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how to ask my dr about pain medicine
2 Replies
Kaia-angel - August 22

Ive been seeing my rheumatologist for about 3 years now and have been on every "fibro" medicine under the sun, unfortunately none have worked. in january i had a baby, she passed away when she was 4 days old due to a lung defect. since then, my pain has sky rocketed. i take lexapro 20mg every day, and amitriptyline each night. i told my dr that my pain is so bad that i cannot even take care of my 2 year old daughter. during each appointment, he does a physical exam, resulting in me in tears and terrible pain. but each time he just gives me a different sample of meds and says it should start helping in 7-14 days! i need immediate relief! and each time, that medicine doesnt help a bit! ive tried 1600 mg Gabapentin daily, Savella, 450m Lyrica daily. and nothing helped. i have taken percocet & flexeril. they work well for my pain. but i was given this only by an e.r. dr recently b/c i was in so much pain, i was afraid of what id do if i didnt get relief. i feel like all my joints are constantly being pulled out of socket, tendons feel like theyre tearing & muscle spasms all over. i cant wear a bra b/c of the pain. all of this i have told my rheumatologist(except the e.r. and pain medicine b/c this was last week)
ok. so here's my question, finally! how do i talk to my dr about pain medicine, knowing that its been the only thing that has helped my pain? he hasnt mentioned trying it, so im afraid of how it will look if i bring it up. im just so miserable from pain i just cant take it anymore. my 2 year old is afraid to come near me b/c each time she hugs me i cringe or cry from the pain. please any advice is greatly apprectiated.. i dont want to come off as a "drug seeker" to my dr., ", i just want my life back.
Thanks so much!


Fantod - August 22

Kaia-angel - Welcome to the forum. I'm sorry, but why have you put up with your current rheumotologist for so long? Obviously, he is only interested in doing the bare minimum regardless of what you tell him. When it comes to Fibromyalgia (FMS), you must be your own best advocate.

Your inability to wear a bra or stand being touched is called "allydonia." I have it myself. Mine comes and goes and can make wearing clothing a nightmare. I am particularly concerned about the effect that this is having on your two year old. As you know, at that age they need a lot of nurturing from Mom. Your current situation just breaks my heart.

There are several options you can persue. Call your local hospital physician referral service and ask them for a recommendation to another rheumotologist and/or a pain specialist with an interest in FMS. I have both and they work in tandem with one another. Another option would be to go to the National Fibromyalgia Association website and find the list of fibro-friendly doctors in your area.

Round up your medical records and copies of any recent tests that you have had - bloodwork etc and see someone else ASAP.

As for being perceived as a drug seeker, if your current meds are not working than other options must be explored. Based upon your question and description, my personal feeling is that your current rhuemy is not going to do anything along that line. If he was really listening and cared something would have been long before now.

I hope that my comments are useful to you. Keep in touch and let us know how you are doing. God Bless.


Kaia-angel - August 24

Thanks! My problem w/ that is there is only 1 rheum in my area surprisingly enough! I live on the westbank of new orleans so youd think there would be many in my area but nope! Another issue ive got is ive got medicaid so they 'assign' me a gp, the 1 i used to see was great & he had me on percocet flexeril amitriptiline & lexapro. Then medicaid assigned me a new dr & she sent me to my rheum for treatment. And the pain mgmt drs here charge 250 for 1st appt and 150 after that (medicaid doesnt cover pain mgmt!) so im stuck b/t a rock and a hard place. I go to my rheum on the 1st & am just going to openly ask for pain meds, whats the worst that can happen? I know they help me, i am to a point where i cant take the pain anymore.. Its debilitating & starting to mess with my mental state.. Ive got to keep it together for my family! Thanks again for advice & for listening!



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