having alot of pain in my hips and couldn't walk a few weeks ago. It lasted for about a week and has since gone (typical). My knees are a constant pain but I cope with it. I have found over the years that I seem to get 'attacked' for a period and then it calms down before it erupts elsewhere... almost like reaching a plateau. Occasionally my ankles hurt as if they are made of broken glass.. but again it passes. I just keep smiling and wonder where it will appear next. I have had it for 15 years and survive on a daily basis (I am 57 yrs)

 

coffeebean - March 9

I am newly diagnosed with fibro and my elbows hurt bad too. They have been hurting for sometime now and they even hurt if they swip against something as well as constant bad pain. I too thought it was from the prolonged computer use because my left arm, wrist, fingers were sore as well. And yes the computer aggravates it more.

 

penelope - March 23

hi, i get the pains in my arms and its agony also i get terrible pain in my knees hope this helps

 

JozetteS - March 23

I am 33 and was also diagnosed in June of 06. My elbows were the main symptoms at that time other than all over pains. I have been taking vitamin b12 1000mcgs over the counter since July and my symptoms have improved tremendously. My neurologist suggested it since my b12 was low normal in a blood test. I now have it normal. I am not sure if it was from the b12 or that flare up just passed but I do think it makes me not have the extreme pain I had in the beginning. You might want to try it. You will need to take it for at least 3 months to get an effect. Good luck.

 

Jean Taylor - March 24

There is one of the 18 FMS points below your elbow toward the outside. If you feel around the area you should find a small section that hurts worse then the rest of your arm. I have that and it radiates down into my thumbs and first finger. Truthfully, all 18 of my points hurt like heck and I have that pain migration from all of them so basically my whole body hurts. This has been a progressive thing - just keeps getting worse. I do best when I don't do too much. I also use Ben Gay (Phew!) on most of my points along with the meds I'm on.
I also have a TENS machine (electrical stimulation) that will help for a while. I've had acupuncture but it made me so ill, I couldn't do anything for days but I'm not certain she was doing the right points for FMS from what I've read in the Mag. - "Acupuncture Today." Can't take SSRI's so am on Morphine and Lortab but on many days that doesn't even help. You just have to keep experimenting and find an understanding Doc. Good Luck!

 

Fantod - March 24

Hello avsfan16- I have quite a bit of trouble with my neck, shoulders, elbows and hands. The latest complication is pain in my fingers on one hand and the wrist. The pain especially at night is pretty terrible. I also get progressively stiffer as the day goes on. I am trying a homepathic remedy I posted on this board for stiffness caused by motion and it is helping. I have osteoarthitis in both knees and FMS on top sure doesn't help. As you probably know, FMS affects the tendons and muscles which brings me to my next point; bursitis. I have it in both hips and have had cortisone shots to deal with that. As I understand it, bursitis is pretty common in people with FMS. Are you seeing a rheumotologist? Typically, the drugs used to treat FMS fall into a specific category like Cymbalta or Amitrpytiline for sleep. Not too much else is effective to handle this particular syndrome. Which is why I am inquiring about the type of Dr. is currently treating you. See the post about the March 2007 Family Circle magazine on this board as well. Lots of good information there. I'm in my 50's and used to be pretty active. I can relate to your frustration. I am scheduled to see a pain specialist as I am quite sensitive or allergic to medication. I think you may need to reevaluate your current physician before seeing a pain specialist. To my mind this is putting the chicken before the egg. I want you to know that you are not the only one out here struggling with the symptoms of FMS.

 

Iori - March 26

avsfan16 u said that this pain starts in ur neck & then spreads down? have u seen a chiro for and adjust ever? when my neck is out of whack it causes me terrible pains down my back. it can cause numbness & tingles too. i think they call this pain referred. a deep massage of your neck might help u too.

 

swtmarie - July 13

I see this was written back in March but I am new to the site and this question came up when I searched cesamet. I was just prescribed cesamet for pain, i feel it only knocks me out but does not do anything for the pain. I work full time and can not take something that is going to make me zone out 24/7. Anyone have any suggestions!

 

Darlene Gallagher - August 1

I have used Ultram for 10 years and it works great for me....you may want to ask your doctor if you could give it a try. I hope the pain clinic you are going to is not a drug rehab clinic in disguise. You need to see a Pain Medicine and Physical Rehab Specialist. Darlene

 

thendria - August 1

Hi I am sorry to here about things.I am 31 and also just found out that I have Fibromyalgia myself but I also have muscle and joint degeneration.How did your problems start?Mine started after two bad car accidents in a row.One in '03 and '04.People like hitting me.LOL:)I have been to at least 10 Dr til I got an answer.I am on Lyrica and Flexiril right now and I am trying to keep the drugs down to a min. because this is a life long condition and things are not going to get better.I have read up on this condition a lot and nothing looks hopeful but you have to keep your head high and tell yourself that there is nothing that you can not do.:)I know the pain you are going through I have the same things and I also have loss of feeling and use on the left side of my body.Keep the hope and know that you are not alone and it will be a fight but isn't life.:)I hope that this helps you.

 

JERI817 - August 14

IT MAKES ME WANT TO WEEP WHEN I READ EVERYONES POSTS. I TOO HAVE PAIN IN EVERY PART OF MY BODY. PAIN IN MY HAND STARTED ABOUT 6 MONTHS AGO AND AN XRAY SHOWED CALCIFIC DENSITIES. GOING TO A HAND SPECIALIST FOR MORE INFO. I HAVE EVERY SYMPTOM YOU COULD IMAGINE AND FEEL DESPERATE AT TIMES. PAIN MEDS, MUSCLE MEDS...CAN'T TAKE SLEEP MEDS CAUSE I GET UP AT NIGHT TO GO TO THE BATHROOM, MULTIPLE TIMES. SKIN HURTS, ARMS, LEGS, HEAD, MUSCLE CRAMPS, ETC. I WAS DIAGNOSED AT 39, BUT SUFFERED YEARS PRIOR. READ IT WAS RARE THAT IT PROGRESSES, DON'T BELIEVE IT. IT FREQUENTLY GETS WORSE AND WORSE OVER TIME. MY ARMS HURT JUST WASHING MY FACE. DON'T MEAN TO DEPRESS ANYONE, JUST SO FRUSTRATED. MY DR. WANTS ME TO GO FOR THERAPY. CAN A PSYCHIATRIST STOP MY PAIN AND GIVE ME MY LIFE BACK? HOW DOES ONE LEARN TO LIVE WITH THIS PAIN..EVERY MINUTE OF THEIR LIFE? THANKS FOR LISTENING AND LETTING ME VENT :) JERI

 

lili - August 15

avsfan16, For the whole first 6 months or so, my upper body hurt so much I cried. It also goes down into my arms and wrists. I don't know about anyone else, but I have not had a good nights sleep in three years. I also take an SSRI. My doc insist it will help with my pain level. As for taking the zolot with the ativan, it's very common to take a SSRI and a anti-anxiety med together. I take Clonazapam as needed to help me sleep, on top of Lexapro. I think it's up to you and your doctor to decide what is the best combination. I also am about to begin an 11 week program at a clinic. It starts in a couple of weeks. I am hoping to learn some coping skills so I may continue to work and have a social life.

 

katvil - August 16

My pain is similar to yours, and I have numbness at times too, which the docs say could possibly be related to desiccated and herniated discs in my cervical spine as the result of a near fatal auto accident in 1988. In fact, they think that had a lot to do with my developing fibro, although of course no one's certain of anything.

I have the pain you have and pain all over my body, pretty much everywhere, but it does seem to be worse in my arms, neck, shoulders, chest, etc. I think this is from sitting at the computer and/or using my hands, arms and neck more than other parts of my body (lifting my arms to wash my hair, for instance, is excruciating). I have difficulty walking too, but not as badly as I used to.

I know how you feel that things seem to be getting worse fast because I have felt like that many, many times, but I always bounced back (meaning that I seemed to get to a point where my symptoms weren't as severe, and I thought I was "cured" or that the docs had made a mistake).

Unfortunately, the last time I was in that position, I tried to get off disability, because I didn't want to be a drain on the system and felt like, even though I worked myself nearly to death for years and years and paid into the system, that it would be wrong to take disability.

The job was so demanding and my boss such a bully, so critical, and I was working so many hours, I had to cut back on sleep, etc., and I became extremely ill, developed an arrhythmia and hypoglycemia, adrenal exhaustion, chondroitis and all sorts of new symptoms I never had before, and then was fired while I was in the hospital. This was two years ago, and I have never "bounced back".

So if you're working, apply for disability. That's my first suggestion. As for what you're taking for pain, none of that helped me and my pain kept getting worse, so the docs were giving me injections and now, even though I avoided them for years and years (since 1988) because I had heard to many horror stories of addiction, etc., I have to rely on opioids (hydromorphone, specifically) to deal with my pain. Some days, I don't take it at all, which is what I prefer, but other times, the pain is so severe every day for a week or so, I take it the minute I get up in the morning.

As for tests, there aren't really any for fibro; but there are some that can be done to rule it out or to determine if there are other things causing your symptoms.

Good luck.

 

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