New to the forum?

Sign Up Here!


Already a member?
Please login below.





Forgot your password?
Need Help?  
I can't fight the fatigue
9 Replies
marwal - December 28

I always check this forum to see if anyone talks about their tiredness. I have always had a low pain threshold, as long as I can remember. So pain is no stranger to me, it's real and reminds me I'm alive. But the battle I can't fight is fatigue. It pulls me down like an invisible rope in my back. My eyes close when I'm at the computer. I feel sometimes that if I don't lay down, like on my bed stretched out, that I will surely die! This fatigue is taking away any normal life I used to have. Thank goodness I don't have to work, but keeping busy for say 5 to 6 hours taking care of household duties is all I can do.....sometimes I could scream I feel so AWful. I look normal from the outside, but inside I'm silently praying that if I could only have 24 hours to sleep, and relax.....oh well, enuf whining for today. If any one has any tips to fight my forever closing eyes, pleases tell me. By the way, I also have Sjogren's syndrome and IBS.

 

Gabbie - December 28

marwal, I know what you are saying about the fatique. Although I'm better now, I had it daily for quite some time and it would come on out of nowhere. It was so overwhelming and not something that I could even try to ignore. I couldn't keep my eyes open even while I was sitting up. I found that if I didn't try to fight it and closed my eyes for a short time, the feeling would pass and I would be able to continue what I was doing, although not with the same energy level before the exhaustion hit, but at least I could finish what I was doing. Maybe you're pushing yourself for too many hours and would benefit with a few breaks in between activities. I do that now and I also get the pjs on earlier in the evening and give in to my need of going to bed earlier. I may not fall asleep but I find that watching tv relaxes me and gives this tired/achy body of mine some rest. I have most of the other symptoms of fibro (and have been formally dianosed with it) poking at me each day, some more than others but fortunately the fatigue is not too bad right now. The best thing I can suggest is that you rest when you need to and don't feel the least bit guilty about it. Household stuff will always be there among all the other things we do, but in order to do them, we need to be in better health. So, take care of yourself first! I wish you well.

 

Fantod - December 28

Try using sublingual B-12 with folic acid. It is not entirely foolproof but better than nothing. Christmas nearly killed me. It is three days later and I could fall asleep sitting up. B-12 with folic acid is only fairly effective as long as you pace yourself. it was recommended to me by a nutritionist. I find as long as I behave myself and don;t get carried away it helps. If I do too much nothing helps. Be sure you understand the pros and cons of using any supplement. Hang in there.

 

cr72 - December 29

Marwal, it is my understanding that getting insufficient stage 3 & 4 (deep restorative) sleep is common among people with fibromyalgia. I was in a class (required by my hmo) right after my diagnosis, and a physician who spoke said the the Tricyclic Antidepressants are the only medications that can help with improving the quality of those two levels of sleep. I was having the same problem and I have to work 10 hours a day (4 days). I'm a mental health therapist at a local college counseling center and almost fell asleep with clients. I thought I was going to have to cut back my work hours, but my doctor prescribed me Nortiptyline and I had a significant response to it immediately. Some days are a little long still, but I feel much less fatigue overall. I also have a co-worker with a recent diagnosis and she got the same relief when it was prescribed for her. Hope this is useful. Good luck!

 

marwal - December 30

Thank you for all your help., Gabbie, Fantod. Um, cr72, yeah,...I've been on Zoloft for several years now, including Clonazepam for depression and anxiety, and it took uh...five years to get balanced on that. I, too, am or have been a mental health therapist, and tricyclics make me sooo nauseated, I can't drive my car, I feel so ill. So thanks for the suggestion, so I suppose I should get on some vitamins. I don't want to take anything herbal, 'cause Mixing them with prescription meds is a no no in my books. Thanks again Happy new year to all. M.

 

llcsmom - January 1

Hi--my daughter is 11 and this is her first winter with what we now know is fibro.
She has told me that the fatigue is harder for her to deal with than most of her pain, especially when she is at school. Luckily, the school nurse is very supportive, and she can come and lay down in the health room for awhile, and if it is real bad, she comes home from school. She can sleep 14 hours and still be tired when she wakes up (or rather when I wake her up--she rarely wakes up on her own). I was thinking of trying lemon oil in some way (it's supposed to be invigorating). She uses lavender oil for relaxation. Also, she is trying a juice with antioxidants in it--but just started that a week ago.
Take care!

 

LindaQ - January 2

You are not alone. Right before Christmas day mine started and I still am fighting it. Always get a spell of it this time of year and I am just going with the flow, considering it a vacation and my body telling me to rest,so I do. I know it will pass and already is starting to some and I will get my second wind back. But the thing I like is that even though tired, I have that but don't have Fibro pain at same time, so I would rather be tired. And I really only get the Fibro pain now when I flare or over do.
Just pace yourself and rest if you need to rest.

 

JJ1 - January 3

Holiday stress also adds to my fatigue and causes a flare up. For the last 4 or 5 days I felt like I had been beat up in a fight, I was so sore and achey, but I woke up today feeling better than I have in a week!

 

cheryl43 - March 27

I agree about taking the Tricyclic Antidepressants as I was having the same problem with trying to stay away, I'm go to bed tired, couldn't sleep, wake up exhausted and sit at my computer fighting to keep my eyes open. I went back on Elavil and the first day I could finally stay away and hold myself up. I thought I was going insane with being so tired!

 

Wonka - March 29

You may want to have your iron checked as well. I have had debilitating fatigue lately. I was seeing my GI specialist (I also have celiac disease and GERD) and he did a series of blood tests and lo and behold I have low iron. It will take time for the iron to kick in but I'm looking forward to having some energy in the future.

 

Message:


You must log in to reply.

Are you New to the forum? Sign Up Here! Already a member? Please login below.

Forgot your password?
Need Help?
Ask a Question