New to the forum?

Sign Up Here!


Already a member?
Please login below.





Forgot your password?
Need Help?  
I'm a man recently dx w/ "probable" fibro.
5 Replies
guateboy34 - December 30

I am a 32 year old man recently diagnosed with "probable" fibromyalgia after 7 months of other tests that came up negative. I was told it was probable because I only had 6-7 of the tender points- but because I am a man it was not unusual to have different symptoms compared to women. I have had tingling in my head, neck, and arms for 9 months now. Muscle aches and cramps in my neck and hamstrings. I had to go to physical therapy for the spasm in my neck. I had an MRI done on my brain and neck only to show some minor arthritis in my C3-C6. I have some sleep apnea that will be treated soon, and believe it or not, I have had bouts with hot flashes in my head and gut area. Sometimes the tingling will actually cause "tempurature" changes in the areas affected by the tingling like I had applied Ben Gay. All test come up negative for any type of infection or disease including MS. I have "adrenaline" rushes frequently when trying to go to sleep with the sensation like I cannot breathe through my nose. This is very freaky when this happens. I get muscle fasciculations (twithes) all over my body from time to time when I am at rest. I do not have the classic "pain" that so many talk about but are more like aches you experience from a good workout, therefore I have doubted a bit my dx from the Rhuematologist and nuerologist because of that as my symptoms always seem more nuerological in nature. However, I have been told and read that the Fibro experience is different for men than women but without explanation what those are. Any help from other men will be appreciated. I have been on Gabapentin 100 mg 3 times daily and 10mg of amitrypline at night for sleep for the last 3 months. Not sure if the gabapentin has done anything at all. Thanks.

 

Noca - December 30

300mgs of Gabapentin is an EXTREMELY low dose. The usual dose is 900mgs-1200mgs+

 

guateboy34 - December 30

yes it is. They started me on a low dose becuase I am usually pretty sensitive to medicine and it seemed to work for a good month and a half so I think they will up my dose now when I see them in a few weeks.

 

guateboy34 - December 30

Can anyone tell me how fibro differs in men?

 

Fantod - December 31

I have a few comments about your situation. Your dose of Amitriptyline is way too low to be effective. I am also sensitive to medication so I understand why your intial dose is so low. Ask to have that adjusted to at least 25mg.

Have you been tested for a Vitamin D deficiency? That can be done with a simple bood test. You should also consider being tested for gluten sensivity. It is entirely possbile to be sensitive to gluten and not have full blown celiac disease. The most accurate test is done using a stool sample. Both of these would cause widespread pain.

And finally, I'd like to suggest that you consider seeing an MD that has a degree in holistic medicine. They are typically refered to as a "functional medicine specialist." Some take insurance and some do not. You have a lot of things going on which I don't believe that conventional medicine can effectivley address. If you don't fit in the conventional medicine "box" than no one knows what to do with a patient like you. Get copies of all of your most recent bloodwork and other tests to save time and money. The longer a chronic pain cycle goes on, the harder it is to stop or manage.
Good luck and let us know how you are doing. Take care and God Bless.

 

Canada17 - December 31

I will have to to disagree that your dose of amitryptiline is "way too low to be effective".

I too am extremely sensitive to chemicals (including pharmaceuticals) and my doctor gave me 10mg at bed. The two weeks I was on this medication I slept so soundly every night from the first time I took it. My husband even commented that I didn't toss and turn at all, in fact I would wake up in the exact same position I fell asleep in. I also woke up so refreshed, I didn't ache and wasn't as grumpy. I was actually able to wake up, get out of bed, and get going right away, I no longer required an hour to wake up.

If the 10mg dose is working for you, I wouldn't increase unless you start to develop a tolerance to it and no longer get the desired effect.

Though this medication worked so wonderfully in helping me to achieve deep sleep, I had an allergic reaction to it. I developed pimple-like blisters on my hands that were itchy and sore and were leaving scars. When I stopped taking the medication they went away and so did the scars.

Many people with Fibromyalgia have a Vitamin D deficiency, however because our FMS makes us more sensitive to changes in our body than those without FMS, sometimes conventional testing for it does not show anything "abnormal" because these tests only scratch the surface. You should be tested but keep in mind that you may require a Vitamin D supplement even if the test shows that you are not below the "normal" range.

I would recommend checking out the Diet forum on this website (if you haven't already) for elimination diets that may help to reduce some of your pain.

I think the main difference between men and women with FMS is hormones. I know my hormones play a role in the severity of my symptoms and that is very evident every 26 to 28 days. Men have different hormone levels than women so I think that may play a big role in the way you experience your symptoms. I am sure there is more to it, probably the overall structure of our bodies and the way our brains are wired have an effect as well. Considering so little is known about FMS and the fact that 80% of all FMS cases are in women only makes the mystery of male FMS that much deeper.

You said that you have doubted your diagnosis because your symptoms seem more neurological in nature. You may be interested to know that research has shown that FMS is a neurological disease, that our brains actually function differently than that of a person without FMS.

It is important that we trust our doctors because a lot of our treatment is based on trial and error. You are entitled to a second and third opinion if you feel the need. The more you know about your FMS the easier it will become for you to manage it. That being said, if you have FMS, doubting your diagnosis will only undermine your treatment of it which will only lead to more suffering.

I wish you luck in finding treatments that work well for you. It can be a long process but the efforts are well worth it.

 

Message:


You must log in to reply.

Are you New to the forum? Sign Up Here! Already a member? Please login below.

Forgot your password?
Need Help?
Ask a Question