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Horrible Headaches
8 Replies
amscanlon - March 3

My PCP has told me that he thinks I have fibromyalgia and I have been on Cymbalta for 4 weeks now with no relief.

One of my extreme symptoms is perpetual headaches. I have had a headache pretty much everyday for about 4 months now. Its just that sometimes the headaches are less painful. Ibuprofen and Aleve barely work. They might make the headache less worse for about an hour or so. I don't want to be continually taking pills.

My headaches usually always occur in my temples and the lower part of the back of my head/upper neck. The pain is so intense at times that I am in tears.

Does anyone have any ideas for relief for me? Is anyone having this problem? Does anyone have anything that has worked for their headaches?

I have been eliminating all sorts of foods to see if something is triggering them and I just can't figure it out. I haven't been eating chocolate, caffeine, sugar, dairy, gluten, artificial flavors or ingredients. I still continue to get them no matter what I try.

Any suggestions?


Noca - March 3

I know that Topamax/Topiramate prevents migraines from occurring if that's what you have. You can always mix Tylenol with Ibuprofen/Aleeve if you need to for relief. Just be sure to limit yourself to 1000mg of Tylenol at once and 3000mg a day.

I would get a CT scan or MRI of your head to be sure their isn't any tumors or anything else that would be causing the headaches.


Canada17 - March 3

Massage therapy. What you are describing sounds the same as my tension headaches. They started after a pretty bad whiplash injury. I was going for massage therapy three times a week. Worked wonders for my headaches.

Now, I do stretches and make sure to change positions often. I also try to remove myself from stressful situation whenever possible. I was only able to do this after relieving the excess tension that had built up in my neck and shoulders.

You should look into it.


ptalana - March 3

I also suffer with these headaches, they are horrible. I used to get lymphatec draining from my physiotherapist following my accident, this helped a great deal. My chiropractor also did this for me, perhaps it's something you can look into. I haven't found anything medicinal that help unfortunately. I do apply tiger balm to my temples and back of my neck, it helps temporarily.
Take care, Patty


Canada17 - March 4

Oooo that Tiger Balm! Since my Fibro has become more prevalent in my day-to-day health I have not been able to use it.

I used to use it all the time and it was very effective. However, last January when I had a terrible muscle spasm in my trap I used some. Well, I had to take a shower within five minutes because my skin started to burn and when I looked at where I had applied it my skin was hard, raised, and red like a bee sting.

Just something to consider if you have sensitive skin.

I have been successful in using Volteran which is an OTC topical pain reliever. This is also sold by prescription in liquid form, however it is very expensive because it is so concentrated. The OTC version is very reasonably priced.


Duo - March 4

I also get these terrible headaches and have always been told by my G.P. that they are caused by the constant neck and temporomandibular joint pain I have from the Fibro. Last week I thought my head was going to explode so I reluctantly went to see my G.P. (why do we always feel we are being a nuisance!!) and my bloodpressure was extremely high. I am currently having this checked on a regular basis and re-referred to neurologist. I would urge you to go immediately to see your doctor - good luck.


Fantod - March 5

I agree with Duo - I think the source of your headaches may be caused by TMJ/myofacial pain. Ar you aware of grinding or clenching your teeth? You need to see a specialist to see if this is the source of your problem with constant headaches. This would also affect your shoulders, neck and arms. You probably need to have a bite spint made to relax your jaw while you are sleeping. I have worn one for over 20 years. If TMJ is ruled out, my next stop would be a headache specialist.

I would also ask (nsist) for an MRI on your head and neck to be sure nothing else is causing the problem like arthitis, bone spurs on your neck etc.

As for the Cymbalta - you say you are getting no relief. Are you referring to the headaches or other symptoms associated with Fibromyalgia (FMS)? It is very difficult to stop or manage chronic pain once it has continued for awhile. If your other symptoms (not the headaches) have not improved in another two weeks, ask for a change in medication. Savella was new to the US market last year for FMS. It has been used in Europe for years. A lot of people with FMS seem to be having decent results with it. Six to eight weeks on Cymbalata is enough time to see some improvement. Everyone with FMS requires a different drug regimen to manage their symptoms.

As for eliminating items from your diet - if you use anything containing an artifical sweetner, get rid of it. That can cause your pain levels to increase. If you require a sweetner, use something like Truvia which is made from the non toxic Stevia plant. You can find it at the grocery store alongside other sweetners. Also, deep fried foods and lunchmeats may increase your pain levels.

I hope that my comments are useful to you in some wway. Take care.


1joyjoh0624 - March 10

Horrible Headaches are unfortunately common with Fibro patients. I am getting Trigger Point Injections from my Neurologist. This does help.


smileu - September 14

I have a question do you have throbbing headaches that are followed by burning like a heat pains throughout your head?



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