This is a doublepost, but I answered the question on the wrong thread!
Please fogive my tired, confused little brain!
Cymbalta was an absolute nightmare for me. For some reason I let my doctor talk me into trying it a second time, but I hated it, and the withdrawals were the worst of anything, including Oxycontin!!! Both times I took it, it took away my emotions - I felt "dead" in the head. It also gave me back spasms both times, which I thought was a bizarre thing for a drug for fibro!! Lyrica made me way too hungry, and people gain as much as 30 lbs in a MONTH taking it. It made me REALLY depressed, so I stopped that, too.
I recently tried Wellbutrin, hoping it would help me sleep - BIG MISTAKE! After 2 weeks it was like having a fistful of caffeine pills. I got very agitated and my anxiety was off the charts. No more experiments for a while!
I first took Pamelor (nortriptiline) when I first tried to get better 25 years ago, and it worked for me then. I tried to take it again a few years ago, because I was desperate for better sleep. I could feel it relax my muscles, but it made me very sluggish, which was why I stopped taking it the first time (after 3 years). I was very sick all last year, with some kind of bowel/obstruction/constant severe abdominal cramps, which were terrible! I stopped taking the Pamelor about 3 months ago, and started getting better! I have no idea how it could do that to me, but it disrupted my normal bowel function. I will NEVER take it again. I am doing so much better, because that was just destroying me.
I've been going to a good massage therapist for about 6 months now, and she helped work out the abdominal thing. I'm sure I have adhesions and scar tissue from 4 abdominal surgeries for endometriosis. What's terrible is you can go through all of these severe complications, and no doctor can tell you anything. Six months ago I started with the massage, and with a chronic pain therapist, which was discounted through Medicare to about $40 a visit. My chronic pain nurse therapist in VA cost me $135 a visit!!!
Those things helped me more than any meds. I can't afford Oxycontin, and had a bad situation where I moved in with another person who started STEALING it from me! She even PICKED THE LOCK on my lockbox, and could open it AND LOCK IT BACK AGAIN!! I thought I was going crazy there for a while - why were my meds disappearing!?
So my doctor put me on methodone, which has a lot less "street" value! I like it, because it doesn't mess my thinking up but relaxes me a bit and takes the edge off the pain. I have found I can go without it in the daytime now. I have always had problems with pain meds worsening my depression, messing up my bowel function, and clouding my thinking, so I put up with more pain. It's a trade-off. I am hypersensitive to almost every medication I take. I've never even been able to drink coffee!!
I also hate the stigman of being on pain meds, but with fibro you have no choice. I have alcoholism in my family, but I have never had problems with addiction. I have never, ever increased my meds or taken more than I should. It doesn't make much difference, anyway. The average chronic pain patient only gets about a 30% reduction in their pain, regardless of what they take. The only time I'm pain-free is when I'm asleep! This is something most people don't get, because they associate taking pain meds with feeling no pain.
I hate the stigma, and I hate that it made me a target for theft! I live alone now, not going to go through that again. Most people with chronic pain don't become addicted, so doctors should not worry about it so much when severe pain is a problem. There are a certain percentage of people with addiction problems, it's a brain disorder they are born with, and those people will abuse their drug of choice. They give the rest of us a bad name. I have a very good rheumatologist, thankfully, who's not willing to let his patients suffer!
As far as HOUSEKEEPING goes, I had to stop worrrying about that a LONG time ago! Do what makes you happy, and what makes you feel good. My boyfriend left me because the house got so messy, but to a certain degree, that was his fault. He made the mistake one day of giving me an ultimatum, which was a crappy thing for him to do. He wanted me to let him THROW AWAY ANYTHING HE DECIDED TO, without my having a say in it!! Can you imagine? I thought he was being mean, and he was! He could have worked with me, but he left. It wasn't the only issue, but I really loved him and still don't understand how he could do that. But I'm over it now - that was six years ago!
It's hard enough getting to your own chores when you have fibro, I sure wouldn't volunteer to do anyone else's!!! I live with a certain amount of squalor many wouldn't tolerate, but if I don't do it, no one else is going to! If anyone judges me for it, that's their problem!! I'm not going to make myself miserable over something so superficial.
There is really some good help and ideas on this board, I'm finding out!