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Is it true that motrin won't help fibromyalgia????
8 Replies
chucksusanandgrace - September 15

Hello everyone,

It has been a while since I have been on. I hope everyone is doing well. :-)

I saw my rhuematologist today (which by the way, I think she isn't too knowledgeable in the area of fibro).

I told her I responded to motrin somehwat for my costocondritis type pain. She said than the pain in my upper chest and back wasn't fibromyalgia. She said fibo doesn't respond to motrin or aleve.

Hmmmmm, is that true? I know you ladies/men can help me on this one.

Anyway, still waiting on a diagnoses. I'm frustrated, she is re-runing the lupus tests and I am getting a whole body scan for the costo and inflamatory arthritis.

I'm just sooooo wanting a simple diagnoses.

Thank all!!

Susan

 

deadgamegrrl - September 15

I'm new to all this but its my understanding that NSAID's like motrin don't do much or fibro b/c there is not really any inflammation. It's the pain receptor nerves that are transmitting faulty info. However, I take Motrin fairly often for headaches that don't seem to originate w/fibro and I also take motrin as well as MSM (natural anti-inflammatory) after working out. My theory is if I can head off any actual inflammation there is a less likely chance that the fibro will further exacerbate the pain. So far I'm having a fair amount of luck w/this approach. I do think that if the Mtrin totally gets rid of the pain it is probably caused by something other than fibro.
Good luck!

 

axxie - September 15

Hello chucksusanandgrace, no motrin or aleve will help much with fibro. I tried them all, and all failed at one point. You may have fibro and have other pain that will respond to motrin or aleve, but at one point it just won't.

Fibromyalgia Treatments
While a lot of fibromyalgia treatments are available, you'll likely need to experiment with different options before you find what works best for you.

Fibromyalgia treatments include:
Prescription drugs
Complementary/alternative treatments, including massage and physical therapy, chiropractic, and acupuncture
Vitamins and supplements
Moderate exercise, but only if done correctly

Lifestyle changes, including diet, stress management, and pacing
Every case of fibromyalgia is different, and no treatment works for everyone. You'll probably need to work closely with your doctor to custom tailor a treatment regimen that helps you become more functional. Many people benefit from a multidisciplinary approach, which involves several healthcare providers.

Prognosis for People With Fibromyalgia
Fibromyalgia is a chronic condition. While some people do experience long remissions, no one who's had fibromyalgia can truly say they don't have it any more.

As for the progression of the illness, it's hard to say whether your symptoms will get better or worse with time. Because fibromyalgia isn't degenerative, its course isn't clearly established like it is for many diseases.

Some experts say about a third of us will get worse, a third will improve significantly, and the remaining third will stay about the same. Some studies have linked early diagnosis and treatment to better long-term outcomes, but other than this it's unclear what role treatment plays in the progression, or lack thereof, of fibromyalgia.

Fibromyalgia & Overlapping Conditions
As if all this weren't enough, several other conditions frequently go along with fibromyalgia. Researchers aren't sure whether one condition leads to another or whether they have related underlying causes. Becoming familiar with the symptoms of these disorders can help you determine whether you have more than one.

Overlapping conditions include:
Chronic fatigue syndrome
Irritable bowel syndrome
Temporomandibular joint syndrome (TMJ)
Multiple chemical sensitivity
Myofascial pain syndrome
Restless leg syndrome
Costochondritis (chest pain)

History of Fibromyalgia
Doctors coined the term fibromyalgia (fibro –- meaning fibrous tissue, my -– meaning muscle, and algia -– meaning pain) in 1976, but it wasn’t until 1990 that the American College of Rheumatology developed diagnostic criteria. While muscle pain is the primary symptom, research found that nothing is wrong with the muscles themselves. For a time, researchers thought it could be an autoimmune disease, such as lupus or rheumatoid arthritis. Now it’s widely believed in the medical community that a malfunction of the central nervous system (called central sensitization) causes fibromyalgia, leading to new research into treatments and new hope that fibromyalgia will be not only more treatable, but perhaps even curable.

To date, three drugs -- Lyrica (pregabalin), Cymbalta (duloxetine), and Savella (milnacipran) are FDA approved for treating fibromyalgia, but other drug trials are in the works.

Thyroid, hormones and good sleeping pills, can help throw in the mixt a derative of opiods, and some lifestyle change and lots of rest, is about what works for fibro.

Good luck to you. I do hope you tell us what you think and what you are doing for your fibro. We are always in the lookout for new possibilities.

 

Stacey373 - September 15

Hello Susan - I have to agree, Motrin doesn't work for Fibro pain. But the chest pain could be caused by some sort of inflammation and that's why the Motrin is helping. And it will also help with the arthritis stuff.

It's very possible that you are dealing with more than just one problem. It could be fibro plus other things that are causing all of your pain and problems. I wouldn't discount Fibro completely...I would more likely think that you are dealing with more than one thing.

Occasionally when I get a headache, I will take Motrin and it helps. My doctor explained to me that the reason it is helping is because what's happening in my neck is it gets inflamed and then pinches down on a nerve. Therefore, the Motrin works because it causes that inflammation to go down and then it's not pinching on those nerves anymore and my headaches go away.

If you don't trust what your doctor is telling you, since you don't think she is very knowledgeable with Fibro, I would try seeing a new or different doctor. If your doctor doesn't know much about Fibro, how can she treat your symptoms the right way?

Take Care, Stacey :o)

 

chucksusanandgrace - September 16

Thank you so much for all of your detailed and informative ideas. I sincerely appreciate them. I'm not sure if I do or don't like my rhuematologist I think I am more just plain losing hope in the medical profession because I am really not getting clear answers.

I think the frustration might be more my part, then hers. She is actually doing a full body scan and does not want to say Fibromyalgia until she is completely sure. So I am grateful.

My biggest concern is that they (meaning the neuro and rhuemy) have both really pushed neurontin for me. I understand that they really want to help but I can not take that because I had a history of seizures 30 years ago. I am really concerned about taking anti seizure meds because what if it triggers something when I go off it. Also, I am not comfortable taking it if they don't know what is wrong with me.

I realize that this can be a standard of what to get.

The burning that I get does not subside with motrin. Just the chest pain that I get (the cosco).

You all have asked what has helped me. I will share my thoughts on another seperate post.

Thank you again for your lengthy replies. I do appreciate them very very much.

Hugs,
Sue

 

Fantod - September 18

Yes - that is true. The type of pain caused by Fibromyalgia (FMS) only responds to certain classes of prescribed medication. Motrin, Aleve, Tylenol etc are not effective. Long term exposure will only damage your stomach and liver.

The most effective way to treat FMS is by using prescribed medication. The longer a chronic pain cycle continues, the harder it becomes to manage or stop. By refusing to use prescribed medication you are only setting yourself up for more problems with increasing serverity over time. My recommendation is to use prescribed medication to get your symptoms under control. Once you have established a plateau where your symptoms are generally reasonable than begin to see if you can cut down the dose and/or make a substition with a homeopathic remedy. Take care.

 

lucky13 - September 20

My rhuemy believs that advil and alieve style drugs do not help with Fibro pain (like others suggested the pain you were having in your chest may not be fibro related), When I was diagnosised I was also trying to get pregnant, so my rhuemy said to use Tylenol Athritis (stronger mg) to help take the edge off the pain, and it does help.
I am pregnant for the 2nd time since my diagnosis and Tylenol is the the strongest thing I have taken. For me, I am able to manage my pain with Tylenol (when needed during flares) and Yoga. I try not to push my self too hard and I started keeping a journal of daily activites (what I do, eat, how much rest I get ect.) so I can try and see if there is anything that contributes to my flares.
Just remember fibro is a tricky thing, there are so many problems associated with it, yet not all our problems we have are always because of it, they can be totally unrealted, for me that's one of the hardest things about fibro, I am always wondering if this problem or that problem is because of fibro or something else.

 

kvc33 - September 20

chucksusanandgrace- I have to disagree with the doctor and the others who have said that Aleve and Motrin can't help with fibro. It helps me but my fibro is mild and I only get a few hours of relief. I can certainly imagine that it wouldn't even touch most people's pain.

 

Canada17 - October 1

NSAIDs are really good for inflammation and since Fibro pain isn't considered to be caused by inflammation, that is why you are being told motrin doesn't help Fibro. But, there are many different causes and effects of Fibro.

A lot of my pain is attributed to muscle spasms. NSAIDs do help with that. I was taking Naproxen but stopped out of fear of what long term damage I will do to my insides being on it.

Also, I get pretty bad headaches (muscle spasms in my neck) and Advil Liquid Gel capsules are the only thing that help with that.

You can also have other issues, like arthritis, that are amplified by your Fibro, that may respond to NSAIDs.

Fibro doesn't just cause pain, it amplifies it too.

 

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