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How do u find a dr that treats FM & doesn't think u r crazy?
2 Replies
constantlydistracted - November 16

My doctor is a good person and doctor, but he doesn't understand FM so he treats at me. Most days I don't understand it either. My two best friends who have never met and live in different states both swear I have FM. One friend has it personally and the other has an aunt with FM. They tried to tell me this for yrs until I finally realized they were right. I've had most all the symtoms at some point or other and right now am having a difficult time. I want a dr that can treat me instead of me having to tell him what meds might work. I'm tired, frustrated, depressed and everything I have hurts. Its not always this bad but I really need help from someone with experience in treating FM.

 

Fantod - November 16

You need to see a rheumotologist to get a firm diagnosis of FMS. Go to the National Fibromyalgia Association website and ask them for a referral to a fibro-friendly doctor in your area. Or, you could call your local hsopital physician referral service and ask them for a rheumotologist that treats Fibromyalgia. Either way, I would get a couple of referrals. Take some time to throughly read all of the information posted on the lefthand side of this page. Then, go through at least some of the posts on the forum. There is a lot of good information on this site and informative posts by other readers. There is a not a lot of rhyme or reason to FMS. It is a disorder of the central nervous system and considered to be an auto immune disease. It does run in families which would indicate that there may be a genetic component. In a nutshell, FMS is poorly understood by both the people who have it and the medical profession. Once you get a firm diagnosis, it will take time and tinkering to find the right combination of medication to make you more comfortable. Nutrition is very important. You should stay away from deep-fried food, diet anything (no Equal, Splenda etc - if you must use a sweetner, use Stevia. The latter can be found in any decent health food store. Also, do not eat processed lunch meat because of the nitrates. Some people with FMS also have problems with products containing wheat (gluten) All of these things that I have just listed will probably increase your pain levels. You must learn to listen to what your body is telling you about your daily living habits such as stress, and sleep/rest. I hope my suggestions are helpful to you. Let us know how you do and take care.

 

trans - November 17

Dear constantlydistacted,
I totally identify with you and Fantoid did an excellant job explaining FMS. I doctored for everything from GI problems to TMJ for years before I was finally able to get a diagnosis froma rheumotologist. I know it is so hard to try and find ways to help yourself when you are so tired, depressed and worn out. But there are meds and docs that can help you manage this monster. Once you figure out your plan to manage this you will feel better about things. I am a veteran of over 36 years and it makes my heart sad when I see so many suffering with this. I decided a long time ago, that I was going to fight this thing or give in to it, and I am 57 and still fighting. God Bless you and good luck to you.

 

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