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I have just been dignosed with Fybromylagia!
6 Replies
SnowBear72 - December 30

I have been diagnosed with Fybromalagia. I went to the doctors today and had the test done and she said she's pretty sure that's what I have. blood tests to rule out other diseases such as lupus Rheumatoid Arthritis which I have no symptoms. So we think It's fibro. If anyone has any advice for me It would be appreciated! Thanks!

 

Fantod - January 1

First of all, have you read through all of the information on the lefthand side of this page? You need to become an educated consumer. Did you know that both the Arthitis Foundation and the Center for Disease Conrol (CDC) both recognize FMS as a bonafide health issue?

YMS is a short circuit of the central nervous system. The mechanism that causes it is not understood and there is no cure. It can be managed with medication, plenty of rest and stress reduction. Living with chronic pain is debilitating and demoralizing. Most of us feel as though we have a bad case of the flu 24/7. Coping with daily living demands and high levels of pain Makes it very difficult to manage anything.

Part of FMS is the inability to get restful sleep. You may sleep a lot but wake up feeling unrefreshed. Because of the deep sleep cycle interruption, your muscles have no time to repair themselves from the prior days exertion. It is a vicious cycle and only gets worse the more you push. This is a hard lesson to learn. Believe when I say, being overextended only leads to more FMS related issues.

You are in the early stages of figuring out which medications may work best for you. You should be seeing a rheumotologist for treatment. You can find a FMS friendly rheumy by going to the National Fibromyalgia Association website and ask them for a referral in your area. Bear in mind that medication will ease the pain but it will probably still be there on some level.

Diet is very important. You should be focused on a high protein diet. Do not use any artifical sweetners or diet pop. If you need a sweetner, try Stevia which can be found at any decent health food store. Diet anything will make your pain level worse. Also stay away from processed lunch meat and deep fried foods for the same reason.

I hope that my comments are useful to you. Take care.

 

SnowBear72 - January 5

yes I have read. what is a bonafide health issue? I'm on the diet. and having fish, rice, chicken. I have stayed away from sugar the I have had some pieces of some power bars so I can have some energy. doesn't seem to work. I picked up this cappachino drink it has no sugar but has spelda sweatner. I guess that is no good then? I'm going to see a rheumotologist in feb that's the earliest I could get an appoinment. ::( Thanks for the information!

If the food i'm eating is the wrong stuff could you tell me what I should be eating and what I shouldn't. Could you give me a list? Thanks in advance!

 

Fantod - January 5

Hello SnowBear72 - The reason I said that fibromyalgia is a bonafide health issue is that many people including some medical professionals still do not think it exists. It can be very difficult to find a doctor who wants to treat it, and properly. There are plenty of stories on this site about that subject.

As far as your diet goes, I'd stay away from Splenda too. I've found that any artifical sweetner ratchets the pain level up. Fish, shrimp, chicken are all good sources of protein. I start the day with a drink that has 17 grams of protein in it. I eat small meals spread out during the day so that my blood sugar stays fairly stable. Quick fixes like candy, and coffee may relieve fatigue too but then you crash twice as hard once the sugar/caffeine buzzz wears off.

A big part of dealing with FMS is listening to what your body is telling you. If you notice that something you have eaten doesn't make you feel good, eliminate it from your diet. If you are really pushing to accomplish something and your body is telling you to stop - respect the messenger and stop. If you don't feel up to a social event, learn to say "no thank you" gracefully and not feel guilty about it. FMS subjective, it is not like a broken leg which everyone can empathize over and plainly see for themselves. People think you don't "look" sick therefore you must be selfish or lazy. It is not a matter of being selfish, it is about self preservation. One day of overdoing it can lead to days or even weeks of problems afterwards.

Right now, since you are not on any meds for FMS not much is going to help with energy. FMS disrupts the deep sleep cycle. Chronic fatigue is only partially relieved by medication and is one of the *perks* we have to learn to live with daily. There are good and bad days with FMS. It will take some time to figure out what combination of meds work best for you. In the interim, you should rest as much as possible, try to remove or limit sources of stress from your life and be grateful for even the smallest things that you can accomplish.

Good luck with your upcoming appointment. Keep in touch and let us know how you are ddoing. Take care.

 

january - January 5

"Just found Out"
Fibromyalgia won't kill you and thank God for that. But, you will have good days and bad days. I have found some relieve from water arobics and yoga. Drinking lots of water will help flush out your body and the acid build up. Stay away from anything that is not natural don't drink pop/soda
use stevia as a sweetner it's all natural. Caffine shouldn't be used either, I must confess I do drink coffee only on Sundays when we go out for breafast.
You'll find that on good days you can do more things and on bad day just getting out of bed feels like it going to kill you but it won't it just hurts real bad until you get moving and moving is the secret. You must exercise and keep limber or you will seize up and it will take a few minutes to get going but move.
I have head of some people having to use a wheel chair or real heavey duty medications. Today I spoke to a woman who was at the pool who is on Morpheen.
Keep your diet clean only eat what God has made!!
I am looking into chelation therapy and I will be posting my info.
Take time for yourself and have some time for yourself. I am trying to learn this myself.
January

 

Anne Hillebrand - January 6

If you have heartburn with your FMS, try this trick - cut out tomatoes in any form, soft drinks and acidy fruits.

Put a little baking soda in your drinking water and tea.

Block out all light and sound and you will sleep better.

 

SnowBear72 - January 6

Thanks guys. I too noticed some Doctors won't believe in it. It's horrible it is real. we are not crazy or making these symtoms up. There are people with real pain. Thanks for the info. I felt a bit better last night. I got a moist heating pad. I also took a hot shower. As soon as the hot hit me I HAD NO PAIN. of course it wore off. Maybe I could just sleep in the shower. LOL i wish. Right now I have been living on chicken and rice. I love Fish and shrimp so i will eat that. Mostly I have been having breakfast and supper. I have been sleeping a lot and miss lunch. I'm Drinking water and cranberry juice Orange juice too. am taking fish oil vitamins? I'm walking just a bit doing stuff around the house. At the moment excessive does not seem to help in time I hope it will.

I also suffer from Extreme Panic and Anxiety attacks since I was little I'm on meds for that. This past year it's gotten worse I could not figure out why but I now know that Anxiety is a symtom of Fybro.

I am worried about all the other diseases Fybro can cause. I worry about too much that has a lot to do with the Anxiety the fear. I'm just going to forget about it. Other wise I'll drive myself crazy.

 

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