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sheenie - August 27

Hello all. I am new to this site but I feel I have no one else to turn to. I have been diagnosed with fibromyalgia and Costo-condritis. I have had these conditions for 5 years now.

Had a variety of drugs that just didn't work, had physio and hydro therapy and also counselling but now on tens' machine. Consultants have now said that steroid injections could be the next treatment to try. I feel like a guinea pig. I just want something that works or at least takes the edge off my pain. I am struggling to do every day jobs, my employers are not being understanding about my condition at all. So change of career and job keeps getting hinted at. I just want a normal life and to walk down the street again without stopping and starting because of the pain and lack of ability to breath.

I used to dance 6 days a week, go to the gym 3 times a week and swim twice a week. I just want that life back. HELP?

Another question how does pain management work?


January - August 27

Hi Sheenie and welcome. Most of us have to try a lot of different things before we find the right treatments for our bodies. And, unfortunately, we usually have to modify our former activity levels too! It's very frustrating and hard to come to terms with. Counseling should be a place where you can work on those issues.

I think fibromyalgia is really a number of different diseases. Most of us have pain and sleep issues, but then the symptoms scatter and we have different problem areas. Click the blue boxes on the left to read information about fibromyalgia. Also, use the blue search box on the right. For example, you could enter "cortisone shots" or "steroid injections" and hit search - you will get a lot of threads where people have discussed these shots. They are usually given for inflammation, and only work short term. I don't think most people would recommend steroid injections to treat fibromyalgia. (You have to educate yourself and advocate for yourself. There are certain treatments that are pushed a lot, even though they aren't super effective. I think maybe the insurance pays more for them.) Some people do alright with the shots, but you also run the risks of surgery, like infection - and recent research shows they may damage tendons. The Wall Street Journal did a study and found they helped with pain short term, but after a year, the pain was worse. I'd recommend you google and read the forums to see what other peoples' experiences have been, read about what the drug side effects are and decide for yourself if you want to try. Cortisone lowers your immunity and is bad for your bones; it has other side effects too.

Maybe someone else can advise you on pain management protocols. I've been lucky to have regular doctors who dealt with this, but many doctors do not and pain management would be the place to go for relief. I cut my pain level down considerably with a gluten free diet, acupuncture and some low dose older meds for pain and sleep. I also got trigger point injections of lidocaine. But everyone is different! You don't say what your major pain problem is - if it's costochondritis, put that term in the search box at the right and look for discussions here. I've seen some discussions where people talk about remedies that help with that.

I think it's important to learn all you can, do you own research, and keep a journal of your symptoms and how different treatments work over time. You may have to cut down your activity level until you get your symptoms under control. Most fibro people have to learn to stop overdoing it, or we have worse pain. Wishing you luck, and please come back and tell us how you're doing.


Nee_ster310 - September 11

My mother kind have went thru the same things that you went thru. She has had many doctors that shez been with. Now, My mother went to the a new doctor about 4 months ago and the doctor refereed my mom to go and order a product online to try for her fibro. Its an all natural product. She said this product has the highest antioxidants in the world. Its called Kyani. Well, I and my mother tried it at the same time with in the 2ed week I started not feeling the pain. For my mothers fibro it took a month and a half. Within the 3 weeks my mom started sleeping and it has been 14 years since she slept thru the night and now she is snoozing away. My mom said that she will never take any drugs anymore and will only tke kyani. I asked the doctor if I can give this info to friends and family and she said its for everyone who would like to order. I call Kyani's customer service at #208-529-9872 #283378 my mom orders online at and give them the docs Distributor #283378 The three product that Dr. Baird let us know about is Nitro Extreme, kyani sunrise and kyani sunset. I just went ahead and got my own membership #.This stuff truly works and I wished that all doctors knew about this. Well, All I can say is try it for yourself. I cant believe that doctors dont know about this.



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