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I think I have fm,my gp won't commit himself?
3 Replies
helen65 - January 21

I had surgery on my chestbone 18 years ago,I ended up with an infection in the wound which resulted in more surgery and 18 months for the wound to heal.Everything has been fine untill 2 years ago when I started to get severe chest pains,I had an ecg and that was ok,I still kept getting the sudden chest pains now and again which filled me with terror and also shoulder and neck pain,muscle spasms in my upper back,I was back and forth to my gp,I had a chest x-ray which was ok,my gp said it was prob a bit of athritis,but I said my mother has that but not with chest pains!!.after 18 months I insisted on a ct scan which my gp would not agree to as I was convinced there was something really wrong in my chest area and no clear answers,so I had a private one done £500,which came back normal which was a relief,but still not any answers?I then looked up on web and all my syptoms match that of fm,I put this to my gp 6 weeks ago as I was on the verge of insanity and sick of all the different painkillers which some days never even touched the pain,and he said ok I'll go with that very matter of fact! he gave me amyltriptyline for 4 weeks,there was an improvement but when I went he said he was still on the fence with the fm,and thought It could be just stress all the pain!!!I stopped taking them but within 4 days the pain was worse again,so I have started taking them again but the pain is bad again,so did they work or was a having a good month if I have got fm,or do I not have it anyway? In the last few weeks the pain is now in my upper back and my legs I feel like I have been run over sometimes,how can I get a diagnoses before I go mad.I am 44 and just want my normal life back....

 

Fantod - January 21

Hi Helen - It sounds like your doctor is one of the many who still do not believe that Fibromyalgia is real. We have lots of them on this side of the pond too. I think that your symptoms sound like you may have it.

Fibromyalgia (FMS) is a disorder of the central nervous system that causes widespread pain. There is no cure but it can be managed with medication. Only certain classes of prescribed medication are effective for the type of pain associated with FMS. Fibromyalgia is recognised by the Center of the Disease Control and the National Arthitis Foundation in the USA.

Part of the reason you are in so much pain is due to lack of restorative sleep. FMS interrupts the deep sleep cycle with short bursts of high intensity brain activity. Your muscles need deep sleep in order to repair themselves from the days activities. No deep sleep means higher levels of pain which rapidly becomes a vicious circle. A sleep aid like Amitriptyline is a crucial part of managing FMS pain. Stopping and starting medication when dealing with chronic pain is never a good idea. It may take time and/or a higher dose to catch up with the pain cycle again. It does take time and a lot of tinkering to find the right combination of medication and doseage to manage FMS effectively.

Diet is also very important. You should not be eating any deep fried foods, lunch meat (nitrates) or using anything with an artifical sweetner. All of these items will probably increase your pain level. Stevia is recommended as a replacement for artifical sweetners. It is made from a plant and is nontoxic. It is available in the grocery store here. You may be able to find it in a health food store.

The longer a chronic pain cycle goes on, the harder it is to stop or manage. If you have chronic pain specialists there, that would be my first choice for treatnment since your gp's treatment plan thus far has been ineffective and noncommittal.

You can order "Fibromyalgia for Dummies" online through Amazon. Like the rest of the series, it is a pretty good book for the basics. Keep in touch - we are here to help. Take care and God Bless.

 

Fantod - January 21

I added an additon to my first comments which for some reason did not post. Here we go again...

There are now three primary prescribed medications to treat FMS. Cymbalta is an antidepressant which treats both the pain and depression that usually accompanies FMS. Lyrica is heavily promoted on the telly here in the US. The most common side effect seems to be rapid weight gain. I don't think either of these medications are available to you.

The third option was finally approved for use in the USA last year. Savella has been used in Europe for decades. It should be available to you as "milnacipran HCI" tablets. With a prescription, you should be able to find it at any chemists shop.

I hope that this additional information is useful to you in some way. Take care.

 

Duo - February 28

Hi Helen - You have my sympathy. I have been backwards and forwards to the doctors for thirty years - I am now 60 - and insisted on seeing a neurologist as not only do I have widespread pain (including severe chest pains) I have unbearable migraines and blurred vision. He looked at my medical "paper trail" and diagnosed Fibro. straight away. He has done MRI scans to eliminate M.S. etc. and am waiting for results. My only advise is to keep pestering your G.P. because on numerous occasions in the past I suffered in silence thinking my G.P. felt I was some kind of hypo. !! Good luck (I have found great relief by the way with an adjustable bed and memory foam mattress - it really doe help not to have to lie down flat at night.) Duo

 

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