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jesskin - December 17

I am 20 years old, I was diagnosed with fibromialgia when I was 11 by the "Fibromialgia Expert" Dr. Paul St. Amand in California. I know I have had this disease since birth. I remember being in pull ups and waking up my mom in the middle of the night crying screaming in pain that wouldnt leave my legs and arms. I have had frequent fibrofog ever since I can remember.
I am one of 6 kids, my mother is a carrier as well as my grandmother. two other siblings of mine also were diagnosed the same time i was. (you typically tend to pass it on to 50% of your offspring). I wish I didnt have this, but I know its how life is.. and I have to accept it and not let it bring me down anymore. I just need to know healthy, natural alternatives for coping with this kind of pain. I should have more energy than this being so young, but I literally feel like an 80 year old lady with hip and back problems. I am constantly stiff and have the worst short term memory.. some people in my life cant accept the fact that I am different.. that I need more sleep than others.. that I heal slower than the average person.. that I feel good or bad according to the pressure outside... it is very frustrating when you are taken for granted knowing the pain you have to undertake to do something can have such an affect on you the rest of the day or even the rest of the week..

I need a solution to this.


kimzsoa - December 18

wow...sorry to hear that all. My mom seems to think she has it as well, and I have 6 kids, 3 boys, 3 girls ages 28, 25, 16, 15, 12 and 10...So far so good for them though. I heard Meloxicam is not suggested for Fibro. but it makes my joints feel soo much better and I wake up feeling 48 again instead of 88, can still jog etc. although have slowed down just a bit this past yr. Thought it was due to altitude, lol. Moved from Houston to UT but the pain just began about 4-5 months ago. My new husband says it's like someone coming home from the war...they get PTSD that I am out of the war to speak, out comes the pain. Going to counseling and it helps.

I cannot tolerate SSI drugs and don't want addictive ones and Gabupentin is supposedly good but made my feet, ankles swell up like an elephant so all I use now is meloxicam and tylenol which makes life much more bearable.



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