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Information to take to Dr.
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fibrochica - October 12

I am seeing my Dr on Wed. and I am making my list of questions and requests. I feel this appt will either be start of true treatment or the end for us. I had called him on Friday as I was in the 2nd day of a bad flare - his advice- take ibuprofen and Tylenol together and up my amytriptoline to 100ml at bedtime. So I want to be prepared for this appt and I am wondering if anyone can suggest what I should take for documentation on FMS and where to find it?

Thanks in advance for your suggestions

 

axxie - October 13

Hello fibrochica, I'm glad you are looking for answers to take to your primary doctor. As you know you have to be part of your health care team.
#1 rule, ask for copies of all of their reports for your own records.
#2 rule, write everything down, take detailed notes, or carry a tape recorder to your doctor's office or therapy session, that way you will not forget anything. It helps when you do that, I find the doctors are then more focused when they speak to you, if they get to technical, slow them down and ask them politely to use lament words that you can understand.

Remember you need to take responsibility for your own health, I don't want you to assume the blame for your illness, what I mean is achieving a good report with your health care team.

Ask your doctor to do a complete physical evaluation and address any problems, if the physical has already been done, then ask them about the problems you are having, (it helps if you have a list of things to ask the doctor). Try to limit your questions to three items that you would like addressed, so that no one will feel overwhelmed with your issues.

If you find your flares up are the part that is the worst for you, please describe to your doctor how it feels when you have one flare episode. Example: My body feels like it's on fire and I'm super sensitive to the pain and it can last an a few days, where as when I'm doing well, I will not feel the fire burning throughout my arms, legs.

When describing your pain, use words, such as pulsing, throbbing, pounding, shooting, prickling, stabbing, burning, sharp, intense, unbearable, spreading, hot, agonizing or toturing, this best describe the type of intense pain you are having when you are having a flare or just are.

Describe your pain and then add if it brings other symptoms along, such as vomiting, shaking, distracting, not able to concentrate, this helps the doctor know how you feel.

Explain to him that you are a work in progress and ask him, do you believe me when I explain to you the kind of pain I'm in.

Ask him if it would be possible to be referred to a rheumy or a pain specialist, explain to him that you would feel better knowing your request are being met.

If you have side affects with the medication you are taking, you must tell your doctor, explain that you are having these symptoms, and ask if it's a major concern and if not, ask him to explain the difference.

Bring with you, a detailed list of all medications, vitamins, and healthcare preparations you are using for any reason and dosages.

Bring a detailed, thorough medical history of yourself and your family, for example, you may remember your mother talking about her thyroid disorder or your early growing pains.

A list describing changes in your appetite, diet, weight, sleep patterns, sexual interest, ability to concentrate, memory and your bowel and or urinary habits.

A detailed list of your symptoms, when you had them, and for how long, include what helped if you took something or suggest maybe a new drub you have read about that has a good report with treating FMS and don't forget to explain what makes your symptoms or flares worst.

A detailed account of your diet, use of caffeine containing substances, (coffee, tea, chocolate, soft drinks), use of alcohol, and any smoking habits.

Realize that you may try many different kinds of medications or in combination before you find the right balance.

Lastely, ask him if you can count on him to help you, and that believes that FMS and CMP are real conditions. Some doctors are clueless and don't know anything but are willing to learn, that is when you bring, timbits of information about what FMS is and how it's treated.

Good luck to you and remember if you are feeling nervous, why don't you ask a friend, a relative to go with you, to your appointment. They may stay in the waiting room, just knowing you have someone give you strentgh to do well at your appointment.

Don't for get to report back, we care. Good luck, we know you can do a great job in representing yourself to your doctor.

Sandrivers

 

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