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4 Replies
slozano - December 18

I was diagnosed with fibromyalgia last March. My insurance at work paid for the doctors until I was diagnosed. Now I have to pay for my appointments but I haven't been able to go lately as I can't afford it. I have been having terrible flare ups and I don't really know what to do. My NHS doctor didn't beleive in fibromyalgia so I don't know how to get help. I sometimes think is not worth to see any doctor as I haven't improved since I started seem them. Have any of you improved with help of your doctor?. Thanks a lot for all your help

 

JJ1 - December 18

I definitely improved with the help of a doctor. What did your doc do for you up unitl now? Are you on any meds for fibromyalgia. I was greatly helped with Elavil (amytriptyline in generic form) but once you are on meds it is important to go back to the doc so they can monitor your condition and do blood work. I really don't understand how your insurance only paid until you were diagnosed. Do they have some sort of exclusion for fibromyalgia?

 

JJ1 - December 18

Just wanted to add that the doctor I see is a rheumatologist.

 

slozano - December 18

Hi JJ1, thanks a lot for your quick reply .I am also taking amytriptyline which made my condition improve but now I am starting to feel worse. My work insurance only covers treatments until a diagnosed, once you are diagnosed they don't pay for further treatment. I leave in London and I haven't been able to find a doctor under the National Insurnace who knows enough about fibromyalgia, it makes me feel like a freak.

 

JJ1 - December 18

Wow! That insurance sounds messed up. Is that true with all illnesses or just Fibromyalgia? Like, if you had cancer, would they only pay until you are diagnosed and not pay for treatments? I know my dosage of amytriptyline has changed over time. Maybe you just need a dosage adjustment, but if you are taking it you really must see a doctor for follow ups. I know nothing about the British medical system so I can't help you there (but I thought you had a socialist system where medical care was free -- is that not true?).

 

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