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I need everyones advice!!!
5 Replies
bella007 - December 8

I was diagnosed about two weeks ego after years of suffering,today my doctor wants to put me on Lyrica ,very low dose to start, this is my first meds for fibro, I need some feed back ,did anyone get any bad side effects?? I am worried about puting on weight after I read what amatripaline does.


Virgie - December 8

Hi bella007, I've justed started taking LYRICA (fourdays now). I'm mainly taking it for my degenerated disc problem. Its working good for that. It helps the nerve problems. Now as for fibro pain I think it does something since I have been pretty active lately and have had a flare today but haven't been to bed. The weight gain my understanding is the swelling that occurs when you start but is supposed to wane away. If you read me roaring like a huge canadian bear then it hasn't waned but so far I don't feel puffy. Maybe because I also take water pills hydrocholorthiazide (whew) Love to hear how you're doing on it. Take Care!


larry - December 8

This is gonna be a long post but it can help you tremendously. There are 6 components to addressing this syndrome and unfortunately most doctors don't get pass the first stage component. One of the fastest and easiest thing you can do is to read this article and ask your doctor to work with you this.........Are All Chronic Fatigue Syndrome/Fibromyalgia Patients Low Thyroid? …………………..
There is mounting evidence that hypothyroidism is present in the majority of and possibly all Chronic Fatigue Syndrome and Fibromyalgia (CFIDS/FM) patients. The problem is that standard blood testing that consists of TSH, T4 and T3 does not detect it. Thus, many CFIDS/FM patients are erroneously told over and over that their thyroid levels are fine. TSH is secreted by the pituitary in the brain, telling the thyroid to secrete T4, which is not the active thyroid hormone. T4 must then be converted in the body to the active thyroid hormone T3. When T4 and T3 levels drop, the TSH should increase indicating hypothyroidism. This is the standard way to diagnose hypothyroidism. There are, however, many things that result in hypothyroidism but are not diagnosed using the standard TSH and T4 and T3 testing. This method misses thyroid problems with CFIDS/FM patients 90% of the time. ………………………….

First of all, there is clearly pituitary dysfunction in these diseases from a variety of causes, including viruses, bacteria, stress, yeast, inflammation, toxins, pesticides, plastics and mitochondria dysfunction. This results in low normal TSH levels along with low normal T4 and T3 levels. Very few doctors understand the significance of this and incorrectly state that the thyroid is fine. In addition, most Chronic Fatigue Syndrome and Fibromyalgia patients do not adequately convert T4 to the active T3, resulting in low levels of active thyroid hormone and suffer from low thyroid despite having a normal TSH. Also, there is another problem in that T4 cannot only be converted to T3, but it can also be converted to reverse T3, which is inactive and blocks the thyroid receptor. Very few practicing physicians consider this, but it is a major problem. ………………….

There is an evolutionary enzyme that increases the T4 to reverse T3 in times of stress and illness. This worked well for our ancestors because in times of famine it allowed those who had this enzyme to survive. But in our modern society, reverse T3 works against us causing fatigue, difficulty losing weight, brain fog, muscle aches and all the other symptoms of hypothyroidism. Reverse T3 can be increased with chronic illnesses such as CFIDS/FM, yo-yo dieting (often responsible for the quick weight gain after losing weight), stress, heavy metals and infections commonly present in CFIDS/FM. ………………..

Low thyroid not only results in undesirable symptoms, but it also increases the risk of heart disease and cancer. When more extensive testing is done, these patients are so relieved to be shown on paper that their thyroid is truly low and that they can expect to be feeling better soon. There are only a few labs that can accurately measure reverse T3. It is difficult for labs to do and many labs will erroneously indicate normal or low levels of reverse T3. Some doctors that have ordered reverse T3 on patients have found it not to be useful because they are not getting accurate results or they don't know how to interpret the results. In addition, there is also a thyroid resistance syndrome found in these patients, meaning that there may be thyroid in the blood but there is no thyroid effect. This has been discounted in the past, but more and more evidence is surfacing proving that this is indeed a significant problem with these conditions.

The combination of factors present in CFIDS/FM, including pituitary dysfunction, high reverse T3, and thyroid resistance, results in most, if not all, CFIDS/FM patients having inadequate thyroid effect. T4 preparations such as Synthroid and Levoxyl rarely work and Armour thyroid, a pig glandular product, is somewhat better, but definitely not adequate for most patients. The treating physician must know when to use a T4/T3 combination or straight T3. T3 works the best for many of these patients, but Cytomel, a very short acting T3 available at normal pharmacies, is also a poor choice because the varying blood levels cause problems. Compounded timed release T3 is usually the best treatment. …………………

However, to achieve significant improvement, the treating physician must be very knowledgeable about T3 and must realize that when on T3, standard bloods blood test will lead one to dose incorrectly and not obtain significant benefits. Doctors trained on how to use thyroid with CFIDS/FM patients cannot believe how effective it is when used properly. This includes doctors who previously felt that they were thyroid experts and had been using thyroid with CFIDS/FM for a long time. Ultimately, it is the expertise and dosing of the T3 or T4/T3 combinations and the makeup of the medications that determines the patient outcome and success of treatment……….Dealing with the thyroid is just a small part of reversing and curing this syndrome, however it is a fast way to get you stabilized. You also have to consider addressing the neurotoxins in your body as well, a cause of Chronic Fatigue Syndrome/Fibromyalgia. Good luck, you can do it.


bella007 - December 8

Hi Virgie! Thank you for writing back, I didn't buy Lyrica yet, I first wanted to get everyones input, I am worried about swelling and looking like a canadian bear, I am only 5 feet tall.


teresat - December 8

I took Lyrica for many months & I didn't experence weight gain, but I had problems with bruising! The doctor took me off & out me back on Neurotin. Lyrica was also very expensive!!! I do think it helped me though. Virgie you still here? I got your e-mail & YOU ARE SO RIGHT!! I hope that somethhing is done SOON!!


CarrieLee - December 13




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