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History of Immune Disorders
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Cassiel - June 3

Dear Everyone,
I'm new to the site and want to share my story in hopes that it will validate someone. In 1998 I came down with TTP. You can look it up online but it is an immune blood disease. I never recovered fully and have been inundated with fatigue/swollen lymph nodes/low blood pressure/PAIN, etc.
In 2005 I came down with Valley Fever, was in and out of the hospital with several issues and in 2007 when I finally had lung sugery to take out the VF nodule, the Dr's discovered I had Addison's or Adrenal Insufficiency Disease. Ok, now I'm on steroids but still experiencing disabling pain and weakness. Spring of 2008 I was diagnosed with RA and this past December Fibromyalgia and CFS. I also began having severe panic disorders/major depression and am finally on Disability so that I may rest and hopefully regain some life.
I have a couple of questions. obviously this has been quite a ride and I've had to do tons of research and be my own health advocate. I don't take any crap from Dr.s and if they aren't completely into my health care I find a new Dr.
Does anyone know of anyone with a history of TTP that now has immune related health issues?
Lyrica is not working for me...does anyone else
have that problem? and does anyone have Adrenal disease in conjunction with Fibro?
My Endo Dr. has sent me to a metabolic wellness
center. I work out with a personal trainer 3 days per week, discuss nutrition, have massage and muscle work done and I saw a dietician that specializes in FMS. It's not easy and it usually is the only thing I do other than rest and recoup from the workout. Some of you might want to check with your Dr. to see if there is a program in your area that your insurance will cover.

If anyone has questions or would like to share in this thread, please, I would welcome anything.

Health Blessings to all of you.

 

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